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Early detection & positive attitude
Ttommy posted:
Early detection is the key to manging AD. People need to endlessly persue a diagnosis as soon a memory problems or unusual personality changes occur.

I did not notice any problems but my wife did. She asked me to seek help. Two and a half years and several tests later I was diagnosed with stage 5 Alzheimer's. Since I was only 58 it is called Early On-set AD.

Five years later my family considers me to be at stage 4. I really don't think that is possible since science tellshe positive us that AD is not reversible and constantly gets worse. Maybe it is the modern meds, maybe it is the positive attitude but it is probably due to both!
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cjh1203 responded:
I could never guess from reading your posts that you have Alzheimer's. Whatever you are doing seems to be working well.

We do have a couple of other people here with early-onset Alzheimer's, including Gken9. Floridapoolbum also has early-onset Alzhemer's, and he writes a blog about his experiences living with the disease.

It's nice to see you here, and I hope you'll continue to post.
Byroney_WebMD_Staff responded:
Dear Ttommy,

I know I already replied to another one of your posts, but I just wanted to add another welcome to Cjh's. It's good that you and your wife had such open lines of communication she felt like she could bring it up to you.

I am glad the meds, support, and positive attitude have all made it possible for you be doing so well five years later. I sure hope that trend continues.

I'm looking forward to your next post.

Ttommy responded:

My take... My Golden Years are upon me. Darn the AD dx- enjoy life to th;e fullest!
Later... My diclaimer: I'm not a professional in this area. Onjly a person with Alzheimer's that can still express myself and want to help others.
ConcernedFriend22 responded:
I'm interested to know how you are now and how do you remember to log in. What activities do you find helpful?
GKen9 replied to ConcernedFriend22's response:
im not sure i cantell you ,i haveto take sometimes days ti get back in here
and today the fire alamr went off we had to get out side not out apt down the hall and no fire

we got more snow today but i have a laptop and they help me save my stuff and made it esay to get in here when im not slepping

we took my dog to get bath and har cut and i got 1 to
cjh1203 replied to GKen9's response:
I'm glad the fire alarm turned out to be nothing, but it must have been a little scary at the time.

I guess Spring hasn't quite arrived there! You must be really sick of the snow.

It's always so nice when the dogs smell good and clean and have their hair cut. You and your dog must make a handsome pair today!
Ttommy replied to ConcernedFriend22's response:
Not to sure how I remember. Only thing I can think is that I have always been involved with comkputers and it psrt of my long term memory. I have tried other things that require a learning curve an failed at all of them.

Remembering to come back to this site is another issue. Luckily I have saved under my favorities.

My return from a much deeper fog has come to me in a couple big leeps. Once when I got the dosage of Seroquel figured out. The doctor started me out on 25mg and over about 3 months adjustged to 100mg before finding the right dose.
The next leep came when I moved from 10mg Aricept to 23mg Aricept.

later, Tom
Later... My diclaimer: I'm not a professional in this area. Onjly a person with Alzheimer's that can still express myself and want to help others.
cjh1203 replied to Ttommy's response:
Ttommy, you're really fortunate to have a doctor who spends the time to make sure you get the medications and dosages that will help you. I think that a lot of people are given medications and then nobody really follows up.

It's nice to hear from you again.
AMCTerp responded:
Thank you for your post. My mother is only 63, but I have noticed many instances in which she has had significant memory loss issues (forgetting entire interactions with folks, forgetting what she has told me and then getting paranoid about "how I know that" the next day when I repeat it, and much more) as well as other personality changes -which I have noticed but did not know it could be connected to her memory issues. Anyway, I have mentioned it to her but she just laughs it off whenever I do. I am struggling on how to continue and whether or not to pursue the issue. It seems with your comment/tip, I should pursue it further...
cjh1203 replied to AMCTerp's response:
It definitely sounds like she needs to be checked out. Even though she's laughing it off when you express your concern, she may be very worried, too, and afraid to find out what's wrong with her.

Is there any way you can set up an appointment for her and then tell her that her doctor's office called and said it was time for her to go in for a checkup?
balmayne replied to cjh1203's response:
Your wife might be laughing it off, but I think she might suspect that something is wrong. I would sit down with her and have a discussion about her memory loss, without mentioning memory loss. For myself, I noticed it in me, it was my husband who was in denial. Ruth

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