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Chronic back pain
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cindynana51 posted:
This is my first time on this discussion board and it is really interesting. I have been suffering from chronic back pain for 2 1/2 yrs, have tried so much..have been diagnosed with ostepenia, lumbar spondylosis, OA S1 joints and Grade I anterolisthesis L4 on L5, although I am blessed that this is all is wrong with me, the pain is so bad!!! I am currently coming off of morphine 100 twice a day, down to 60mg twice a day (which my family dr. prescribed). I have seen several surgeons that have said have diagnosed me with a birth defect and no surgery will help. As soon as I get off of this AWFUL morphine, I am once again, going to a Pain Center, who I hope will be able to help with my pain. I sympathize with anyone who has daily pain...you cannot look at someone and assume they are healty because you don't know what may be going on inside. May God be with each of you.

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bj1208 responded:
hi and welcome to the support group -

before coming off the morphine 100% it may be a good idea that you see a PHYSIATRIST Pain Management Clinic - they can help you properly reduce down and come off the morphine - it is a hard narcotic to come off of -

I do take this (60mg 4XDaily) along with Oxycodone (30mg 4Xdaily) and may be looking at reducing it in order to get a pain pump implant this winter. I have gone thru over 5 years of treatment options and even surgery 3 years ago (single fusion - success on fusion) but they could not do anything for the chronic low back pain or the nerve damage already set in in both my legs. I'm what some physicians have referred to as ATYPICAL - meaning that most treatments that help others do not help me - so I'm limited on the treatments I do have -

there are lots of treatments that can be done and the pain clinic can let you know what can be done -

Hope this helps - take care - Joy
 
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davedsel57 responded:
Hello cindynana51 and welcome.

t think you would find it very beneficial to read through all the posts on this WebMD Back Pain Community. Read through everyone's stories to find out how they are managing their chronic back pain. Read through the Tips I created at the top of the community that list good spine sites for information and recommended steps for getting back pain diagnosed and treated.

You are right, many times people are suffering and do not show that. We cope the best way we can and survive. My motto is to keep moving in any way possible, keep doing your research and keep a positive attitude.

I hope to see more posts from you.
Click on my user name or avatar picture to read my story. Blessings, -Dave
 
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fenton04 responded:
I also was born with a birth defect in my L4. Dr's also said inoperable. I have good days I have bad days.. But doing PT and swimming (I hate swimming but do it for my back) have made life livable. I would trade in my handicap parking tag in a minute to be back the way I was. But it is what it is. Hang in there.
 
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cindynana51 replied to bj1208's response:
Thank you for your reply! My MD reduced my morphine from 100mg twice a day to 60mg twice a day..which is probably why I am having such difficulty..I'm no spring chicken either. Two years ago I went to a Pain Mgt Center who was going to burn the nerves, but I wasn't able to have that done becuz of our change in insurance. That is when I went back to my MD, who took me off hydrocodine and put me on morphine. Recently I went back to that Pain Center and they said I needed to be off the morphine before they would do anything, so that is why I am where now. Had I known about morphine when my MD put me on it, I would NEVER have taken it!!! I pray for God's strength every day and will be soo glad when I am off this awful stuff!! Thank you so much for your reply and I wish the very best to you!!!
 
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bj1208 replied to cindynana51's response:
hi again -

Ok - not sure what treatments this pain clinic has instore for you but I think the best thing to do is maybe search around for other pain clinics - especially those that practice PHYSIATRIST Pain Management -

here's a link describing them - I've been going to one for over 3 years now and they are great at helping me!!

http://www.spineuniverse.com/treatments/what-physiatrist

You can also research lots of different things on this site - it's one of the ones I have been using for quite some time -

I'm real surprised that your PCP put you on morphine - as hard as PCP's are dealt with by FDA etc., they come down hard on them -

Anyway - a good PHYSIATRIST Pain Management Clinic WILL HELP you reduce down on the morphine and also will help with other alternatives for pain management -

please keep us posted as to what you find - oh and at the top of this page is a spot for: DOCTORS - click on that and it should help you find a PHYSIATRIST Pain Clinic in your area -

take care - Joy
 
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Rafael Levin, MD, MSc responded:
Aa a spine surgeon, I share your frusration, Cidny. Though I am only minimally familiar with the specifics of your case based on your description, it is very true that there are too many patients with severe chronic back pain who cannot be predictibly helped with surgical intervention. I wish you the best, and I hope that as our field continues to evolve and advance, surgeons will be able to offer you treatment options in the future.
 
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cindynana51 replied to bj1208's response:
Thank you very much for your reply! I will be so glad when I am off of this morphine..I am on my way!
 
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cindynana51 replied to davedsel57's response:
Thank you for your reply. That is a very good motto!! I just take it day by day..thinking each day will get better and it will..Blessing to you too!!
 
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cindynana51 replied to bj1208's response:
Thank you so much for replying again. Really hard coming off of this stuff. Had I known what I know now, I would NEVER let my dr put me on it!!! I trusted him and should have done research first because I didn't know anything about morphine. Wish there was something to help with my pain and naseau, but my dr said there wasn't cuz I was already taking 60mg morphine a day..which, of course, I certainly don't want anymore of that stuff!!! I just want to quit hurting...but with God's help, I will, I will see this thru with His help!! I will check out that link also. Thanks again.
Take care..God bless
 
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cindynana51 replied to Rafael Levin, MD, MSc's response:
Thank you very much for your reply and concern!! May God bless you!
 
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cindynana51 replied to fenton04's response:
Thank you for replying....It could be worse, right!!! My daughter's favorite saying "It is what it is"...so true!! May God bless you..each day is a new day!
 
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brooks0824 replied to Rafael Levin, MD, MSc's response:
dont know where to go who to go to or what to do,
i would really appreciate help in any way i can get it.
i am 20 years old and i suffer from very severe back pain i have one of the worste cases of scoliosis in america and i really need help it is killing me and stopping me from being able to give my family the life we deserve,
idk what to do plz will someone help?
 
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bj1208 replied to brooks0824's response:
hi and welcome to the support group -


with the severity of your back problems I'm sure you have seen a spine specialist - if not then please get in touch with one - either an Orthopedic Spine Specialist or Neurosurgeon Spine Specialist - they can examine you and let you know the best treatment options - you may also check into pain management clinics - I'm sure you can get the help you need -


please keep us posted - take care - Joy


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