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Bronchial Thermoplasty
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whezzienanna posted:
My Pulmonaligist refered me to have the Bronchial Thermoplasty done.
has any one had this done or herd much about it. I am hoping it works
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bresky responded:
Hi I have heard a little about it. I have been interested in it as my asthma seems uncontrolled. It sounds like they burn some of your lung tissue, not sure haven't done alot of research into it.
Hope someone can provide more.
Bre
 
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whezzienanna responded:
on the 8th of Nov I will be seeing the specialist about having the Bronchial Thermoplasty done they will do a lung function test and meet with the specialist I hope they approve and I can get it done I am on all the meds they can give me. It would be great to be able to get off all the meds (even if it is one or two ) I would be so happy and not have to worry about going to church or anywhere with out worrying about having an asthma attack.
 
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bresky replied to whezzienanna's response:
I hope it goes well and they can do it for you. Let me know how it goes I am going to talk to my specialist mid nov about it
 
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whezzienanna replied to bresky's response:
I went to the specialist in seattle and had an lung function test
and she said I look like I could be a canadate for the Bronchial themaloplasty but I had to have one more test in which I had today which basicaly saids I have asthma big shocker lol
the proses is long for the Bronchial themaloplasty once it is oked through your insurance they due bottom lung then want three weeks and do the other bottom lung and want three weeks and then do both upper right and left lungs I am praying it all works out it might not happen till next spring.
wanda
 
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bresky replied to whezzienanna's response:
I am glad to hear its moving forward. My specialist has referred me also for this procedure. However the only place in Canada is in Ottawa or Hamilton Ontario which means I have to fly but if it helps I am all for it. They have me on max medication including 5 inhalers, theophylline and singulair. Hope it happens sooner then next spring for you.
Bre
 
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whezzienanna replied to bresky's response:
That is the same with me on the max of all the medications not
fun we asked how much it would cost ant the Dr. said 50 thousand $ I pray the insurance covers most of it but I will be worth it I would like to go to church and other places with out worrying about having an attack. I pray it all goes well for you also:) keep me updated on how it goes for you.
Wanda
 
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bresky replied to whezzienanna's response:
Wanda

Ouch $50 000, that is expensive thankfully it is free for me, and manitoba health will pay for the flights and hotel room, and an escort, as long as my doctor writes a letter stating that I need this procedure and that it is unavailable in manitoba. Also that I need an escort incase my asthma flares up while I am down there someone will know my history and able to care for me. However this means I am off work for 3 months and I have no sick time left. So I have to figure out short term disability.
I am excitied to have my life back and be able to go out with out worring about scents and smokes and an attack.
I pray everything goes well with you.
I am hoping to have dates when I see my specialist in January, I phoned Ontario and they offer it and their wait time is 1-2 weeks as it isn't high priority procedure yet. I phoned my specialist and she is still writing all the letters so she is hoping she will have dates for me in January.
Scary happening so fast.
Bre
 
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whezzienanna replied to bresky's response:
Well sounds like you have it done before me so please let me know how it all goes I am also anxious to get it done and get my life back also.
I got so irritated the other day it was the day before our thanksgiving haliday and went shoping and a person was smokilng by where we parked covered my mouth and hired to go in to the store but some person was smoking by the enterance and I had to hurry by them too and it made my lungs burn I had to take my inhaler right away got what I could then had to go home so my husbond had to do the rest of the shoping bless his heart.
I am still wanting on the doctors in seatle to let me know if and when I do have a sister that live about 2 hours away from Seattle where I will have it done so I will be able to stay with her.

Well again I will be praying for you let me know how it goes.
Wanda
 
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whezzienanna replied to whezzienanna's response:
I got a call from the Dr. that does the proceduer and my test came back incomclusive so I am not a canadate for the proceduer. I felt really let down I now have to want for my husband to get back to work for insurance to see my Dr. and see what direction he wants to go I am so flustrated. I am back on prednasone again! Oh when God closes a door their is another door to be opened. Please still keep me updated how it goes for you . Wanda
 
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bresky replied to whezzienanna's response:
Wanda

I am so sorry to hear that. It sucks when they get your hopes up about a procedure and then they won't do it. Hopefully they have another idea about how to help you.
I am looking forward to my appointment on the 3rd for more info on mine.
Bre
 
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littlestring replied to bresky's response:
I am new to this site. I have just heard about bronchial thermoplasty I have severe asthma. May I ask the name of your Dr. you went to. I am in the Seattle area. I am on Theophylline, Dulera and Albuterol. I have a home nebulizer for when l'm really bad. Can you tell me what meds you're on.
What insurance covers this or dp you know. Looking forward to your response.

Dee
 
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littlestring replied to bresky's response:
I am new to this site so please forgive me if you already posted your results. Did you get the BT? If so how are your results???

Thanks
littlestring
 
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bresky replied to littlestring's response:
Hi Littlestring
Sorry it has been taking me so long to reply I haven't been feeling great.
I have not gone yet, as I live in Canada it is slightly different. My referral went at the end of May to a Dr. Gerarld Cox in Ontario (I live in the province of Manitoba). They wanted approval from Manitoba Health that they will pay for it before they would see me. The referral went to Manitoba health in July I hadn't heard anything by september and neither had my specialist in Manitoba. By end of september she finally found out that the Hamilton site is closed as the dr is away on Medical.
Now my specialist is away till the end of this month, so we will see what happens, there are only 3 sights in Canada so the next one is in Quebec.
It is frustrating I have looked into the states but its around 50 000 and I would have no coverage.
I am still hoping I will go soon I am sick of landing in the emergency department every month.
I will keep you updated.
Bre
 
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An_249361 replied to bresky's response:
Final treatment is Monday, so far so good, actually great. Cost in SAlt Lake City, if you can pay up front, is around 17K without complications. You would spend that on a car, why not breathing. Medicare will pay I hear insurance, probably not.


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