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Doxielover10 posted:
I have finally come back to this forum with a really scary issue. In less than a year I arrived DOA at the hospital in total renal failure. They made me stay there for 22 days. I have never in my life even thought about kidneys. I had put off a surgery on a gland in my neck so I went straight into MD Anderson hospital to have the gland taken out. They lift your tongue so fsr up so the can cut the entire bottom of your mouth. My tongue was so swollen I could not speak. The day after surgery I had a 102 degree fever so they kept me there for 6 days. At the next week checkup the incision was becoming totally infected so I was put back in the hospital. Actually I had a room with an enormous window that faced the chopper come and go so I watched that alot. Then I broke out with head to toe huge round bloody sores. I had MD Anderson biopsy the sores, results were extreme, extreme anxiety. My doctor said I had to stay at home and I could not drive.

Not to bore everyone to death I'll just cut out part of the nightmare.. One night , I thought I was going to die, went to the ER and it was food poisoning..

I had taken so much medication I WANTED IT OVER.

The day after the ER, I tried to get up but I was shaking so badly I could not walk, make cofee hold a spoon etc. My husband came home and I tried to speak but I could not.I was worse than any stroke victim.. It's been since March and I got better but then I lose my balance, I fell down the front stairs of our house and then 2 weeks ago
I woke up to go to the Ladies Room and we had no idea why but I fell so hard I still have bruises on my face, where it smashed into the tile.I broke my jaw, 3 ribs, it took 4 days for the pain to go away.

I will not answer the phone unless I really know them,most people said I had a small stroke, I went for an MRI without contrast so they really can't tell. We all finally agreed to put me on medications that have a calming effect, not a barbiturate. I learned breathing techniques.

I have 2 docs I have been with for 16 years, they know I tend to not really break the rules I just bend them a bit so my doctor has all my keys. I am not supposed to swim alone but I have done that.- The most amazing thing of all is that I have been a nervous wreck my whole life and I finally have felt calm. I'm praying I can do this, the sores are still here bleeding all the time.

Sorry for the novel but I really have had an atrocious time that is still not resolved. Please, please let me know

Sojourner53 responded:
Wow, what an experience! I will pray for you! Seek God!
Patricia Farrell, PhD responded:
I'm not an M.D., but this certainly sounds very unusual and, of course, very upsetting for you and your family. I do not understand about the bleeding sores and I'm wondering if you should have been referred to another specialist.

I've had patients who have had to wait for many years to get the correct diagnosis, so I can understand what you are going through now because as you said, the situation is still not resolved. Are you being treated by a neurologist? Since, as you said, they did not use contrast for your MRI, what are they suggesting is causing this? Is contrast still an option that should be used? As I said, I am not an M.D., but it sounds like a real medical concern for you. I've never heard of anyone breaking out in bloody sores from anxiety.

I certainly hope that someone clears this up for you soon and that you can get some relief from the anxiety this might be causing.

Dr. Farrell
Doxielover10 replied to Patricia Farrell, PhD's response:
I had a biopsy of a few sores at MD Anderson and the results have a long latin name simplex chronicus I forgot the last word.

My Doctor said it is a severe anxiety that will cause this to happen. I still have sores and they bleed constantly.
Patricia Farrell, PhD replied to Doxielover10's response:
I'm so sorry to hear this, but it's something I've never heard before. Have you asked them to send you a copy of your report from your last appointment? Patients are entitled to copies of their medical records and this would be a good thing for you to have for future reference.

What are they doing about the sores?

Dr. Farrell
MissCaptainKirk responded:
I have blacked out before from anxiety, I know how scary it is and I really feel for you. Fortunately I never completely broke anything when I fell. I've had memory loss and endless violent shaking, so I can sympathize a little bit but my gosh it doesn't sound a fraction as bad as what you're going through, I can't imagine how hard this is for you. I am so sorry you had to go through that, and everything else. This is the worst case of anxiety I've ever heard.

Are you doing ok lately? Are you feeling any better?

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