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Missing Tailbone in my 21 month old son
SCalloway posted:
My son was recently complaining of back pain, saying ow and pointing to his back.... only to discover after having x rays and an ultrasound soon to be followed up with an MRI(for clearer pictures) that he is missing his tailbone. We cant find any information on this (dr's keep saying this is extremely rare and they have nothing to compare him to) and we have no idea what kind of long term issues he may have. It obviously is causing him pain so "he will just have to live with it" is not ok with me. If anyone can give me even just a little bit of information regarding this, I would very much appreciate it!!
bj1208 responded:
Hi and welcome to the support group - I'm going to suggest that our house physicians assist you on this - best of luck - Joy
SCalloway replied to bj1208's response:
Thank you!!!!!!!!! I super appreciate anything anyone can help with!! I hate to see my little boy in pain!!
bj1208 replied to SCalloway's response:

Just wanted to bump this to top so they see the heading - thanks~~
SCalloway replied to bj1208's response:
Thanks! I appreciate it! Looks like they dont have much information to give me either!
SCalloway replied to bj1208's response:
What are the chances of someone actually checking this and responding?
davedsel57 replied to SCalloway's response:

I really think you would get answers if you consulted with a pediatric orthopedic specialist. There is not much information out there on the internet as you have seen, and the WebMD Health Experts assigned to this community may simply not be familiar with such a rare condition.

You can start with your pediatrician and see what specialist he/she recommends.

I pray you can find the answers you need for your child.
Click on my user name or avatar picture to read my story.


Louisemaree responded:
Hi there, I was just looking up information about this condition my son has out of curiosity. He was diagnosed at 3 1/2 with partial sacral agenisis, and is missing his tailbone too. He was diagnosed as a result of gastroenterology treatment for severe constipation. It took 18 months to get the constipation sorted and he is now nearly 11 years old. What problems has the partial sacral agenisis caused? Nothing really. It turns out you don't really need a tailbone & if the spinal cord passes correctly through the deformed sacrum, all is well. He's a good athlete, plays football, runs really fast & is a very fit, healthy active boy. We've always needed to keep his constipation in check which we do. He naturally chooses very good foods, unlike his brother, so this helps.

Good luck with our son. I worried a lot but it was unnecessary in our case. My other son complained of a sore back at one stage. Does anyone else in the family have a sore back? It turned out he was copying his dad. It was very convincing! Hopefully your sons pain resolves itself and his missing tailbone is nothing to concern you.
charl1942 replied to Louisemaree's response:
In an adult the lower end of the spinal cord usually ends at approximately the first lumbar vertebra, where it divides into many individual nerve roots (L1). That is the reason Lumbar Puncture usually perform at L3-L4 in order to prevent accidentally injure to the spinal cord.

Read more:
That is not to say there are no nerves there. The nerves in the sacrum and the coccyx have nerves across them and can be painful if injured (and possibly from a congenital situation).

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