Just saying hello, and asking a question or two.....
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4freedom posted:
I'm usually on the fibro forum, or pain forum...I put this on the pain forum yesterday but got to thinking this was probably a better place.

I had my last MRI's done, cervicle, lumbar, and thoracic this past Sept. The doc's that sent me for it were my ID doc and my GI. had to do with pain of coarse, some in other areas. But Sciatica was/is bad.

Anyway to keep it short, when I went back to GI to go over results from everything he had for me. He said the spine was not his specialty but wants me to see a NeuroSurgeon. Then said kind of jokingly that we kind of wondered how your walking around, and I kind of jokingly said the pain medications are the only thing holding me together.

I went to my family doc that was supposed to have set up the appt with NS, and he told me no need to see surgeon your not a candidate for surgery or injections., now due to low platelet count.... He said just let pain mngt. keep treating you with meds long as possible and he briefly looked over my papers and never got any results from him.....so pretty much same thing when I got to pain doc. They glanced over them, kept them in my file, and told me hit or miss on a few things faster than I could remember them.

So what I am getting to is there somewhere that you can go online that breaks things down to where I could understand what all my MRI's mean ?
Should I just try to use a medical dictionary ??

Thanks for your time ~ lyn
Reply
 
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bj1208 responded:
hi and welcome to the support group -

I have a hard time understanding why your GI would make a statement like that - only a surgeon can determine if you are a candidate for surgery - no one else -

I would get a referral from pain management to see either an Orthopedic Spine Specialist or a Neurosurgeon Spine Specialist - I prefer OSS as they tend to be more down to earth and will explain everything -

also, regarding pain management - be sure that you are seeing a clinic that practices PHYSIATRIST - see link -

http://www.spineuniverse.com/treatments/what-physiatrist

they go deeper into pain management than regular clinics - and treat a variety of pain issues -

so don't take no for an answer - get the referrals - if u can't get them talk to your insurance and see if u really need it - if not then look up ones in ur area and make the appointments yourself -

here are a couple of links that outline terminology of MRI's and CT Scans - hopefully this will help -

http://www.chirogeek.com/

http://www.spineuniverse.com/

http://www.adriaanliebenberg.co.za/tests/terminology-for-ct-scans-and-mri-scans-lumbar-region.html

http://www.portlandneurosurgeons.net/education.stryker_spine.brochures.sciatica.1.php

these are very good sites and should help you -

let us know if we can help u more - and please keep us posted as to what's going on - take care - Joy
 
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4freedom replied to bj1208's response:
Thank you for your reply, and the links you provided...looks like I should have read here a bit more before I posted.

I may be hanging around here and see what all I can learn ~lyn
 
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bj1208 replied to 4freedom's response:
no problem~~ we love having new members - so stick around - it's a wonderful support group - just talking, venting or asking questions - we're here~~

take care - hugs - Joy
 
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charl1942 replied to bj1208's response:
Joy I think Lyn was talking about the family doctor saying she was not a candidate for surgery, not the GI doctor. The family doctor said she was not a candidate for surgery or injections because of her low blood count. The family doctor then said she should continue to see the pain mgmt doc and let him treat her with pain meds as long as possible.

Otherwise I agree with you, a spine specialist is the only one to make a decision on the need for surgery.

Thanks for posting the websites above. You did have to go to a lot of trouble looking them all up.
 
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4freedom replied to charl1942's response:
I'm sorry my mess is so confusing, it's confusing to me also.

I think you pretty much summed it up....only thing all my drs agree on is I'm not a candidate for surgery or injectins, due to the low platelet count...the GI and myself did not discuss any of it, or the platelets since he wanted me to see NS.

I'm sure you have figured out my delima, or at least this particular one, no one has explained my MRI to me to where I can understand what it all means...believe it or not I used a medical dictionary and got all the words that I didn't know what they were. And now I'm going to write every area that has a comment with it, and see what I come up with.

I do have an appt. with my Rheumy on Monday and I'm going to take them with me, I forgot them last time and see if he has time to help some. He needs them anyway...you know it's a darn shame.... you have to be sick, go through all the test, and beg for help, and don't forget, pay for it !!!

thanks ~lyn
 
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bj1208 replied to charl1942's response:
Hey Charl - these sites are ones that Davedsel59 and I have been using for years - we both put our researches together and save these on our bookmarks - makes it easier when members ask questions - plus if you see Davedsel59's 2 pinpoints there are lots of sites listed - he took everything that we tend to 'repeat' and put it into the points listed -

anyway - will talk to u later - love ya sis