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Coccyx/Sacral Pain
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Paradoxed posted:
Hey all..never posted on here before..but looking for someone with a similar situation as me.

I broke my tailbone/dislocated my sacrum approx. 7 years ago. I then re-bruised it a second time approx. 3 years ago. I have been in pain ever since it all started. It is hard to sit for long periods of time, stand for long periods of time, sometimes hard to transition from sitting/laying to standing, walking a long distance hurts, all that jazz. And recently having a hard time passing bowel movements...

I have been through physical therapy, chiropractor, topical steroids (the only thing that has worked a little so far) etc. I have not had steroid injections yet, but I am getting to the point that maybe I think it would be the best bet. I also wonder if they have helped anyone...or if I should stay away from em? Also--getting your tailbone removed...is this even possible for it to work in my situation saying that its not just my tailbone--but also my sacrum.

I am just out of options and so tired of being in pain for such a long time--especially at such a young age. Any ideas or thoughts would be wonderful. Even just knowing I'm not the only one out there would be nice.
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bj1208 responded:
hi paradoxed - welcome to the support group -

I do have a friend here on webmd that has similar problems -

I will contact her to have her post a reply as she does not get on very much.

take care - Joy~~
 
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charl1942 responded:
Hi Paradoxed,
BJ1208 did notifiy me of your post, fortuntantly, as I seldom come on line because of the extreme pain I have while sitting. Sorry to talk about myself, but it is the best way to explain the situation for comparison.
I have had several falls, several directly onto my butt. The last one almost three years ago. I fell on a an icy step and landed somewhere around the hip and tailbone area. The severe pain did not start immediately, but grew progressively worse.Six to nine months later I started very active treatment with an ortho spine specialist several miles from my home. He had several tests run, and though I continued to tell him I felt like a pipe in my rectum and he once injected steroids in my tailbone area, he did nothing else. Of course the treatment didn't help and I jumped from doc to doc seeking treatment. I have finally found a pain management doc who said she would work with me on the problem as well as the pudental neualgia I found I have which contributes to the sitting pain.
So far my new pain mgmt doc has injected the front part of the tailbone and the rear portion to try and tell which area caused the most pain. Neither injection worked for pain. The last procedure was called a pulsed radiofrequency.(or as she said she zapped the tailbone). She said this procedure was two fold. One, to hopefully help with the pain, and the other to isolate the nerves leading to the tailbone. Thursday the 30th of this month is the time limit she gave for relief. No help so far.Eventually if nothing else helps she will burn the nerves to the tailbone. This will come when nothing else helps and she is sure of the nerves she needs to burn. I am fully ready.
Is your tailbone completly severed from the sacrum? Mine is.
Please find a Pain doc by referral or by phone who is willing and and knowledgeable to fulfill the duties to finally get the help you need. I have met another lady who is going to the 29th doc for help. The same doc as mine. She travels 2 1/2 hours to see her and the first who has worked with her to help. Doc shared our names and phone numbers for us to support each other and that is what we have done!!!!
I understand removal of the tailbone is almost never done. Apparently there are so many layers of tissue to get to the area that the problems it would incur with surgery it is not worth it.
This can cause problems with bowel movements.
I would STOP the chrioprator, and all therapy except with a therapist who only does pelvic floor therapy. This type of therapy is only done by ones trained in that field beyond a P.T. basic.
I am not sure if that helps, but I am open to answering any questions you might further have. I will check back with you soon.
 
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Paradoxed replied to charl1942's response:
Hey Glad to hear back from someone!

My full story:

When I was approx. 12 years old--I had a slip and fall in approx. 1/2 an inch of water and some algae. Then a 7 hour drive home. I did not go to the ER, but had my neighbor (who is a doctor) come over. He said "Yup you broke it". (NOT completely severed from the sacrum) I could not bend over, transition sitting to standing, etc. I sat in a homemade doughnut seat for approx. a year. The second time I did it was ice skating. Both falls were direct onto my tailbone and sacrum. The second time I went to the ER and they took x-rays. They could see where I broke it the first time and said I just severely bruised it the second time. So I had to go through everything again.

I started seeing a specialist on tailbone pain. He tried doing everything external that he could..and pretty much gave up and sent me to a pelvic floor physical therapist. I saw her for about 3 months. The only thing that would help was iontophoresis (where they "push" topical steroids into the localized spot). She would do all her fancy stuff (internal and external adjustments)..tell me to stretch, kegels, etc. Then my insurance ran out for the year. So I have not been seeing her for about 1 1/2 months..but still doing all my exercises. It feels worse.

Cleaning, doing the dishes hurts, carrying groceries, and vacuuming (etc.) all hurt.


I am just at a loss of what to do from here. Any ideas?

This is my xray from 2008.
http://i113.photobucket.com/albums/n213/amylee13_2006/TailboneXray.jpg
 
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charl1942 replied to Paradoxed's response:
I am not good at reading xrays, but the coccyx and sacrum don't look straight to me.

Other than telling you what I already did about the procedures I am going through that is about all I can say. I wish I knew more myself, I would do them and let you know. My heavens I have lived with this particular pain for almost three years.

I still suggest you go to a pain mgmt doc and get help there. You must be sure he/she is willing to work with you to get to the bottom of this problem. As I told you earlier my friend has gone through about 30 docs to find someone, and I have gone through many. Both of us are convinced if there is an answer we have found help with her. It is a wait and see thing. Less invasive things are done first, then on and on. (I don't know how to advise on getting the right doc except to call the office and ask whether the doc does a lot of help with that sort of thing or ask a doc or referral).

I am going to a pelvic floor specialist now to strengten my pelvic floor muscles which is good and trying to do the kegels, etc.

I hurt when doing things also when I am not. It has been a struggle to feel left out as life passes me by.

When I speak to the lady I told you about again, I will ask her whether she has any advise as to getting the doc to help. I will be sure to let you know if and when I find out for you. Does this help?
 
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charl1942 replied to charl1942's response:
I forgot to tell you you can onto the internet if you haven't already, and goohle something like "pain in the coccyx". A list of topics should appear showing different aticles to choose from to read avout procedures and results. I was just reading them again tonight. I think those will give you osme more hlep. I certainly have gained some insite there. I hope this helps. Please let me know.
 
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Paradoxed replied to charl1942's response:
Thank you so much! All of this has helped. Tomorrow I am going to call my spine doctor and talk to him about the options. See what he thinks. And for now I am going to google "pain in the coccyx".

I guess I am just getting so fed up cause I am only 20 and in so much pain. I have done all the basic things- I was on vicodin for a while and I am now on tramadol for the pain..I have been through the PT, chrio, exercises, doughnut, etc. So now I am getting to the point of the more invasive measures. Kinda sucks, but ya know if they help--all the better.
 
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charl1942 replied to Paradoxed's response:
Please let me know what you found and what you think. What did the ortho say? Keep trying until you get help....

I was writing the last response in the dark. Sorry about the typos
 
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Paradoxed replied to charl1942's response:
I am seeing my spine doctor today at 2:30! I will let you know what happens!!

And its fine about the typos
 
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Paradoxed replied to Paradoxed's response:
I will let you know how it went tomorrow I am in no mood today. I came home in tears and will be trying a different doctor at Henry Ford Hospital....
 
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Paradoxed replied to Paradoxed's response:
So..I went to my doctor and he told me that it was all in my tissues and in my muscles and not at all in my bone. So he told me that all I need is more pain medications. (Keep in mind I already take too many medications in one night.) He told me that steroid injections would never help me. And that nothing else would help me.

So I am going to get a referral to go to the Henry Ford Hospital and see an Orthopedic Surgeon (that was mentioned on www.coccyx.org) and see what he has to say.

I feel like the pain is in the muscles, tissues, AND bone. If you look at my x-rays you can tell that my spine is not normal. So we will see how it all goes.

I will be getting a referral from my primary care doctor on January 5th hopefully. So there will probably not be any new news until then.

 
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charl1942 replied to Paradoxed's response:
When you have had all the tests and exams, and if you are satisfied you will need further treatment your ortho might tell you to go to pain mgmt. If he has nothing to offer you I would ask him about the pain mgmt way. They are physicians and will be able to prescribe medication you will need and more.
This is just what experience has taught me.

When you do come back to the site to give us further information, please start a new post.


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