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Severe Mid Back Pain when I wake up. I wake up screaming PLease Help.
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rizzorr posted:
About a year ago I woke up one day and realized it was hard for me to get out of bed. I had this pain in my MID back. It only hurt when I moved. I forced myself up and out and then eventually I walked it off. As the weeks went on it progressively got worse. It only occurs when I wake up in the morning. It got to the point I felt paralyze when I got up. If I moved one inch I would scream in pain. I would have to crawl to the wall so I could slowly crawl up the wall to get on my feet and then walk in circles still hunched over and crying. I know this is the only way to make it go away is to walk it off. The natural instinct that I have is that this is neurological. I don't know. Also as time went on I started to have multiple problems with my entire body numbing with pain. It started in my hands and now both arms and legs. It is very painful. Just like my back if I lean on any of these parts its falls asleep. Some mornings I could not close my hands for 20 minutes. Are they related?
Regarding my back, I have asked a Chiroprtor, 2 different Internal Medicine Physicians and a Neurologist about this. None of them can give me an answer that actually helps. The Chrio said if I allow him to regularly crack my body that should help. The 1st Internal med Doc told me to take Advil before I go to bed. The second Internist sent me for an X-ray of my lower back, which came back fine. I had to BEG my primary 9the 2nd Internist) to send me to the neurologist for the numbing problem I have with my hands and legs. The neurologist ordered 3 tests MRI of my brain which already came back good and then I still have to take an EEG and an EMG. I thought he would order an MRI of my back as well. He told me my back problem was unrelated to the reason I was there to see him, which I do not believe.
I'm so tired of doctors ordering test and givig diagnosies base on what is best foe there billing system. I am purely suffering. My fingers are numb just typing this.
Narcotic Pain Meds are NOT an option. I have been on Suboxone and Vyvanse for over a year now. (Id did much research to make sure the meds were not causing this)
Does anyone know what this is? Is the back related to the numbing? Is there a better another kind of doctor I can see for my back?
I don't have a lot of options. I am on Medicaid which I have never had more than 3 months that is what they do. I am so happy to be able to see a doctor while I can. Please help.
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bj1208 responded:
hi rizzorr and welcome to the support group -

what I would suggest is that you stop going to the chiropractor until you can get a full diagnosis of what is going on-

you need to see either an Orthopedic Spine Specialist or a Neurosurgeon Spine Specialist. An MRI and/or CT Scan needs to be done as it does appear you have something goin on with your back. Seeing these specialists does not mean you need surgery but they are the best at reading the results. Once they do that they can let you know what the best treatment options there are. X-ray's do not show everything that is goin on with your back so it is imperative that you have either the MRI or CT Scan done. It does sound as though you may have a disc or something that is pressing on a nerve root causing the numbness.

Since you are on Medicaid you may need to get a referral to the spine specialist - so the sooner you do this you will know what is going on-

please let us know what you find out - take care - ^ Joy ^
 
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Lelesays responded:
I think the suboxone might have something to do with it. I've been experiencing the same symptoms and I also take suboxone. It started with the abnormally numb hands and arms. I was taking suboxone for a few months before the symptoms began. They would get super numb while I was sleeping.sometimes when I awoke, I could barely move my numb arm(s). I still take suboxone and haven't experienced the numb hands/arms for a while now, so it seems to have stopped. I am now having a huge issue with my back. It's my mid back. Sometimes the pain actually wakes me up in the night. I can hardly move when my back is hurting, it really is paralyzing. If any pressure is applied to my stomach (while I'm laying down on back & experiencing the pain) its excruciating. I have to roll on my side to sit up, as it's so painful I can't just sit up. It does go away once I move around. I experience this back pain about 40% of the time when I wake up, so it's not every day. I've tried sleeping on different mattresses and that seems to have no effect. Another issue I've encountered recently is severe night sweats. Some mornings I wake up drenched in sweat. It literally feels like I jumped in a pool with my tshirt on, then climbed back into bed(I don't own a pool, so I'm not sleep swimming). I'm not sure if this is a side effect of medication or not. I do think that suboxone may be behind some of our common issues.
 
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TamParenteau responded:
rizzorr

I literally feel your pain, and I mean it. Every morning I wake up and I try to even move my legs I scream in PAIN. I have to wiggle as much as I can with the pain to the side of the bed just so I can get my right leg down and then try to push myself up slowly as I can without having to much pain. I to have to walk off the pain, it generally last for about 15/30 minutes also before I can do any type of bending or think about even lifting my legs to get into the shower, but after the pain has gone I could do cartwheels or even jumping jacks, sometimes through the day you would NOT know I wake up in such pain. I describe the pain as feeling like I melted to cement and Im trying to peel myself off, its very scary. I also feel a numbness through my entire body my hands are swollen etc, just recently though and recently my elbows and knees and ankles have also felt this, even in the afternoon of taking a small nap. I fear of sleeping knowing I will wake up in such pain in the morning, but I have to sleep. I to am on suboxone and NO its NOT related to the pain, I have talked with my doctor and he gave me excersises to do before bed, I have tried some and it does not work at all. He also thinks Im making this up since he has never heard of such pain, Im tired of doctors NOT wanting to find out what is causing the pain. If Im not in pain IM not going to say anything, but if I am please find it and the reason, its NOT fun. Im afraid it is the onset of arthritits I am 40 years old and have been dealing with this for about a year and a half. So here is one person that knows exactly what you are going through, please if you have found help and an answer please respond. Good luck and god bless
 
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An_247375 replied to Lelesays's response:
Lelesays:

I to take suboxone and its Not related to the pain, I would like to say it does, so that once Im off the pain will be gone and I could wake up in the morning and jump out of bed like a jack rabbit and start my day, I experience the same as rizzorr its aweful, I have heard of others with the same thing and they are NOT on suboxone, I have not been able to seek the right doctor to help since my doctor thinks I'm making up this pain, Im sorry this pain NO one would even want to make up its so aweful. It has been going on with me for about a year and a half and the last couple months its getting worse, with swelling and pain most of the mornings. I have to have my husbands help to get out of bed and its at a snails pace so I don't scream as much, today in fact was one of my worse days, that is why Im here on WebMd to see what the flippen problem might be, and as I said earlier Im afraid its either kidney related or arthritis setting in the joints. hope you find your diagnosis and will come back when I have received a legitamate answer to this mystery pain.,
 
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bj1208 replied to An_247375's response:
hi and welcome to the support group -

yes we all feel your pains and it's horrible that some doctors believe we are making it up. I wish just for one day these doctors could feel the pains we suffer from then maybe they will ease up!!

when I sleep at night I sleep with a pillow between my knees when sleeping on my side (can only sleep on left side) and under my knees when sleeping on my back. Even at that I can only sleep a max of 4 hours - if I sleep more than that I wake crying and screaming because of the pains and my husband has to help me out of bed and very slowly - I can remember one morning it took almost an hour to do this.

I have been diagnosed with bad facet joints (L5-T9), bad piriformis muscles (runs across the upper buttocks and covers sciatic nerves), nerve damage in both legs (left is worse and wear brace) plus my hardware (fusion L5-S1) site is sore to touch skin all the way to the hardware so there are lots of issues as to where my pains are and how bad htey are etc.

I see a PHYSIATRIST Pain Management doctor. he is great and makes sure that I have either a MRI or CT Scan done each year now as we're seeing the domino effect now in my entire spine.

http://www.spineuniverse.com/treatments/what-physiatrist

my pain doc is really great, listens to my problems and treats them. He has a set of spine specialist (both Orthopedic and Neurosurgeon Spine Specialist).

hope this helps a little - keep us posted what you find out - take care -Joy
 
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witchyone responded:
hi i suffer from thus condition as i lie here writing this i am fixed in pain i have been in this episode since i woke at 9 this morning unable to move at all. my condition so i am to by various doctors is down to several things i have 4 prolapsed dics which really need fusing but my vertibra are too thin for this to happen secondly i have arthritis in several layers of my spine and thirdly they say because of this i now have a condition called fybramyalgia which cause my muscles to be very painful. i am on a lot of medication to try and give me some sort of normality as i am only44 i have had this since i 38, last night i was ill i had a migrain so i tried to sleep early as a result i didnt have my night time meds now i cant move i keep oramorph by my bed to help with mornings but this has done nothing today . i am telling you all this so hopefully you will be able to get your problem sorted out and not end up taking lots of drugs that just mask the problems and make them worse. hopefully my daughter will be here soon and help me up looks like i will be in my wheelchair today what jo
 
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Menza responded:
This is really weird.. I have the exact same symptoms! I originally searched for middle back pain when waking up and came to this thread. I have the same pain, the same hand numbness, the same increased pain after sleeping longer than 6 hours, the same ease of pain after being awake for some time, and I am on Suboxone.. There has to be some connection here! We bought a new expensive firm mattress, which seems top make it worse. SometAny imes its my lower back, sometimes my mid back. I feel like if I have a full colon before going to sleep, or haven't removed my bowels for a couple of days, it's ten times worse. I could never think about laying on my stomach anymore, and that used to be my favorite position. I'm 30 years old, and I feel like I'm 70 with these pains I wake up with.

I think it's more than as coincidence that we are all on subs, and this is happening to all of us. Especially since I didn't even search for suboxone, or ever think that there could be a connection. I must admit, I'm somewhat relieved seeing others with the same exact problems as myself. Do you folks take any sub right before bed? I do, and I'm wondering if thats part of the problem. I have no doubt that that is one of the causes.

Any additional insight from anyone would be greatly appreciated!
 
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questgraves responded:
Rizzorr and community,
I know this thread is a little old but I wanted to add my experience as well. You could not have described my problem more completely and precisely than If I told it myself. I wake up and cannot move or breathe, paralyzed by the most excruciating pain I have experienced in life save for a kidney stone some 8 years ago. This is not intermittent, it happens every day to some degree, usually dependent on how long I sleep. It is like my spine fuses together overnight. I have read people's responses and their is no doubt that many of us are experiencing the same issue. The one commonality is Suboxone. I do not take it, BUT, I take Methadone and have heard of people on both drugs complain of the same problem. I just wanted to check in an unrelated forum to see if my pain was the same as described by others who take Methadone. It is also a synthetic opioid. I searched this morning as today was one of the worst episodes i have had in weeks because I also hurt my lower back at work so I woke with a "double whammy" in tears like a baby and I am decently built 34 yr old man, rough life and covered in tattoos I have broken 16 bones in my life so I know pain. This is something else and gives a whole new meaning to pain. If a doctor experienced this they would think they were dying, and every test in the hospital would be done.
I think the common ground is synthetic opioid, maybe even any opiate like drug. That gives me hope that after I am done tapering off of this medicine, it will go away. If anyone has stopped suboxone and this still persists please post.
 
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Lorenzo84 replied to questgraves's response:
Hi everyone

I have the exact same symptoms! Though I wouldn't say my hands are numb just very very stiff after sleeping. If I even sit down for ten mins or more I become 'stiff' in my legs and everywhere. Today was my once chance of a lay in for ages and I have woken up at 6am screaming with back pain. It is around bra level. I know full well that although I am still in agony now, by the time I have to go to work (as a waitress in a very busy restaurant) at 5pm I will be absolutely fine!! The doctor has told me I should do a bit more exercise and go swimming!! I have no drugs whatsoever!!! God forbid if I cough or sneeze it actually kills me. I am so sick of being 29 and feeling like an 80 year old Everytime I wake up!! If the doctor thinks this is normal then who will help me?? ((
 
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bj1208 replied to Lorenzo84's response:
Hi Lorenzo84 - welcome to the support group -

I have the same - if I sleep on my back I wake up screaming and crying as the pain is horrible.

it sounds as though you have seen just your primary doc? what you need to do is see a spine specialist - either a Orthopedic Spine Specialist or Neurologist Spine Specialist as they can order tests (MRI, CT Scan etc) to see what's going on - they are the only ones that can read the film reports of the spine and give you a diagnosis. they can also offer treatment options too. surgery won't be offered unless all treatment options have been tried.

In the meantime, it would be best to not sleep on your back. sleep on your side(s) with extra pillow between your knees to help keep the spine more straight. also if you do sleep on your back put more pillows under your knees and more pillows to prop your back up - kinda like sitting in a recliner.

hope this helps - keep us posted what you find out~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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jimbo2013 replied to bj1208's response:
I could not have described my back pain any better. The only meds I take is lisinopril for BPressure, simvastatin for cholesterol, and cholchicine for gout. I can say my family has a history of rheumaoid arthritis and degenerative disc disease. I am 45 years old and have been a gym rat since I was 15. I am in very good shape physically (externally). I am headed to the doctors in december in hopes of finding some answers and will surly post them here. I feel your pain. I wake up every morning like my spine is fused together and if I move, I experience horrible pain. I have to wiggle around until I can warm up enough to crawl out of bed. However, when I take a hot shower, Im 90% better. Has anyone tried sleeping on heat? Im thinking this is some sort of arthritic condition simply because it runs in my family. I will post when I return from the doctors office. Prayers are with all of you. If anyone has figured this out, please email me and let me know. jimbobailey2012@gmail.com
 
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bj1208 replied to jimbo2013's response:
Hi Jimbo2013 - welcome to the support group -

normally we do not post to emails unless there are certain private matters one member may have questions to another -

The only thing I can tell you is this has to do with a number of items being: arthritis, fusion, gout may play part as that is on my father's side, damaged nerves etc.

It would be beneficial that you see a spine specialist - either a Orthopedic or Neurosurgeon Spine Specialist as they are the only ones that can read film reports (MRI, CT Scan, X-rays) of the spine.

Please let us know what type of doctor you will be seeing and also what they find out~~

I may not be on much in December as I will be having a 2nd fusion done Dec 4th.
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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monaovalle replied to questgraves's response:
I suffer the exact same symptoms everyone is describing. ...Please STOP BLAMING OPIODS OR ANY OTHER DRUG. I've never been on any of these drugs untik recently and I suffer this pain every morning. And lately without vicodin I would not be able to function. I just don't want people being misled by thinking its certain drugs causing this and not allowing a proper diagnos. Good luck all all this weekend I've had to take pain meds at least twice a day. ...uuugh! I've got sinw appointments for various testing coming up, I'll keep posting.
 
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coconutheaven replied to Lorenzo84's response:
Hi Lorenzo84,

I just read your post and can totally relate (I'm 29 too!). It's 4am here and I had to get out of bed due to the pain. I am getting increasingly scared and frustrated. Although it does seem to fluctuate on certain days, it is always there to some degree. This morning was horrible and my whole back felt like it was cramping.

It started about 5 months ago when I purchased a new mattress. My old one was sagging and I believed it was causing lower back pain. With the new mattress, I may have gotten one too firm, but my mid-upper back started to hurt and I could only stay in bed for 5 hours max and then had to get up and walk around.

Since then I have gone through 2 more beds and added a memory foam topper and gone through numerous pillows. The changes seem to help the first 1 or 2 nights, but then it is back to the full blown pain or even worse than before.

Now it can radiate to different parts below my upper-mid back and I find it is worse on the right hand side. In max 2 hrs after I wake up it is fine and I only have back pain during the day if sitting for a long time with bad posture or I am on my feet with bad shoes for too long.

I am freaking out because I have been seeing a really good chiro for the past few months and if anything it seems to be getting worse and he doesn't seem to know what the issue is. If I am seeing my family doctor on Friday to request a test for arthritis. The chiro did mention it could be autoimmune related (I already have 1 diagnosed autoimmune condition). But it is seriously strange to me that is started with a new mattress, yet no one believes it could be the case that I am sleeping on an incorrect mattress for what my spine needs. I don't even know what I believe anymore!

I feel everyone's pain here. It is AWFUL!!


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