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    still in a lot of pain after L5/S1 surgery!!!
    An_189695 posted:
    Can anyone help with this???
    I had surgery August of 09 and have followed all recommendations after,such as rehab ,pain management ect. ......... Hip and back leg pain is now chronic no matter what I do I cant seem to find relief. I refuse to take Narcotics all they do is "fog" me up the pain is still there!!

    Now my right hand,forearm,shoulder and neck is hurting as well!!
    Steroid Pack and anti inflammatory {Tylenol) do nothing!!! x-ray suggested possibly a pinched nerve in my neck?

    I am sooo tired of this pain !!
    I was a healthy active 125pound woman in 2009 and now I am a crippled 135pound woman in constand pain!!

    MRI says back surgery healed well,possibly scar tissue that is pushing on the nerve now!! What the hell was the surgery for when the pain is made worse ? Does anyone have ANY suggestions to help me? Or can you recomend someone who may be able to help ? I live in PA near Pittsburgh?
    JoreneH responded:
    So sorry to hear about your pain even after surgery. Have u tried physical therapy?
    bj1208 responded:
    hi and welcome to the support group -

    per WEBMD's guidelines we cannot suggest any physicians/hospitals/personal information over the support board - but at the top of forum is a spot where you can find a physician in your area - just enter the info and it will help you search

    you can click on my name or pic and read my story -

    I had Anterior Lumbar Fusion L5-S1 on 2/25/08 - my fusion went well and I fused 100% - I too have scar tissue and arthritis built up - my surgery was a success as it did correct the disc problem - still no guarantee to help reduce pains.

    you must realize that surgery does not guarantee that there will be pain relief - my surgeon was hoping at least 50/50% but my pains are worse now than before surgery. I have nerve damage in both legs - because when my disc ruptured it splintered and part was on the left S1 nerve root and other part on the right S1 nerve root -

    I too went thru many pain management clinics before and after surgery along with physical therapy/chiropractic care etc. you name it I've had it -

    what i believe you should do is go see either an Orthopedic Spine Specialist or a Neurosurgeon Spine specialist - have current MRI's done -

    Also, you live in a fairly large city - there are pain clinics that practice PHYSIATRIST which goes deeper into pain management control - either by no meds or with meds - they work with you - this is the only place I have received good care -

    As far as meds and how they affect you - there is a couple of meds that help with the nerve pain in the legs/arms - one is Neurontin and the other is Lyrica - I am on Neurontin and have been for about 2 years - it helps my pains in both legs tremendously - I will tell you that it is a med that needs to be increased over a month or two to get you to a therapeutic dosage and it does take some getting used to - I don't 'feel' the drug but I do feel the benefits -

    there are numerous types of procedures that can be done for your pains - there are steroid injections, pain shot injections; and numerous other treatments - a spinal cord stimulator was tried on me - it sends a 'signal' to your brain saying there is no pain - so please don't give up - see if there is a PHYSIATRIST PAIN MANAGEMENT CLINIC in your area -

    here's a site to explain them -

    keep us informed as to what you find out - take care - Joy
    dianer01 responded:
    Hi Anon,

    Joy is right, there is no guarantee surgery will leave you pain free. The main goal should be stabilizaiton. Unforunately we cannot go back.

    When I was having nerve issues, I found a lot of relief in Lyrica. If you are not already working with a pain specialist, now may be a very good time to look into it. They may suggest some alternative therapies which may compliment traditional medicine. Have you tried some of the non narcotic pain relievers such as advil or aleve? Some people will find some relief in different types of pain relievers.

    my best to you
    EINDIAMANT replied to bj1208's response:
    Hi Joy
    Thank you for your response and I am sorry to hear you are still in pain.

    My surgeon was the "head" of the neurosurgery department for UPMC and he assured me that He would make me Pain free.

    I did physical therapy and steroid injections and any and all kinds of Pain management before surgery hoping to avoid the surgery and than did and still am since surgery. Nothing has changed.
    Neurotin is a narcotic I would look into that a little more and lyrica is an antidepressant and an anti-epileptic drug??? also one you become "dependent on and can have a ton of side affects"?

    I have 2 small children that need Mom to be "coherent"
    and after trying the "drugs Darvocet, flexing, steroids and many others all of which leave me "foggy" I refuse to become an addict when all they did was fog my brain the pain was still there I just spend most of my time in bed sleeping and why would I take antidepressants for physical pain can chronic pain for 3 years make you "depressed" sure but it is pain that was brought on by a physical issue not by depression??
    If this is something that works for you because you have NONE of these side affects or have no small children to be concerned about or a job you need to be "clearheaded" for than I an happy for you if it works.

    I refuse to miss one more day in my children life (dance, school play ,birthday.....) because I cant think straight or just don't care!!!

    Medical doctors seem very quick to offer narcotics and antidepressants when a patient has chronic pain and when they do not help than they continue to send you from an MD, to physical therapy to pain management to a shrink???

    I am sorry if I sound sarcastic ,but that has been my experience and it sounds to me like yours as well?

    thanks again for sharing but I am hoping there is still a better way .
    EINDIAMANT replied to dianer01's response:
    Hi Diane
    thanks for your reply

    Advil, aleve, Tylenol, creams , you name it cold-pack, hot-pack......

    i hope you can read my reply to Joy.

    thank you for your best wishes
    grizzly304 responded:
    Hi I had back surgery in 2003 bulge disc cut (sic) nerve.
    Back surgery 2013. I wish I had the words to give you but I don't because now I can't feel left leg or foot, Dr. Is fitting me for leg brace, and getting me into pain clinic plus nerves or spinel block shots, I a preacher alot of praying and read my bible helps more than any Dr., your right pain pills does not help but for me no more surgery if I can help it, I, m just turn 48 and have to sign up on SSD, it is a shame this happens but it does. Sorry I just don't have no good hope on this matter, just put your faith in god that all I know, good luck, may god bless you. Preacher jim.
    mainebestlife responded:
    I'm so sorry that you are still in pain after the surgery. Actually it's common- and referred to as failed back syndrome (post surgical) I also have pain after surgery for a L4-5 disc surgery in 2009. I'm allergic to narcotics so never did the strong pain med stuff. I do use the lidocaine- patches and gabapentin for the nerve pain in my leg. You have to find what works for you- manage the pain and most of all "accept" what has happened instead of fighting it. I found going to a pain clinic- pain management classes and counseling helped me accept what had happened to me. Don't be afraid to try different modalities- combine holistic approaches with traditional medicine- use whatever works for YOU.

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