Coccyx pain and mass
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swim36 posted:
I was diagnosed with coccydynia back in Jan 2011. The pain came out of nowhere. The pain progressed and became daily in April. Most days are just horrific. My quality of life has gone down the tubes. I've had 2 serial MRI's done. I have been diagnosed with a "precoccygeal mass." This mass is anterior to my tailbone. I've had a biopsy done. I was told that the mass is hard as a rock. The biopsy needle was bent during the procedure! The interventional radiologist thought I should have the mass removed.The biopsy results were "inconclusive". Looks benign-but no guarantees to that. Last MRI showed mass was stable.----Which is good--However, my pain is severe. I have now seen 2 neurosurgeons, a general surgeon & a gynecologist- He did a vag recto exam & strongly believes that the pain I am having is from this mass- not directly from the tailbone.
Herein lays my problem. I am seeing a physician who wants to just "monitor" the mass. Sure! Let's just do a MRI every 6 months- write for all my NSaids & pain meds & anxiety meds---and just let me continue to suffer. I have 4 young kids to raise, a wonderful husband & a job 3 days/week as an RN. I am looking for a SOLUTION to my problem. The pain meds make me tired. I was a very active, high functioning person. This tailbone pain is unbelievable. I was told my condition of the mass in the coccyx area is "a million to one". Well, isn't there just one surgeon out there who has treated something like my condition and can help me?? Everytime I see a surgeon I am told "Sorry. I dont operate on the coccyx. Good luck to you." I leave these appts with no hope and no direction.
I am in search of a surgeon to remove this mass & probably the coccyx. Its seems like it's attached according to the films.
Anyone out there with any advice or know any surgeon?? I live in Illinois, but I am desperate. Willing to travel to find a solution.
Thank you for any advice or support.
Maria
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bj1208 responded:
hi and welcome to the support group -

just an FYI - when you created your account with WEBMD you agreed to the terms and conditions - one of those is that we cannot release personal information (hospital names, doctor names, personal information etc.,) on the support board.
there is a spot under the "search" engine "DOCTORS" - you can search for physicians in your area and/or cities surrounding you. look for either an Orthopedic Spine Specialist or Neurosurgeon Spine Specialist as they will be the best for any spine related issues.

Hope this helps a little - there are others out there that have same issues as you do so hopefully they will see this and respond -

please keep us posted - take care Joy
 
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swim36 replied to bj1208's response:
Hi, Thanks for the info. No I didn't realize any of that. I've been in a daze. I appreciate the input. I will check out those listings.
Thanks!
Maria
 
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Dessertchic replied to swim36's response:
I'm sure you have dealt with this by now, but if not, I have a surgeon that will deal with a coccygeal mass (I'm currently seeing him for a undiagnosed "lesion" tumor type thing in my coccyx). He is in Tampa, Florida at Moffitt Cancer Center. You can email me at melisataylor@mac.com for his name.

Were you awake or sedated for your biopsy?
 
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bj1208 replied to Dessertchic's response:
Hi Dessertchic - welcome to the support group -

I believe you realized the post you responded to was a year old. this was the only post we had from Swim36.

you can always post a comment letting us know your story and how you are doing (no names etc of personal info - emails are ok).

Please let us know -
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~