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Chronic Back pain and Brain Tumor - Is there Real help or Hype?
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sidneybarros posted:
Not long ago I simply put up with muscle pains. I was a healthy middle-aged man. I started to gain weight do less exercise, went over my weight limit for my age and height. By then it was too late. One day working in the yard bending over to pick up some light trash. I strained my back and pinched a nerve in my lower vertebrae. Being a man, I shook it off as much as possible with a pinched nerve. 2004/ 2005 were trying years for me, two failed back surgeries the latter to repair the damage by a machoistic x-ray technician. A brain tumor operation that was 14.5 hours long and two Nuero-surgeons. It nearly took my life with my heart stopped, and I no longer was breathing. Years have passed. My wife has endured and struggled, to the point of near divorce. Gradually, things have improved but not so much. Every day at the present time I live with two kinds of pain. The one in my head and my lower back and at present hips. I'm 53 now going t be 54 in just a few short days. I take the maximum in Lortab and the maximum in Neurontin. This medication in the two years I've taken them don't relieve much pain. Now in the past six month's I can't walk because my right ankle is swollen and for the past two visits I have had with my doctor. I have stated I would like to get back to walking. He has looked at it rubbed his chin basically and said hmm. Is there a Doctor out there who knows how to "fix" things so I can at least walk again before I become diabetic? Help!

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davedsel57 responded:
Hello, and welcome.

I am sorry to read of your health problems, but fully understand.

You need to be assertive, even aggressive with your health care. Keep trying to find an orthopedic spine specialist or neurologist/neurosurgeon spine specialist for further diagnostic testing and treatment plans. A pain management specialist may also be able to help you. Just be sure to see a good spine specialist, have good diagnostic testing and an accurate diagnosis before pursuing any method of treatment.

Keep doing your research, keep as active as possible and keep a positive attitude.

I pray you find the answers and relief you need soon.
Click on my user name or avatar picture to read my story.

Blessings,

-Dave
 
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Anon_1421 responded:
Your current doctor sounds like an uncaring quack-if he is not doing anything but saying hmmm then you shouldn't be wasting your time (or money!) with him. Find another doctor that will help you instead of wasting your time. You might start with a regular PCP and see who they want to refer you to (if necessary) for the ankle. Dave has given you excellent advice-hope you find a good doctor and get relief.
 
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sidneybarros replied to davedsel57's response:
Thank You I will be a bit more aggressive, thank you to both of you
 
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sidneybarros replied to Anon_1421's response:
Thank You
 
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Ashley_Martin responded:
I am so sorry to hear about the unfortunate problems you have been dealing with. I have a story somewhat like to yours, although not quite as intense and I would like to ask you some questions after I explain myself. Long story but I will try to make it quick and get to the point. I started having odd symptoms around 8 yrs of age.. diagnosed with a ridiculous amount of disorders including severe panic disorder, fibromyalgia, mono, severe migraines, depression and "faking it to get out of school." Finally at 17 they decided that I should get my tonsils out. Had an MRI to make sure my sinuses and such were good to go... a golfball sized tumor showed up on my dome and the radiologist missed it, said it was a flash from my braces. HERE IS WHERE OUR STORIES START TO SOUND SIMILAR... Age 20 I was experiencing debilitating low back pain after a fall while backpacking, I was bed ridden for a year and only got up and around to see doctors all over the country each of them telling me my pain is not real. Finally they did another MRI and decided to include my brain and sure enough there was the tumor... doubled in size. Had a crainiotomy and a couple of procedures on my back but the back pain still persists, although it is not as bad as it was before my first crainiotomy for some reason. I am 22 and still have pain to the point that I cannot walk some days, it is odd to me that the MD's say it couldn't possibly be related to a brain tumor when there is nothing else wrong with me. That could be wrong though, after all it took hundreds of doctors and at least 13 years to find the tumor in my head. I am now biomedical scientist and I would really like to get your email or something to get in contact with you. I want to write a case study about the possibility of referred pain from brain cancer/tumors sense I can't find any other probable cause of my own pain. I have a few questions about your pain and the tumor if you have time to answer and are willing to help out it would be much appreciated! Thanks! Stay Strong and live well! If you need to just vent I am here! I understand the type of situation you are dealing with and it is both physically and mentally painful.
 
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bj1208 replied to Ashley_Martin's response:
Hi Ashley_Martin - welcome to the support group

You are posting to an original post from a year ago and we have not heard anymore from this member.

Just an FYI - when your back has been injured and have had surgery to correct disc(s) the surgery is done mainly to stabilize the back - there is no guarantee that the back pains will be reduced. It would be in your best interest to see either a Orthopedic Spine Specialist or Neurosurgeon Spine Specialist and have a current MRI if it's been more than a year since you've had one.

I had back surgery in 2008 and my pains are worse now than before. Hope this helps~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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kenny63 replied to bj1208's response:
Hello bj1208
I want to thank you for your wonderful support given totally to all who write to this blog. I read this site very frequently and have gotten so much relief to know I am not alone out here. My pain is getting worse and my MD is working with me but there are some days the pain really takes over. That is when I reach out and read this site and find your great advise. Thank you so much.
 
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bj1208 replied to kenny63's response:
Hi Kenny63 -

thanks for your wonderful words knowing that we are really helping those that need it.

This is a great support group and I was lucky to have found it back in 2006 - I had/have the same feelings from all members who were here and those that are new.

We always learn something new every day regarding chronic issues and it's great to have a site like this!!

Thanks again~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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scooter53 replied to bj1208's response:
Hi, I'm Scooter53,
and I read a lot of post's not only on this site, but on other sites too, and I need to give out an FYI on bone fusions, but first I will tell you my story. I had back surgery in 2009, it was to be simple, but then when they opened me up 8" from my shoulder blade to my butt, they found a tumor the size of a golf ball. They removed the tumor, then installed 3 fusions and 4 rod's. After the surgery and 2 months later the pain got worst, the Doctor said it would go away in a month, but a month later it was worst, so they put me on more med's and said it was a failed back surgery, and said there's nothing they can do. So I looked into a way to not take so many med's, so I had a spinal stimulator placed in my spine, don't work for the pain but gave me feeling back to my feet, and right leg. Being totally depressed over this one night i was watching TV and seen an AD stating something about fusions, so I wrote the web address and phone number down. Everything they listed was happening to me, so I called, and this is what I found out: The fusions that were placed in me were not FDA approved, which one of the problems is more bone growth causing the nerves to be pinched and later cut off. Also cancer, I've had breast cancer and had a breast removed already, now my teeth are falling out too. So please make sure the fusions are FDA approved, I can't give out the name of the company due to legal matters (i won't on this post) Hope this help some people out there. Scooter53


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