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PDD/ADHD/Bipolar/Tourettes
Infinitinit08 posted:
My daughter is 6 years old and was diagnosed at the age of 3 with PDD and Tourettes. She has since been diagnosed with ADHD and bipolar disorder. Between the mood swings, the violent outbursts, and temper tantrums, I knew there had to be a way to get help because therapy and behavior modification wasn't working. She has had trouble sleeping for the past 3 years, sleeping from 11pm until about 4am with no naps. She has also had issues with eating and gaining weight. She is very tall for her age, yet barely weighs 40 lbs. Her doctor prescribed Risperdal yesterday and I am praying it works. I am already heartbroken about using medication on her, as I was (and still am) against medicating someone so young, but it seems nothing else has worked and I don't want her life to be ruined becase I didn't take a chance at help. I understand all the side effects some people have experienced and I have done days of research on this medicine. I have decided to give it a try now that I understand and can watch out for the side effects possible. My only fear is it will make her worse, whether by worsening her issues already there, or by causing new ones and having not only her, but her younger brother and sister put through hell for a stupid pill. If anyone out there knows any other medication I may not have found, please let me know, as I am wanting to research anything I can find to help her succeed in life. And anyone who has experience with this medication, please let me know what happened. I am not only worried about the effects now, but for the rest of her life. Thank you all.
13 Replies |Watch This Discussion | Report This| Share this:PDD/ADHD/Bipolar/TourettesMy daughter is 6 years old and was diagnosed at the age of 3 with PDD and Tourettes. She has since been diagnosed with ADHD and bipolar disorder. Between the mood swings, the violent outbursts, and temper tantrums, I knew there had to be a way to get help because therapy and behavior modification wasn't working. She has had trouble sleeping for the past 3 years, sleeping from 11pm until about 4am with no naps. She has also had issues with eating and gaining weight. She is very tall for her age, yet barely weighs 40 lbs. Her doctor prescribed Risperdal yesterday and I am praying it works. I am already heartbroken about using medication on her, as I was (and still am) against medicating someone so young, but it seems nothing else has worked and I don't want her life to be ruined becase I didn't take a chance at help. I understand all the side effects some people have experienced and I have done days of research on this medicine. I have decided to give it a try now that I understand and can watch out for the side effects possible. My only fear is it will make her worse, whether by worsening her issues already there, or by causing new ones and having not only her, but her younger brother and sister put through hell for a stupid pill. If anyone out there knows any other medication I may not have found, please let me know, as I am wanting to research anything I can find to help her succeed in life. And anyone who has experience with this medication, please let me know what happened. I am not only worried about the effects now, but for the rest of her life. Thank you all.
motherofrob responded:
My son is 7 with pdd and adhd we have used meds since he was 5. While I am not all that thrilled with this I am happy that the meds have helped his issues. The reality is that all meds do have side effects and you are wise to do your research in advance. Take comfort in knowing that if you find yr daughter have an adverse recation to the drug you dont have to give her the dose.
Report This| Share this:PDD/ADHD/Bipolar/TourettesMy son is 7 with pdd and adhd we have used meds since he was 5. While I am not all that thrilled with this I am happy that the meds have helped his issues. The reality is that all meds do have side effects and you are wise to do your research in advance. Take comfort in knowing that if you find yr daughter have an adverse recation to the drug you dont have to give her the dose.
momside57 responded:
have a child or is 15 now, who was first treated for adhd and impulsivity. he has autistic like symptoms but due to his amazing socializing never was diagnosed with autism. He has been on abilify, geodon which seemed to of made him more aggressive and more prone to behavior issues. I have had him to many doctors the most recent who put him on seroquel. he has been weaned off of the adhd meds as he regressed tremendously with academics. Now that he is off of the meds he regained what he had lost within a week. it is just amazing to me how a wrong medication can have such an adverse effect. he was recently weaned off of neurontinin and risperdal as his behaviors increased and he would fly into rages, throwing stuff, biting. hopefully this seroquel will work but if there is anyone out there who's child has been on this medication please contact me as i would really like to know how soon after starting this med did you see results. thank you all.
Report This| Share this:PDD/ADHD/Bipolar/Tourettes<i>have a child or is 15 now, who was first treated for adhd and impulsivity. he has autistic like symptoms but due to his amazing socializing never was diagnosed with autism. He has been on abilify, geodon which seemed to of made him more aggressive and more prone to behavior issues. I have had him to many doctors the most recent who put him on seroquel. he has been weaned off of the adhd meds as he regressed tremendously with academics. Now that he is off of the meds he regained what he had lost within a week. it is just amazing to me how a wrong medication can have such an adverse effect. he was recently weaned off of neurontinin and risperdal as his behaviors increased and he would fly into rages, throwing stuff, biting. hopefully this seroquel will work but if there is anyone out there who's child has been on this medication please contact me as i would really like to know how soon after starting this med did you see results. thank you all.</i>
momside57 replied to motherofrob's response:
can i ask you what meds have worked for your son. my son is now 15 and with puberty the meds that worked for him two years ago are no longer working and we are dealing with a child who's aggressive behaviors are increasing and meds are not working. thanks for your help
Report This| Share this:PDD/ADHD/Bipolar/Tourettescan i ask you what meds have worked for your son. my son is now 15 and with puberty the meds that worked for him two years ago are no longer working and we are dealing with a child who's aggressive behaviors are increasing and meds are not working. thanks for your help
Infinitinit08 responded:
Report This| Share this:PDD/ADHD/Bipolar/Tourettes<li>UPDATE I have had my daughter on this medicine for a little over a week now, and I am happy to report the changes, while slight right now, are definately improvements. She is sleeping through the night now and is eating alot better. Her thought pattern has become more logical and her agression has subsided slightly. She has not complained of any side effects other than an upset tummy if she doesn't eat before her meds are taken. But I know this is just the beginning and I will be carefully monitoring her on her progress and any side effects. I will keep you all posted on what we find. Thank you.
Satxmomma replied to Infinitinit08's response:
That's great news! What was the main reason for this particular medication? My 7 y/o stepson has Tourettes, OCD and "severe ADHD" but is not presently medicated. We've been through so many pills but everything turns him into a zombie or he quits eating. I feel like I need to get him something. It's a safety issue as well. He almost ran out into traffic the other day because he was so excited and just takes off. It's almost like he can't see where he's going and can't hear. (Although I know he can because I had his hearing tested.) I understand about putting the siblings 'through hell' as well. The others now suffer because of the physical aggression etc. Because it's summer, the bio mom felt like he could do without his meds and sent him to me. Needless to say, she was mistaken. I took him to the doctor when he was 3 because he wasn't hardly talking. You could ask him his name and he wouldn't even answer. He wouldn't make eye contact either. We then rec'd a referral for aggressive speech therapy 3 x week. That's helped and has now ceased as of last year. He is above average intelligence. I home schooled him before he went to kindergarten because he couldn't recognize the alphabet even though he had a year of preschool and in less than 6 months he was reading at a 3rd grade level. Appparently the lack of eye contact and delayed speech are red flags for autism but he was never diagnosed. He has many other symptoms as well. Even as a toddler, he never held his own bottle or cooed. He is great academically in school but he has a special seat next to the teachers desk because there are so many issues. My husband is anti medication because he doesn't want his personality changed. I understand that but there's got to be a happy medium somewhere. I'm going to make an appt to see if the Risperdal is a viable option for us. Thank you moms for sharing. I don't feel so alone anymore.
Report This| Share this:PDD/ADHD/Bipolar/TourettesThat's great news! What was the main reason for this particular medication? My 7 y/o stepson has Tourettes, OCD and "severe ADHD" but is not presently medicated. We've been through so many pills but everything turns him into a zombie or he quits eating. I feel like I need to get him something. It's a safety issue as well. He almost ran out into traffic the other day because he was so excited and just takes off. It's almost like he can't see where he's going and can't hear. (Although I know he can because I had his hearing tested.) I understand about putting the siblings 'through hell' as well. The others now suffer because of the physical aggression etc. Because it's summer, the bio mom felt like he could do without his meds and sent him to me. Needless to say, she was mistaken. I took him to the doctor when he was 3 because he wasn't hardly talking. You could ask him his name and he wouldn't even answer. He wouldn't make eye contact either. We then rec'd a referral for aggressive speech therapy 3 x week. That's helped and has now ceased as of last year. He is above average intelligence. I home schooled him before he went to kindergarten because he couldn't recognize the alphabet even though he had a year of preschool and in less than 6 months he was reading at a 3rd grade level. Appparently the lack of eye contact and delayed speech are red flags for autism but he was never diagnosed. He has many other symptoms as well. Even as a toddler, he never held his own bottle or cooed. He is great academically in school but he has a special seat next to the teachers desk because there are so many issues. My husband is anti medication because he doesn't want his personality changed. I understand that but there's got to be a happy medium somewhere. I'm going to make an appt to see if the Risperdal is a viable option for us. Thank you moms for sharing. I don't feel so alone anymore.
Infinitinit08 replied to Satxmomma's response:
I put her on this med for a few reasons. One was her bipolar issues and mood/rage swings, which have now all but disappeared. It has improved her appetite and sleep, and she is able to listen a little better without bouncing all around. It's not a major difference, but it's enough on the lowest dosage to make a difference. She is listening a little better, but she is still very hyper. She tells me every day that she believes the medicine is working because she doesn't get so angry all the time anymore. And she loves the fact she can finish her dinner now! I felt so alone until I saw how many support groups there are, yet I still feel alone because my daughter has so many different problems, from Autism, to bipolar, to Tourettes and ADHD...where do we fit? ***I will say the medicine has all but eliminated her vocal and physical ticks unless she's under alot of stress or excitement (from Tourettes) and she is able to come out of her shell a little more with her PDD/Autism because she says her brain isn't so wild.
Report This| Share this:PDD/ADHD/Bipolar/TourettesI put her on this med for a few reasons. One was her bipolar issues and mood/rage swings, which have now all but disappeared. It has improved her appetite and sleep, and she is able to listen a little better without bouncing all around. It's not a major difference, but it's enough on the lowest dosage to make a difference. She is listening a little better, but she is still very hyper. She tells me every day that she believes the medicine is working because she doesn't get so angry all the time anymore. And she loves the fact she can finish her dinner now! I felt so alone until I saw how many support groups there are, yet I still feel alone because my daughter has so many different problems, from Autism, to bipolar, to Tourettes and ADHD...where do we fit? ***I will say the medicine has all but eliminated her vocal and physical ticks unless she's under alot of stress or excitement (from Tourettes) and she is able to come out of her shell a little more with her PDD/Autism because she says her brain isn't so wild.
sluwiggey responded:
I have a brain injury but my sequelae mimic autism, bi-polar, and definitely depression. There are more but I have also been on many anti-psychotics and ant-depressivies. Resperdal worked for a shorter than normal time frame for me. The human body has to adapt in life and sometimes it takes a combination of bad classified drugs to do the trick.
You are doing right by researching and the doctors do all they "know" to do to help. Don't give up your young daughter will adapt in life. If she doesn't you have to let her go and get her help. A way to get help is by going through local state runn organizations. I live in Oklahoma and we have not only a work help program but the police are caring helpfull people also. The hardest part you are going to face is the transition periods. There will be many transition periods throughout her life but they are not detrimental but growing times. Love her through them all and be a good support but do not be a giver but a facilitator instead. Make it so she can succeed and help her find the support networks in society. ie; medicare, medicaid, and schooling support. Have the school develop an individualized program that will not only teach her the basic skills but also the coping mechanisms she needs in life.
Love her and let her know her importance even early in life. This is so important because she needs to know you are her mainstay not a fly-by-nighter. Im on Prozac and it is helping but the transitions between drugs was very tough. Im on a combination of many meds actually and it is not so much in 1 medication as the combinations. You have to relly on your doctor there though not the internet or drug "fact" sheets.
You are doing right by researching and the doctors do all they "know" to do to help. Don't give up your young daughter will adapt in life. If she doesn't you have to let her go and get her help. A way to get help is by going through local state runn organizations. I live in Oklahoma and we have not only a work help program but the police are caring helpfull people also. The hardest part you are going to face is the transition periods. There will be many transition periods throughout her life but they are not detrimental but growing times. Love her through them all and be a good support but do not be a giver but a facilitator instead. Make it so she can succeed and help her find the support networks in society. ie; medicare, medicaid, and schooling support. Have the school develop an individualized program that will not only teach her the basic skills but also the coping mechanisms she needs in life.
Love her and let her know her importance even early in life. This is so important because she needs to know you are her mainstay not a fly-by-nighter. Im on Prozac and it is helping but the transitions between drugs was very tough. Im on a combination of many meds actually and it is not so much in 1 medication as the combinations. You have to relly on your doctor there though not the internet or drug "fact" sheets.
Report This| Share this:PDD/ADHD/Bipolar/TourettesI have a brain injury but my sequelae mimic autism, bi-polar, and definitely depression. There are more but I have also been on many anti-psychotics and ant-depressivies. Resperdal worked for a shorter than normal time frame for me. The human body has to adapt in life and sometimes it takes a combination of bad classified drugs to do the trick.<br /> You are doing right by researching and the doctors do all they "know" to do to help. Don't give up your young daughter will adapt in life. If she doesn't you have to let her go and get her help. A way to get help is by going through local state runn organizations. I live in Oklahoma and we have not only a work help program but the police are caring helpfull people also. The hardest part you are going to face is the transition periods. There will be many transition periods throughout her life but they are not detrimental but growing times. Love her through them all and be a good support but do not be a giver but a facilitator instead. Make it so she can succeed and help her find the support networks in society. ie; medicare, medicaid, and schooling support. Have the school develop an individualized program that will not only teach her the basic skills but also the coping mechanisms she needs in life. <br /> Love her and let her know her importance even early in life. This is so important because she needs to know you are her mainstay not a fly-by-nighter. Im on Prozac and it is helping but the transitions between drugs was very tough. Im on a combination of many meds actually and it is not so much in 1 medication as the combinations. You have to relly on your doctor there though not the internet or drug "fact" sheets.
sluwiggey replied to motherofrob's response:
Never stop doses of this class of medication before discussing it with your doctor! The side effects WILL WORSEN and new ones develop. TALK WITH YOUR DOCTOR BEFORE MAKING A CHANGE!
Report This| Share this:PDD/ADHD/Bipolar/TourettesNever stop doses of this class of medication before discussing it with your doctor! The side effects WILL WORSEN and new ones develop. TALK WITH YOUR DOCTOR BEFORE MAKING A CHANGE!
sluwiggey replied to Infinitinit08's response:
Watch the appetite. Many meds used to treat psychiatric disorders help with apetite in an unhealthy manner. Yes she will eat and gain weight but she will also have trouble stopping the eating. We need to eat to survive not survive to eat. Yes there is a big difference! Teach her portion control and healthy eating habits. Talk to your doctor about a heart healthy diet or even a diabetic diet. She won't have to follow it exact but the guideline will help!
Report This| Share this:PDD/ADHD/Bipolar/TourettesWatch the appetite. Many meds used to treat psychiatric disorders help with apetite in an unhealthy manner. Yes she will eat and gain weight but she will also have trouble stopping the eating. We need to eat to survive not survive to eat. Yes there is a big difference! Teach her portion control and healthy eating habits. Talk to your doctor about a heart healthy diet or even a diabetic diet. She won't have to follow it exact but the guideline will help!
sluwiggey responded:
The answer may not be in one medication but a combination of meds. I display attributes of Bipolar/ADHD/and even autism. My attributes are due a brain injury at sixteen. i have found over the last nineteen years the answer does not lie in one treatment but a combination. The medication helps but without guidance there will be no improvement. Risperdal did not work for me it caused much social anxiety. Right now I am on a combination of meds: Fluoxetine (prozac) , Geodon, Namenda, clonazapam (Klonopin), and Zyprexa. Yes it is a lot to remember but i have the routine down. It took some time to establish a routine but now that I have it I am functioning so much better. I want to meet people and be friendly but the world is cruel. Yes there are still times I just want to "hibernate" in my dark house but that is usually because lack of sleep.
I am seeing a D.O., Psychiatrist, and counseling social worker also. I am thinking positive on myself but it was a slow process and developing the routine was not easy. My family supports me and a lot of that is stepping back and letting me be me. Im 35 years old now and will be a child at heart forever but I know what drives me.
Train up your child in the way she should go and as she ages she will not depart from it. Also know her ways will not be just like you taught her but she will have the tools in her belt you gave her. Be a strong parent and show dicipline coupled with love and guidance. Do not be over bearing this will only hurt her in the long run. She has a life and it can be manageable but it will not be like anyone elses.
Disability just makes the person work harder to acheive a goal in life. It is this way for me because my parents taught me tools as a youth for survival not dependency. They are now letting the apron strings loose somewhat and Im ok even though they are not sure. Your daughter will accell in life if you as her parent lays the ground work at home. Depend on the doctors for assistance use a counselor for guidance and wrap it up yourself in the home.
Best wishes in your endeavors. You will be in my thoughts and prayers. May God bless you and yours richly!
I am seeing a D.O., Psychiatrist, and counseling social worker also. I am thinking positive on myself but it was a slow process and developing the routine was not easy. My family supports me and a lot of that is stepping back and letting me be me. Im 35 years old now and will be a child at heart forever but I know what drives me.
Train up your child in the way she should go and as she ages she will not depart from it. Also know her ways will not be just like you taught her but she will have the tools in her belt you gave her. Be a strong parent and show dicipline coupled with love and guidance. Do not be over bearing this will only hurt her in the long run. She has a life and it can be manageable but it will not be like anyone elses.
Disability just makes the person work harder to acheive a goal in life. It is this way for me because my parents taught me tools as a youth for survival not dependency. They are now letting the apron strings loose somewhat and Im ok even though they are not sure. Your daughter will accell in life if you as her parent lays the ground work at home. Depend on the doctors for assistance use a counselor for guidance and wrap it up yourself in the home.
Best wishes in your endeavors. You will be in my thoughts and prayers. May God bless you and yours richly!
Report This| Share this:PDD/ADHD/Bipolar/TourettesThe answer may not be in one medication but a combination of meds. I display attributes of Bipolar/ADHD/and even autism. My attributes are due a brain injury at sixteen. i have found over the last nineteen years the answer does not lie in one treatment but a combination. The medication helps but without guidance there will be no improvement. Risperdal did not work for me it caused much social anxiety. Right now I am on a combination of meds: Fluoxetine (prozac) , Geodon, Namenda, clonazapam (Klonopin), and Zyprexa. Yes it is a lot to remember but i have the routine down. It took some time to establish a routine but now that I have it I am functioning so much better. I want to meet people and be friendly but the world is cruel. Yes there are still times I just want to "hibernate" in my dark house but that is usually because lack of sleep.<br /> <br />I am seeing a D.O., Psychiatrist, and counseling social worker also. I am thinking positive on myself but it was a slow process and developing the routine was not easy. My family supports me and a lot of that is stepping back and letting me be me. Im 35 years old now and will be a child at heart forever but I know what drives me. <br /> <br />Train up your child in the way she should go and as she ages she will not depart from it. Also know her ways will not be just like you taught her but she will have the tools in her belt you gave her. Be a strong parent and show dicipline coupled with love and guidance. Do not be over bearing this will only hurt her in the long run. She has a life and it can be manageable but it will not be like anyone elses. <br /> <br />Disability just makes the person work harder to acheive a goal in life. It is this way for me because my parents taught me tools as a youth for survival not dependency. They are now letting the apron strings loose somewhat and Im ok even though they are not sure. Your daughter will accell in life if you as her parent lays the ground work at home. Depend on the doctors for assistance use a counselor for guidance and wrap it up yourself in the home. <br /> <br />Best wishes in your endeavors. You will be in my thoughts and prayers. May God bless you and yours richly!
sluwiggey responded:
I gained weight with Risperdal. I gained a lot of weight it made me hungry always. So maybe she will gain weight hope the medication and therapy help her progress in life. Medication is only a means for the tool of therapy. One without the other doesn't work!
Report This| Share this:PDD/ADHD/Bipolar/TourettesI gained weight with Risperdal. I gained a lot of weight it made me hungry always. So maybe she will gain weight hope the medication and therapy help her progress in life. Medication is only a means for the tool of therapy. One without the other doesn't work!
Risperdal did not work for me. I was on it and had terrible hallucinations and a vivid immagination. It quickly spilled over into my life causing BIG delimmas. Serequel zydis had adverse affects with me also. It was not tolerated well in my stomach and the doses had to be increased frequently. I am on Geodon, 5mg serequel regular tabs, and Namenda. Things have really leveled out for me. A lot of it has to do with age and maturation but the meds definitely play their part. I wish you the best and hope the meds work for your child. My impulsivity was enhnaced by the abilify and risperdal. They just hampered my physical ability to act on metal impulses. The mental impulses got very great. Ater time I began acting on them. Guess it just proves Im human. Im not adhd or tourettes but have had signifigant mental challenges since a closed brain injury in 1991. The only thing that has kept me afloat is the support of my family. My step-mom and father have worked very diligently at getting schooled on my condition. They saught out the best physicians and studied the meds. One thing is that doses can not be skipped just because you feel the medication is not giving ultimate results. Psycotropic meds build up in the system and must reach a therapeutic level before progress or detrimental side effects can be diagnosed. This has to be done by the doctors in a closed facility not by parents at home. There is cost but if you want the independence for the child; educate them, get them medical guidance and counseling, check them into a mental facility that specializes in the disorder. PLEASE DO YOUR RESEARCH ON THE FACILITY FIRST. They may just learn more bad habits there instead of improving the self. Be encouraging and supportive of your child first!
Report This| Share this:PDD/ADHD/Bipolar/TourettesRisperdal did not work for me. I was on it and had terrible hallucinations and a vivid immagination. It quickly spilled over into my life causing BIG delimmas. Serequel zydis had adverse affects with me also. It was not tolerated well in my stomach and the doses had to be increased frequently. I am on Geodon, 5mg serequel regular tabs, and Namenda. Things have really leveled out for me. A lot of it has to do with age and maturation but the meds definitely play their part. I wish you the best and hope the meds work for your child. My impulsivity was enhnaced by the abilify and risperdal. They just hampered my physical ability to act on metal impulses. The mental impulses got very great. Ater time I began acting on them. Guess it just proves Im human. Im not adhd or tourettes but have had signifigant mental challenges since a closed brain injury in 1991. The only thing that has kept me afloat is the support of my family. My step-mom and father have worked very diligently at getting schooled on my condition. They saught out the best physicians and studied the meds. One thing is that doses can not be skipped just because you feel the medication is not giving ultimate results. Psycotropic meds build up in the system and must reach a therapeutic level before progress or detrimental side effects can be diagnosed. This has to be done by the doctors in a closed facility not by parents at home. There is cost but if you want the independence for the child; educate them, get them medical guidance and counseling, check them into a mental facility that specializes in the disorder. PLEASE DO YOUR RESEARCH ON THE FACILITY FIRST. They may just learn more bad habits there instead of improving the self. Be encouraging and supportive of your child first!
evefits responded:
my son is adhd,pdd,slight mrdd,and he took risperadol and he had very very very bad angry outburst.drooling couldnt understand him,we are currently trying to still find a med that works .
Report This| Share this:PDD/ADHD/Bipolar/Tourettesmy son is adhd,pdd,slight mrdd,and he took risperadol and he had very very very bad angry outburst.drooling couldnt understand him,we are currently trying to still find a med that works .
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