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3 Laminectomy's, 4 Diskectomy's, can's handle the pain.
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Serene25 posted:
I have had 3 Laminectomy's, 4 Diskectomy's. My spinal cord remained opened after the first Laminectomy, several of my Lamina's have been removed, several of my disc's in the T and L areas have degenarated. I have been reduced to taking Oxycodone daily for the last 17 years. I cannot handle another surgery to relieve the back pain. Any suggestions? Please help.

I was also told recently that I have 3rd stage kidney disease.

On top of all of that my doctor told me today 50% of my right carotid artery and 70% of my left carotid artery is blocked. I feel like Job's sister.
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bj1208 responded:
hi and welcome to the support group -


sorry you have had so much going on with your back. you are the one in control of your back and what you say goes. so if you don't want surgery then that should be the final answer.


i would suggest that you find a better pain management doctor - PHYSITRIST Pain Management works with you in controlling your pains - and they have lots of different programs to help. here's a link to describe what they do:


http://www.spineuniverse.com/treatments/what-physiatrist


you can search for one at the top of this page; DOCTORS - just put in your search engine and it will give you a list of them -
your primary care physician and/or your spine specialist can also direct you to one. they should help you more with what is going on - you can also go see another Orthopedic Spine Specialist or Neurosurgeon Spine Specialist to get 2nd or 3rd opinions on your back.


please keep us posted what you find out - take care - Joy
 
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Serene25 replied to bj1208's response:
Thanks for your reply, Its been so long that I have pretty much given up on finding a solution to my back problems. I have seen quite a few spine specialists and neuro surgeons, they have all recommended surgery again. My back is pretty much messed up, I don't want to take another chance, its too risky.

I take life one day at a time and deal with the pain one minute at a time. There isnt much I can do.
 
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bj1208 replied to Serene25's response:
hi again - seeing a physiatrist pain management may help - they can offer suggestions instead of surgery - like spinal cord stimulator (sends false signals to brain saying there is no pain) or pain pump implant - just to name a couple - so don't give up there are options out there and you should address everything (besides surgery) -


you can click on my name or pic and read my story - i'm in the process of having a "FLAT PANEL" spinal cord stimulator implant done - i see the surgeon on 2/6 so am excited and anxious and worried all at same time -


please see a physiatrist pain management doctor - I believe they can get you in the right direction -


keep us posted - take care - Joy
 
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Serene25 replied to bj1208's response:
Hi Joy, I read your story. I am amazed to see there are other people who are have gone through similar pain and treatments as I have and all have failed.

I will keep you in my prayer, I do understand what you are talking about and the degree of pain you live with. My Story is smiliar to yours I will post it soon. Right now I am dealing with a new problem which my doctor just informed me of. My right carotid artery is 50% blocked and my left artery is 70% blocked. My doctor had put me on Lipitor but its only been two days now and I am having excruciating headaches and visual problems.
 
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bj1208 replied to Serene25's response:
Hi Serene25 - wow sorry you are having other health issues -


back in 04' my doc had put me on Lipitor put I had to go off it cause it was making my legs hurt so bad - and if I had read the signs then I would have realized then that I had back problems.


Keep us posted - I know heart doc's have really good ways of unblocking those veins as my mom has about 8 stents in her - so keep ur chin up and let us know how ur doing -


take care - Joy
 
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An_243162 replied to bj1208's response:
Hi Joy, so good to hear from you again.

I am just beginning to understand about cholesteral, never thought it will be a problem for me, but I do love to eat sweet things, cakes, pastries, pizza etc. I eat all the wrong foods so when I found out about my cholesteral I was shocked, but when I look back I can see how easy it was for the plaque to build up in my artery. I have an appointment with a vascular surgeon tomorrow. I am a bit scared as to what he will say to me but also relieved to be able to see an expert in this field of medicine.

I am also looking into making an appointment with a physiatrist, I must say I did not even know what the word meant until I looked it up:-)
I do plan on getting in to see one as soon as possible.

I wish you well on your appointment on 2/6. I hope all goes well for you, you are in my thoughts and prayers.

Take care,
Sherene
 
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Serene25 replied to An_243162's response:
Hi Joy, so good to hear from you again.

I am just beginning to understand about cholesteral, never thought it will be a problem for me, but I do love to eat sweet things, cakes, pastries, pizza etc. I eat all the wrong foods so when I found out about my cholesteral I was shocked, but when I look back I can see how easy it was for the plaque to build up in my artery. I have an appointment with a vascular surgeon tomorrow. I am a bit scared as to what he will say to me but also relieved to be able to see an expert in this field of medicine.

I am also looking into making an appointment with a physiatrist, I must say I did not even know what the word meant until I looked it up:-)
I do plan on getting in to see one as soon as possible.

I wish you well on your appointment on 2/6. I hope all goes well for you, you are in my thoughts and prayers.

Take care,
Sherene
 
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Serene25 replied to bj1208's response:
Hi Joy,
I am doing good, a bit stressed out since I found out last Monday my HDL is 85 and my LDL is 128. I am seeing an experienced cardiologist and a vascular sugeon right now, the rest is in the hands of God.
How did your appointment go with your doctor on Monday? Hope all is well with you.

Take care of yourself.
 
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bj1208 replied to Serene25's response:
hi -


sorry u are stressed - I know how u feel -


well my appointment went very well - however he stated that if the SCS implant works that I can reduce the amount of Neurontin I take for my nerve damage in both legs - I told him that it's controlled very well with the med and that my main concern is the pain right in the area where my plate/screws are at L5-S1 - he didn't say anything about that so I had my pain appt Wednesday and asked my PA - I told her that if he wants to do this just for the leg pain then I don't want to have it done - I want to reduce my chronic low back pain so I have some concerns now - I also have to call the billing dept at the hospital to find out how much the entire procedure costs, what my insurance will pay and what my out-of-pocket cost is -


I had one done in 2008 and I was already at 100% - the trial at that time cost $28,000.00!!! so when you look at I have to pay 20% that's a lot of money - and not including the permanent implant - if it's a lot then I won't be able to afford it -


just too much stress thinking bout it -


let me know how ur appt goes with the vascular surgeon - take care - Joy
 
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Serene25 replied to bj1208's response:
Hi again, my appointment went quite well, The VS I saw was out of my state. He confirmed everything my primary physician told me. He referred me to a Cardiologist in my city whom I saw today, as a follow up. He will be seeing me once a month to check my cholesterol and see how its doing.

I have a pretty good idea of how expensive these surgeries can be, I had three laminectomys and three disckectomys done in NY so I have a pretty good idea of what the bills look like.

I think if you can control the pain without the surgery then maybe that will be the best way to go, I have spoken to and have been seen by some of the best Orthopedic and Spine Specialist in the country. Everyone of them have advised me against surgery. The more surgeries you have the more messed up the back gets. Maybe with a good diet and exercise program you can learn to control the pain without opting for surgery again.

Doctors say the number one killer in this country is stress, it can be very stressful when you have so much going on but with the help of family, friends and loving support we will make through. I am a survivor and I think you are also, hang in there I will keep you in my prayers.
 
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painloopy replied to Serene25's response:
Wow! I just want to tell you that reading your story makes me realize how we all (those of us with major long term spinal and health issues here on this board) have to be SO strong in order to keep it all together and not fall apart from stress. I see a really good psychiatrist that helps me look at things more from the perspective of glass half full but it is often VERY hard when so much piles up. Just know I feel your stress and you are not alone. I'm glad you have a good support system at home.

BTW - I have a spinal stimulator and it does help with my facet joint and back pain as well as nerve pain in my legs. In my experience (and everyone is different with this so take it with a grain of salt) it relieves my pain about 35% better than without it.
 
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bj1208 replied to painloopy's response:
hey there -


thanks for the support! yes it does take a lot to keep it together and make it thru each day - mine is my grandkids - my oldest daughter has 2 boys (ages 5 & 3) and they are both AUTISTIC so my daughter has her hands full all the time but they are my pride and "joy"! LOL


this is what makes me get up each day and give me the strength I need and plus it helps me from being depressed - even though I can't really baby-sit cause they don't understand why I can't pick them up etc.


I did have an SCS trial done back in 08 - and boy it helped the leg pains but it increased my back pains tri-fold so it was horrible -


this SCS I'm thinking about having done is a flat panel instead of the wires - i'm checking on the out-of-pocket expense and will decide if I can afford it - so many things to look at - when i had the one done in 08 my insurance was at the 100% mark so I didn't have to pay anything.


I do see a PHYSIATRIST Pain mgmt doc - he is great and as his PA and the doc that does my EMG testing/shots and they won't do a procedure that I've already had and didn't work.


anyway thanks again - hope you are feeling better take care - Joy
 
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Serene25 replied to painloopy's response:
Thank you for your advice. I have the best psychiatrist in the world, He is always with me, He gives me courage when I feel I cant go another day, He gives me strength to stand up each time I fall and cannot get back up. He is my best friend, He helps me to see things clearly even when things are cloudy.

I understand what you are saying and I wish you all the best, with everything going on it is easy to get stressed out.

I actually don't have a support system or I probably would not be here. I am a very private person. Its difficult to have so much going on and have no one to share it with but sometimes it is better this way. I do have one best friend with whom I share everything and for me that is enough.

I shared my hurt and pain for the first time in my life in public, its not so bad, especially when others are going through the same.

Thank you for your suggestion I will think about it.


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