Hello, I am new to this, but was encouraged by my 23 yr. old daughter to seek online communities where i could talk to other parents who have children with ADHD and other type dis-ordes, and maybe even seek medical professionals advice and/or tips. So, here goes.... I am a 44 yr.old Mother, with a 7 yr. old son(8 in a couple weeks) who was diagnosed (at age 3) with ADHD-Combined Type, this was extremely hard as a Mother to hear that i needed to medicate such a young child, and I almost didn't! But then, i sat down, cried, and then thought to myself...am I being selfish? This is about my baby, not me, he is not comfortable in his own body, so i decided to get with the program and medicate him and began taking him to therapy and a child psychiatrist. We knew even as a baby that "JoJo" had "something" going on, he never(and i mean never) slept through the night his whole first year, he barely slept at all, he would just scream and cry, and we could do nothing to comfort him, I felt totally helpless. I remember trying to hold him and walk with him, and having a hard time because his whole body was stiffened straight. As he grew, more things became very apparent...he was extremely active(Hyper) had a hard time focusing and/ or staying on task, had spells where he "zoned" out, could not handle any type of transitioning, began having aggressive behaviors, had severe tantruming, and the list goes on......
Fast forward to 2012, JoJo is in 2nd grade in an integrated classroom, but is on an IEP with pullouts for special needs. He has been in the same school since Kindergarten, so they know him well, know his history, his behaviors, his" dis-orders", JoJo has, over the years been also diagnosed-- PDD-NOS, IED, mentions of Anxiety,OCD disorders have also been mentioned. There have been several medication changes over the years, But we never seem to be able to get him where he needs to be, just able to cope with every day life, comfortable in his own skin. At this time he is having major behavioral issues, he cannot cope with things not going the way he wants or "needs" them to be, he is lashing out in school and at home, both physically and verbally,having severe meltdowns to the point of sometimes having to be removed and taken home from school. He recently had a 1 week hospital stay, where they stopped one med and introduced another(without success) as we have seen since being brought home and going back to school. Again medication change(within the last week) no improvement as yet, in fact i had to go remove him from school this very day. We, at this time feel extremely lost as to how to help him, what to do next, where to go, what to try. We feel like we keep hitting a brick wall. We have had, now 2 child Psych. Docs who get to a point where they are asking us "what do you think we should do? " Guess they hit a brick wall also. It's a very stressful,trying,emotionally and physically draining time for us, but for none more-so than JoJo, I just want a happy, normal, fun, liveable life for my son. We feel at this time that, that is so far out of reach for him. We will never stop fighting for him, trying to find the right answers, treatments and Drs. I Love my son more than any words could describe! I have to keep faith that we will be able to find the right course of treatment to make his life comfortable, just happy to be a little boy. Thank you for letting me speak my mind and I hope to hear from anyone who would like to offer advice,tell their story or just plain comment on this thread. LoriAnne