Autism Support Community
Whether you have received the diagnosis or in pursuit of one, get support and ... more
Asperger's and Social Security Disability
Lauree_Parent posted:
Hi,
I am brand new to this support community and wanted to ask a couple of questions. But first: My son, who is 26, was just diagnosed with Aspberger's Syndrome last year (2012). He was diagnosed with ADHD when he was 9 but the Asperger's was not picked up. He has most of the symptoms of Aspergr's such as; keeping to himself, doesn't want to make friends, gets anxious when around anyone other than parents and brother, hasn't been able to get a job. He does not hold eye contact. Has trouble talking with people (delayed speech ie; trying to form in his mind what to say), has short and long term memory loss (prefers to have parent go with him to any appointments), anxiety and depression, and ADHD. Due to the fact that he cannot handle his own care or finances, we became his legal guardians early this year. He lives with us at home and we handle all his affairs.
He just got Social Security Disability, but we have asked for a review due to the fact that he has had it since birth and we want to go through my husband's Soc. Sec. We sent in a request for it and it was denied due to the fact that there was "insuficient evidence". We had contacted his childhood doctors, phycologist, and schools for information, but they no longer have those records.
So, my question is: How do we prove that he was born with the disability and that if he had the correct support during his childhood, he may have been able to cope with his Asperger's Syndrome as an adult. We have until the end of February (2013) to file our disagreement.
Thanks for reading my lengthy post. I would appreciate any advice.
I am brand new to this support community and wanted to ask a couple of questions. But first: My son, who is 26, was just diagnosed with Aspberger's Syndrome last year (2012). He was diagnosed with ADHD when he was 9 but the Asperger's was not picked up. He has most of the symptoms of Aspergr's such as; keeping to himself, doesn't want to make friends, gets anxious when around anyone other than parents and brother, hasn't been able to get a job. He does not hold eye contact. Has trouble talking with people (delayed speech ie; trying to form in his mind what to say), has short and long term memory loss (prefers to have parent go with him to any appointments), anxiety and depression, and ADHD. Due to the fact that he cannot handle his own care or finances, we became his legal guardians early this year. He lives with us at home and we handle all his affairs.
He just got Social Security Disability, but we have asked for a review due to the fact that he has had it since birth and we want to go through my husband's Soc. Sec. We sent in a request for it and it was denied due to the fact that there was "insuficient evidence". We had contacted his childhood doctors, phycologist, and schools for information, but they no longer have those records.
So, my question is: How do we prove that he was born with the disability and that if he had the correct support during his childhood, he may have been able to cope with his Asperger's Syndrome as an adult. We have until the end of February (2013) to file our disagreement.
Thanks for reading my lengthy post. I would appreciate any advice.
2 Replies |Watch This Discussion | Report This| Share this:Asperger's and Social Security DisabilityHi,<br /><br />I am brand new to this support community and wanted to ask a couple of questions. But first: My son, who is 26, was just diagnosed with Aspberger's Syndrome last year (2012). He was diagnosed with ADHD when he was 9 but the Asperger's was not picked up. He has most of the symptoms of Aspergr's such as; keeping to himself, doesn't <u>want</u> to make friends, gets anxious when around anyone other than parents and brother, hasn't been able to get a job. He does not hold eye contact. Has trouble talking with people (delayed speech ie; trying to form in his mind what to say), has short and long term memory loss (prefers to have parent go with him to any appointments), anxiety and depression, and ADHD. Due to the fact that he cannot handle his own care or finances, we became his legal guardians early this year. He lives with us at home and we handle all his affairs. <br /><br />He just got Social Security Disability, but we have asked for a review due to the fact that he has had it <u><i>since birth</i></u> and we want to go through my husband's Soc. Sec. We sent in a request for it and it was denied due to the fact that there was "insuficient evidence". We had contacted his childhood doctors, phycologist, and schools for information, but they no longer have those records. <br /><br />So, my question is: How do we prove that he was born with the disability and that if he had the correct support during his childhood, he may have been able to cope with his Asperger's Syndrome as an adult. We have until the end of February (2013) to file our disagreement. <br /><br />Thanks for reading my lengthy post. I would appreciate any advice.
cameografx responded:
hi Lauree,
my son, now 22, was diagnosed with high functioning Aspbergers during his last year of high school. He displayed all the same symptoms as your son, but with out the ADHD diagnosis. I was extremely upset that we did not get this diagnosis when he was younger as we would have been able to better understand the reason for his 'social awkwardness' and we might have been able to help him live a happier childhood.
I hope you get the help you seek and I will be checking back to see if you post any updates. Good luck.
my son, now 22, was diagnosed with high functioning Aspbergers during his last year of high school. He displayed all the same symptoms as your son, but with out the ADHD diagnosis. I was extremely upset that we did not get this diagnosis when he was younger as we would have been able to better understand the reason for his 'social awkwardness' and we might have been able to help him live a happier childhood.
I hope you get the help you seek and I will be checking back to see if you post any updates. Good luck.
Report This| Share this:Asperger's and Social Security Disabilityhi Lauree,<br />my son, now 22, was diagnosed with high functioning Aspbergers during his last year of high school. He displayed all the same symptoms as your son, but with out the ADHD diagnosis. I was extremely upset that we did not get this diagnosis when he was younger as we would have been able to better understand the reason for his 'social awkwardness' and we might have been able to help him live a happier childhood. <br />I hope you get the help you seek and I will be checking back to see if you post any updates. Good luck.
Lauree_Parent replied to cameografx's response:
Hi cameografx,
Thanks for responding to my post. It does seem like our sons have similar issues. We've sent in our Soc.Sec.Dis. appeal and now we play the waiting game again! My son tried college after high school, but school was always a hassle for him and he hated being around people, so it didn't last. He never told us what he was going through until this past year. I feel awful that he's held it in so long. We just thought it was ADD.
Is your son working? My son has only had two part time jobs (both of which were very short) since graduating high school. He is not working right now. After the appeal is finalized, he wants to go to our town's voc. rehab. to get help finding something that will fit him. Is your son on disability when he was a child, or is he now?
Take care....Lauree
Thanks for responding to my post. It does seem like our sons have similar issues. We've sent in our Soc.Sec.Dis. appeal and now we play the waiting game again! My son tried college after high school, but school was always a hassle for him and he hated being around people, so it didn't last. He never told us what he was going through until this past year. I feel awful that he's held it in so long. We just thought it was ADD.
Is your son working? My son has only had two part time jobs (both of which were very short) since graduating high school. He is not working right now. After the appeal is finalized, he wants to go to our town's voc. rehab. to get help finding something that will fit him. Is your son on disability when he was a child, or is he now?
Take care....Lauree
Report This| Share this:Asperger's and Social Security DisabilityHi cameografx,<br />Thanks for responding to my post. It does seem like our sons have similar issues. We've sent in our Soc.Sec.Dis. appeal and now we play the waiting game again! My son tried college after high school, but school was always a hassle for him and he hated being around people, so it didn't last. He never told us what he was going through until this past year. I feel awful that he's held it in so long. We just thought it was ADD.<br />Is your son working? My son has only had two part time jobs (both of which were<u> very</u> short) since graduating high school. He is not working right now. After the appeal is finalized, he wants to go to our town's voc. rehab. to get help finding something that will <b>fit</b> him. Is your son on disability when he was a child, or is he now? <br />Take care....Lauree
Spotlight: Member Stories
I am a full time mom of four and a part time pediatric dietitian at a local health department. I love my children - they are all awesome people. My ol...More
Helpful Tips
ipods for autism
I am an autism specific teacher and this year have made huge language strides using ipods. Check out this video about my students. ... More
Was this Helpful?
9
of
15 found this helpful
- It's not a race. Pace yourself.
- Advice for my Autistic 3 year old
- Story about a little boy that made me cry!
Helpful Resources
Related News
Report Problems to the
Food and Drug Administration
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.
Other Member Communities
- Dieting Club: 10 - 25 Lbs Member Community Share Your Tips and Support!
- Caregiving Member Community The Support and Understanding You Need!
- Parenting Friends Talking Member Community Get Support from Members Like You!
-
More Related Communities
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.
Health Solutions From Our Sponsors
About WebMD Advertise With Us Terms of Use Privacy Policy Sponsor Policy Site Map Careers Contact Us
First Aid WebMD Magazine WebMD Health Record WebMD Mobile Newsletters Dictionary Physician Directory
©2005-2013 WebMD, LLC. All rights reserved.
WebMD does not provide medical advice, diagnosis or treatment. See additional information.