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Spoon Theory
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sgbl88 posted:
This link was posted by a friend on facebook. While I had read it before, I enjoyed reading it again. This is a very good way to explain dealing with chronic illness to friends and family who lack compassion. I hope that you enjoy it as much as I did.

Sonya
Sonya
http://exchanges.webmd.com/fragrance-and-odor-issues  
http://exchanges.webmd.com/pediatric-asthma-parent-support  
http://exchanges.webmd.com/politics-and-health-debate-exchange  
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Aqua14 responded:
Sonya, these parts of the article really hit home with me:

"I explained that the difference in being sick and being healthy is having to make choices or to consciously think about things when the rest of the world doesn't have to. The healthy have the luxury of a life without choices, a gift most people take for granted."

"I need to think about the weather, my temperature that day, and the whole day's plans before I can attack any one given thing. When other people can simply do things, I have to attack it and make a plan like I am strategizing a war. It is in that lifestyle, the difference between being sick and healthy. It is the beautiful ability to not think and just do. I miss that freedom."

So very, very true. Thank you for sharing this with us.

May you and others on this board never run out of spoons.

Judy
 
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amcate responded:
Thank you so much for the reference. I loved the story. Dealing with people who lack understanding and/or compassion is one of the most difficult aspects of asthma for me. I was very angry today at the four coworkers who laughed as I was having an asthma attack, I wear a mask to help prevent issues with the asthma, and sometimes there are insensitive comments (people yelling at me from cars, a person who humiliated me at my sister's graduation, etc.), and people do not understand what is like as I have asthma, but also have dealt with cancer issues, and have a rare disease called idiopathic condylar resoption. The last one is not autoimmune as far as they know. Only a few people research that disease, so it truly is an unknown. There is no medicine for it, you just have to wait for the joint to be deranged and then there is surgery to replace the joint. I know of about five people who actively research that disease in the USA, but maybe there are some more. I'm 40 years old, and people who are healthy take things for granted and they do have a hard time understanding. So, they can't always understand why I can or can not do things. I am Christian, so try to not react poorly by saying cruel or insensitive things back. However, it gets to me at times. So, thank you for the resource. I'll look more at the web page.


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