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this is hard to do - the best way to approach your physician is to let them know what is not working and how it's not working - your physician will let you know what he/she believes may help - and you can let them know your concern bout taking oral meds - let them do the asking and you can explain -
also - testing should be done at both physicians (or your pain doc may do both) but tests should be done to see if you do have Fibro -
also your pain doc should do a test on ur legs: EMG test WITH NERVE CONDUCTION TEST as this will determine if there is any nerve damage in the legs (I have same problems and have nerve damage in both legs).
please keep us posted - take care - Joy
Thank you so much for your advice, that sounds great. I have never had tests done on my legs. I just recently went on gabapentain and my pain has gone from a 8 to a 3 on a good day.
i've only hear of the fentanyl patch - so this is new to me -
i've never tried any patch - just have heard too many horror stories -.
i am looking at having the spinal cord stimulator implant done - it will, hopefully, take care of about 80% of my pains - and then i can reduce pain meds (ms contin 60mg 4 day; oxycodone 30mg 4 day; neurontin 600 mg 6 day; muscle relaxers 4mg 5 day) so i'm hoping this will help. if not then it will be the pain pump implant.
they have asked if I wanted the patch and told them NO - so I would do all the research you can before accepting it.
keep us posted - take care - Joy
I have great news!!! My appointment went perfect!! He was wonderful..I went in with a list of my problems, what i don't like, and what I want to change.
I finally have a diagnosis!!! I have what's called Lumbar Facet Arthropothy. As well as Lumbar degenerative disease, and a bulging disc on my L4-5.
It feels sooooo good to have validation on my pain, it is bittersweet though. I explained how I wanna get off tramadol and not take any pills. He is going to do a facet injection, see how that does and we will go from there.
We then discussed pain management options..he brought up the Butrans patch. Says that it's a great alternative to people with moderate constant 24 hr pain. You wear it for 7 days, then replace it. It comes in 3 levels of the meds. 5, 10, and 20mg. He started me on 5, and we will go from there. I put it on Monday afternoon and am not getting any relief yet, and don't feel dizzy, or sick, I feel completely normal. Apparently it can take a few days to absorb in the body.
What I have heard is that people say it's a miracle. They have thrown away there pills. One guy said that he can finally work again because he is not so loopy from the narcotics. I have read alot of similar stories. That it doesn't give you that euphoric feeling or get you high. I will let you know how I'm doing
New PM doc put me on the Butrans, and after 4 days I feel minimal pain relief, dizziness ("cloudiness"), take 1 or 2 perch 7.5/325 for BT pain.
It's nearing year 6 of back problems for me. I'd like to hear about your experience with the patches, your injections and overall progress.
I was diagnosed with Lupus & Rheumatoid Arthritis about 10 years ago and have been battling ever since with various pain. A few years ago, my GP & Specialist put me on Lortab, then Percocets, then Oxycontin. After a while I started to gain a tolerance for whatever I was on, then they would put me on something stronger. I'm only 31, so I don't want to burn out ALL of my opiod receptors so quickly (also, I was sick of taking pills every few hours). Because of the Lupus, I already have to take many pills every day, so the way I see it...the fewer the better. My GP finally saw how frustrated I was getting about all the pills, so he recommended a pain patch. I thought that he was referring to Fentynal at first, so I initially said NO, but he told me about Butrans. Because of my extensive use of pain medication, he put me on 20mcg/hour.
So far, I've been on it for about a day, but I'd like to hear some other opinions on it's use. Any obective/subjective criticism?
A few weeks later, I had another injection done and went up to the 10mcg. I can honestly say that after 2 weeks on that dose I realized my back pain in the morning had changed. Usually when I wake up, I don't wanna get out of bed because my back hurts so bad...but then I DO wanna get out of bed because my back hurts so bad. It's usually a no win situation. But now, I only feel a little stiff. It's a different feeling. Instead of it being pain, it's slightly uncomfortable.
I have also noticed though on day 5 or 6, it's hurts in the morning again. I don't believe for me it's lasting the full 7 days. So I have been changing it every 6, or 5.
As my overall pain goes, I feel it has helped me. My only issue which I constantly come across is, any activity small to large. I haven't found anything that helps with the break through pain besides the norco. So my pain specialist has me on the patch, then vicodin for the BTP.
The crazy thing is there is NO euphoric feeling what so ever..it's as if I have a advil patch on.
Which patch are you taking? If your doc started you on the low dose, and it's not working after 2 weeks, I would try the 10, but give it a little bit before you go tot the next step.
As far as the injections go..I have ha them before as well and decided to give them another shot, haha...I don't think they do anything. I believe my patch has given me the pain relief.
Please let me know how you are doing, and take care. I hope you find some relief in whatever your being given. If not there's something else out there we can find!
I can relate to your pill situation. I'm 31as well, and my tolerance was that of horse, and I'm 5'3 115 pounds. So I had to find something else. I believe this has helped me enough to not have to take pills all day. Now your on the 20, which I have not gotten to yet, but am thinking maybe next round. I thought after 2 weeks is when I either felt it didn't work, or then when I went to the 10, after 2 weeks is when I started to pick up on the changes.
What I like about it, is it doesn't get me "high". There are no euphoric effects like the pills. So I believe they have found something that you won't get addicted to like the pills.
I have never had a problem with it staying on. In fact, it hurts to rip it off!!
I hope it will be able to help you cut back on your pills! I feel it has helped me in a lot of ways, by means is my pain all gone, but it has helped with the everyday aspect of it. PLEASE let me know if you have any questions!!! Or anyone who is reading this! Look forward to hearing about your progress and take care;-)
By the way, it seems to be a common complaint that the patches are NOT lasting the full 7 days. Maybe the powers that be are looking into this, but every 5 days (or 6 patches per prescription instead of 4 may remedy this. Who knows...?)
Good luck with everything!
Personally though, the classes don't matter. I was on tramadol (considered a non-narcotic) for a year. 50mg, 4 times a day and the first 3 days of tapering, was just as painful, if not worse then tapering off of a true narcotic, which I have done a few different times. It took me about a month and half to get off those things. It was awful.
All of our bodies are different, and are going to react to different things in different ways...hence why we all come on here asking for others opinions on pain relief.
dmw70, I'm sorry that you had a rough experience on it. But I think it's great that you tried something new.
With that said, one of the reasons that I have been excited about the patch is it means there turning new leaves out there. The way that I look at it is, in 10 years, even 5 years...there are going to be many choices out there for all of us. So for me, I will try new things, listen to my doc and keep doing my own research to see if there are things that can help me live a better life.
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