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Desperate for answers...
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astinson_2006 posted:
Hi, I am new to this group and have been looking everywhere for a chat room or group on Autism. I am so scared that my son may have this. I have noticed so many things about him that are so different then my 5 other children, that's right I have six children. He is so intellegent and kind hearted, but for some reason he does not get along with others, he slaps himself and pulls his hair (something that he use to not do), he doesn't like to play or go outside like all the other children his age, he doesn't like to eat (depends on attitude), can be very defiant and destructive at times. He rasies his fist back at me and anyone else that he wants to when he is told to do something and he doesn't want to. Sometimes he concentrates so hard on what he is doing that he has drool running down his chin, you can say his name and it's like he doesn't even hear you. Per my concerns, I recently took him to a well-known doctor and she said that he has Sensory Intergration Dysfunction, but I am so clueless to what this is. I have tried to look it up on the internet and it keeps pointing me to Autism. He is now in school and this is his second day at school. The teacher called today to tell me that he doesn't seem to have any socialization skills and that the children are going to end up not liking him. This is breaking my heart in two, I don't know what to do. She also said that he is very smart, but he is lacking in some areas where he should not be. I am clueless. I have tried time-out, taking toys a way, the corner, and yes, I have spanked himn on his bottom. Nothing is working for me. Any help would greatly be appreciated. Sorry for such a long post.
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astinson_2006 responded:
Oh, I forgot to add somehting to my post. My son does not like buttons, zippers, or jean material. When asked why, he insisted that they hurt him. It might sound wrong of me, but I actually put a button up to his skin and he started crying and had a "melt-down", I tried to tell him that it wasn't hurting him but he said that it was.
 
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Poisongirl98 responded:
Hello-

I just happened on this message board as I am a pediatric speech therapist who has children on the autism spectrum on my caseload. It definitely does sound like your son does have some sensory processing/integration difficulties. Even though children with autism (almost always) have some degree of sensory integration dysfunction, not all children with SID have autism. I would seek out an pediatric occupational therapist and ask if he or she specializes in this. There are lots of things that he or she can tell you to do at home that will help, things you wouldn'lt even think of. It does take time, but if you are consistent (easier said than done, I know), then you should see changes. By the way, that's terrible that his teacher said the children are going to end up not liking him.
 
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GingerKohler responded:
Poisongirl98

Have you had to deal with schools? My son was just diagnosed with Receptive and Expressive Language Disorder. He is several grade levels below in vocabulary, reading, spelling. He is going nuts because he can't verbally or with writing get his thoughts out of his head.

I gave the results to his school asking that they give him OT (my health insurance won't pay for it). They want to do their own test to see if it is effecting him academically.

I don't need a test to know that it is. I've know that he's had an undiagnosed problem since 3rd grade (he's in 7th now). The school has been giving him test, and tests, and never found anything.

What do I need to do to get they school to treat him?
 
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Suemac3000 responded:
Schools are good for doing testing, but they are not effective diagnosticians. And, they don't always do the right tests. They tested my NVLD boy every which way to Sunday and couldn't find anything. The Psychologist at Children's Hospital looked at his tests and talked with him for an hour, and nailed it.

Try having the professional who did the testing write a letter to the school with his recomendations for therapy and aide, and include what changes he expects to see.

One big problem parents have is when the school sees the functioning of the child and their potential as being the same. My children have shown high intellectual potential, so they have received services denied to other kids in the same situation whom they did not believe services would raise their grades. If you can get a clear letter from your professional that in his opinion academic success will be seen, then you have a better chance of pushing for services.

In the mean time, I would look on the web for literature on accomodations and new ways of looking at school work that would help him compensate for his condition. If you can show an improvement in homework (which you can supervise) and how it differs from in-class performance, you not only have just the right tools to implement in the IEP, but you can show that it's the way they're teaching him that is causing him to underperform.

I know it's frustrating. My youngest failed Social Studies in 6th grade, was failing in 7th and I got permission to homeschool it while he attended other classes, and his success was clear. Now he's back for 8th grade, and failing again. He needs it taught differently than he's getting it from them. Now I have to get to work the the teacher and see how much individual support I need to add again.
 
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Jacobsmom417 responded:
Sounds very familiar, my 5 year old son won't wear anything with buttons, zippers, tags, embroidery, collars, etc. only super soft, tagless cotten t shirts and sweat pants, seamless socks and tennis shoes that are XXW and a size too big. He also has a hard time responding when called, he is very sociable, but he tends to be too bossy and gets too close and talks too loud so more sensitive children steer clear of him. He is very smart and sweet and fun loving, but he has also is very impulsive, gets angry very easily and has issues with pragmatic language (doesnt "get" metaphors, jokes etc) He is very literal.

anyhow, we were told at age 2 he had sensory integration disorder, occupational therapy helped some, but there were still notable differences. so we kept looking for answers, We finally saw the head of developmentat pediatrics at a leading military hospital and he was diagnosed with aspergers syndrome and adhd. we are in the process of getting a therapist to come to our home and work with him one on one with socialization and sensory issues.

It sounds like your son is a lot like mine, check into aspergers syndrome. I feel like a huge weight has been lifted from my shoulders and I know that if I can help my son to learn to socialize more appropriately there is no limit to what he can achieve, some of the greatest minds humanity has ever known were a result of aspergers!! (Einstein, Newton, Beethove, Bach, DaVinci, numerous presidents etc!!) its just the school years that are very difficult for these children, they need lots of support, but once they can really focus on their passion, there is no limit to what these brilliant children can achieve!!! I truly believe it is a blessing and a gift, one that comes with a challenge.

HTH Jamie
 
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mythreesons1964 responded:
many children on the autism spectrum have SID. Did this doctor suggest any treatment? i have a six year old who has "sensory" issues and OT has helped. ABA therapy has helped with social issues tremendously.
 
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joneRT responded:
DON'T WORRY! Your son will be fine if you get the right help. If your son is autistic its nothing to get upset or all worked up about. You need to find a place that will help your son, you and your family, that place is called Early Intervention or Building Blocks. I have 2 boys of my own and they both have developmental delays and need Speech therapy. one of my sons has a behavioral issue and the other is autistic. Some days are tougher than others but they are great kids and getting all the extra help for my kids was the best thing I could have done. I'm a single mother and I'm handicap due to my fibromyalgia. Early Intervention comes to the house and helps any way they can. Building Blocks is just for autisum and they also come to the house to work with your son one on one and it makes a huge difference in the child. My autistic son can sit and do puzzles and function like a normal kid, a little hyper at times but my son is like a totally different kid now that he is in school 5 days a week full days at the age of 3 because all the help he got from early intervention and building blocks. Both my boys were just like you described your son doing. if your son is over 3 he might not qualify for early intervention or building blocks but you should take him to a good well known hospital and see The Childrens Center For Special Needs and they will also help your son get the help he needs so he can eventually warm up to being around other children and actually start playing with them, don't push him to hard get him help from one or all of those organizations I mentioned and you will see an improvement in your son.
 
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joneRT responded:
All that is is he doesn't like certain textures that is part of the sensory issue in your other post. I went thru it with my boys just try introducing him to different textures he will come around to them eventually. Just keep introducing him to all sorts of textures like toys, fabric and other things you can think of also those books with different cut outs of textures.
 
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cambria1972 responded:
Hi my is cambria my son who is 4 years old has austim, the doctors who I seen told me he has delevlopement delays. He has Mri done over the summer when we went to see our family doctor he told me my son has austim. He doesn't talk .He will only eat hot dogs and he likes lunch meats. He will give you hugs. he doesn't like when you wipe his face off. He doesn't like his hair comb. goes to school he likes going to school and riding the bus. He gets speech ,ot and pt at school. He also doesn't want to drink out of a cup he doesn't to use a spoon or fork when he eats. He likes going outside to play, he loves swings. He also likes watching nick jr. He loves the computers. I wish there were ways to get him to talk more? He has been saying new words. They say kids who have austim will forget the words they used to say. My son said da he doesn't any more. sorry so long, I am sorry for the one mom who's little has austim and thats not nice for a teacher to say that ABOUT your son . thanks
 
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inmyownworld99 responded:
hi i have aspergers and i also have sensory integration i used to not like different textures of cloths food well a lot of different ones .and if i am touched i hate it it hurts me ask me any thing and i will try to help you get help and answers .i am trying to make ppl aware of how we feel and y we act the way we do .
 
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inmyownworld99 responded:
also i might add with sensory integration things really do hurt and even lights hurt me noises and buttons zippers hair pins everything hurts me my mom will try to hugg me and i wont let her so now she just says i love you and high fives me thats what i want also i wear comfortable cloths like sweat pants and sometimes i will wear jeans to please them but it still hurts but i try to be normal like them .they say i am weird at school but im not i am jus different and i see the world as hell because ppl dont understand me my parents do now ..i would let your child wear sweat pants to see if they do better during the day cause when i wear jeans i have a real bad day i get er-rated with everything and have my lashing out .its called overstimulated.
 
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inmyownworld99 responded:
hi i did not talk for a long time my parents used to take pictures of all different things and i would use that to communicate now i talk too much and about everything also i speak Japanese and know how to use sign language
 
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Suemac3000 responded:
My son has these issues as well. He first language is English, but he is learning Japanese and he writes and speaks it with almost more proficiency than his native tongue. He likes the subtly better.

When the exchanges start going, can we reopen the sensory issues? I would like to find more people with adult language skills who can try to explain this to worried parents. I think we can help a lot.

Both my son and I have Asperger's, and I have learned when working with many specialists that it helps if I can translate for my son. I have a degree in Psychology so I know what they are looking for. We need more people to help us explain the way we think and process because others can't imagine it without our help.
 
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joann031980 replied to astinson_2006's response:
I know here in Oregon they have classrooms that you can take your son into where they are more understanding of your sons needs whatever they may be. I think maybe that is something you should look into. If he says something is hurting him whether you think so or not, it may very well be hurting him. This one guy I heard about use to scream every time he got a hair cut. When hr could finally speak he said that he could feel every hair being cut and that it hurt him. I would not push the issue. I would do some research on therapies to work with him on. Spanking him won't help any. All you are doing is feeding in to the tantrum and it will last longer because he knows he is getting your attention this way. I would check out the Son-Rise program for him to help with social skills and what not. When you google it it will also come up with the Autism Treatment Center of America. They offer free scholarships to go out there and learn about there program. It would definitely help with your sons socialization issue as well as the tantrums. It has worked wonder for my 5 year old autistic son. He is as sweet as can be.


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