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nvrending posted:
Cant nod but you can feel my pain maybe? I had a work injury in 12/10/08. I have three surgeries under my belt a neck fusion 3 levels. a back fusion 4 levels and a bone stimulator. Quality of life? what does that mean? I am fairly young 34 to be exact I dont know a day without pain? I have an eight year old son, I dont think he remembers the mom i once was. Before I was injured I had filled for a divorce but my husband never participated. bet know he wished he did. He was furious about the assets I had listed. i gave it my best shot but he was very abusive. Funny how life works because now hes all I have. I have no income besides his, Its still a very toxic for me but I have no other options. I guess what im trying to say is when you go thru these major life changing events no one knows your pain unless youve been though it. if you didnt have a super supportive family before you were hurt, one doesnt drop out of the sky for you after your hurt. if you have the displeasure of being hurt on the job, like i was expect to be dropped on your face at your weakest as a sheep in the wolf den with all your wounds exposed. Tired and weak and spend every moment of your life just trying to survive, while being treating as a criminal as they take sticks and poke them at your most tender places. there main goal is to make it so painful and horrible for you that you run away crying. so they can take more money to the bank. you are not a person you are a number. they dont care if your wounded or scared. in fact they will go to great bounds to disprove that. Every day I wake on the verge of giving up and how much more can I take? ???? has anyone ever felt their hardware after a back fusion. I feel the screw in by back for over a year. i want it out, but i dont know if i can handle going through another surgery again so painful has anyone done this what was your result? from what ive read some people what up from surgery and they feel relief ! could that really be it. i have pain and numbness down my leg constantly my arms too. constant headaches. i drag my left leg and cant feel the difference between burning hot or freezing cold in large areas of my leg. I have very little range of motion in my neck. I get at best 4 hours of off and on sleep a night and that is with sleeping medication. I feel more and more depressed now that i have 0 income as my workers comp payments have ended and so has my edd benefits. Ive spoke with state disability attorneys and they state because of my age it will be near impossible for me to collect benefits. I dont understand what my age has to do with it. I go to pt. I cant work I would love too. It takes everything I can to care for my son and that sometimes I need help with and though I feel like I give 125% Im only 50% of the mom i used to be so i feel like I failed. It Kills me to look at a dirty house well Dirty to me. Or ask my son to tie my shoe. Or not be able to sign him up for sports because, i cant handle 3 practices and two games on the weekends. Me hurting is horrible. My son Hurting is 100 times worse. having expectations that your family would see you struggle and be there and they are not hurts. waking up to a fight because everyone is tired of this already, yeah no kidding i wonder if theyve thought about how tired of it i am . my body is like a prison cell i dream of things in my mind i want to do they lay in my jail cell and cry because i cant do them. I will never ride a roller coaster with my son, or go horse back ridding or salsa dance all night. i am so sick of people telling me to look at the bright side? what bright side. i know that things could be worse and i do have faith. but gosh, things could be a whole hell of a lot better too! I know this seems like a pitty party for 1 and I know life is not far. but am I alone here? does anyone else feel this way. did it get better? does it get worse? what do you do ? when youre looking for the light at the end of the tunnel ? and no light
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davedsel57 responded:
Hello and welcome. I am so sorry to read of your struggles. I fully understand.

I'm sure you have gone through all the doctors and tests, but you may want to read the Tip at the top of this WebMD Back Pain Community that lists the recommended steps for getting back pain diagnosed and treated.

Chronic pain affects every part of our being - mind, body and spirit. You may benefit by seeing a pain psychiatrist. They can help you deal with how your condition has affected you, your family and your whole life.

Since this was a work injury, have you involved Workman's Compensation in your state and contracted a Workman's Compensation attorney? They only charge if there is a settlement involved. My wonderful wife had two work injuries last year resulting in back problems and Workman's Compensation through her company has been pretty good. She did contract a WC attorney and they have been ensuring everything is done for my wife according to the laws in our state.

I understand how discouraging this is for you. If you read my story by clicking on my user name or avatar picture as stated in my signature, you will see that I have been managing moderate to severe chronic pain for over 30 years. I actually became disabled 4 years ago at age 51 and can no longer work. Read through how I manage my chronic pain.

There is always hope and there is always help. Do not give up. Keep doing your research, keep moving as much as possible and keep a positive attitude. You may be only 50% of the mom you used to be, but that is far better than not being there at all for your family.

Please continue to post here and keep us updated.

I pray you get the pain relief you need.
Click on my user name or avatar picture to read my story.

Blessings,

-Dave
 
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teachermom123 responded:
My back pain just started in May, so I can't imagine what you are going through, but please know that others care about you. My sister has been disabled with failed back surgery and Crohn's disease since 2002 and has been raising a son as a single mom. Every day you make it through is a triumph for you and your child. I'm so sorry that you have pain and even though it is terrible and hard, you son is feeling the love you have for him. You are also teaching him compassion and in today's world that's rare. Do the best you can, as a teacher, I see many parents who do not care for their children very well. As for the disability, you need to call/e-mail your assemblyman, senator and congressman and get them to help you. That is their job. I don't know what state you are in but we live in NJ. My sister was 33 when she hurt her back, she gets social security for herself and her son (He is 14) and disability from her last job. Age has nothing to do with it as far as I know. You may need to get new lawyers, but please contact your government representatives, they should be able to get things moving. Tell them everything so they can help you with all services available. I
 
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nvrending replied to davedsel57's response:
Dave, Thank you so much for taking the time to reply to my story. I did read your story as well, both you and your lovely wife are no strangers to pain. I to have tried the highest dosage of methacarbanol with no change. I appreciate your blessing more than you know. My workers comp case has taking nearly for years. I do have a attorney I hope and pray every day that he is doing his best for me. Its so hard my personal insurance ended and now I cant get insurance.So i have to rely on what will be approved. Workers comp will sent me to a pm. doctor. But they honesty believe they is no physc. damage done to a person after all of this. so they will not approve for me to go see someone i can talk to. This is why I am here reaching out to people that are in my position or have been so I dont feel so alone. I feel like its so unfair there are people that elect to have surgeries like bypass surgeries and they have to go to counseling because they body is going to change. usually for the better or what they want. But I went through these surgeries none of which felt elective I promise you. I had an adverse reaction to anesthesia and was locked up on the third floor (the mental health unit) with no one explaining anything to me. I was terrified seeing things I thought i was losing my mind! go figure then they game me some benadryl and everything started to get better.
But it is still a bad dream that haunts me. that could of be handled with so much care. In stead of treating me like an animal. Dave its just been one bad experience after the other. I know I need to be here for my soon but some times Im so tired of fighting and i feel like such a burden. I just dont know.
Again I thank you. I wish you and yours the very best.
 
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nvrending replied to teachermom123's response:
Dear, TeacherMom.
Thank you so much for such a caring response. I just joined this forum. My workers compensation has denied my request for mental help/care. They are denying that there is any mental side effects to the three life changing surgeries I have undergone, Go figure, people go to have elective bypass surgery and it is manditory to go through counseling and the outcome is usually a positive on leading in weight lose, and and leads to a life with less limitations. I promise you none of my surgeries felt elective, yes they were scheduled but It was pick surgery or continue in extreme pain. with every surgery i prayed that when i recovered that I would recover and never feel that horrible pain again. I think it is truly insane!!! In fact after my neck fusion I woke up terrified,confused seeing things that were not there. Not one doctor would explain to me what was going on. Long story short i had a allergic reaction to the meds they used to put me under and the pain meds they used after. I was locked on the physc.unit in the hospital and held for 72 hours against my will until I was finally given benedryl..It is was a horrible time in my life and it still haunts me. be at the mercy of people. no one helping me feeling crazy and it was fixed so easy. but no one cared enough to even try to help. Everyday is very hard but just reading your message gave me a positive push. thank you. I do have another fear and I wonder if your sister had any experience with it? when I was speaking with my lawyer he said that I needed to be able to have a lot of people that i could helped me with my son hes 8. and if iI didnt Child protective services may deem me unfit due to my disabilities. I must be honest with you my son is my reason for living. I think I may of given up by now if not for him. I love him so much. I really need the help financially I am getting ) now. Im so scared now to reach out for the help we need if there is a chance in this world that could happen? did your sister experience anything like that ?
thank you for your time I do hope your pain goes away !!! i wish the very best to you and your loved ones.
 
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bj1208 replied to nvrending's response:
hi and welcome to the support group -

I noted that your original post had posted 2 times - I had responded to the other post - you can read my response there.

I don't know if you have a worker's comp attorney but I would strongly suggest that you hire one - this way your best interest will be fought for - remember worker's comp insurance protects the company and the company's rights - it does not look out for the employees best interest/care.

I would also make sure you have the right attorney helping you with Child Protective Services issues.

I would also check with Medicare and Medicaid offices to see what benefits you are entitled to (www.medicare.gov/ and www.medicaid.gov/) you could be entitled to some benefits to help you and your son.

I hope this helps - let us know what you find out - take care - Joy
 
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nvrending replied to bj1208's response:
Thanks again, never had a cps. issue the attorney just said if i was i was approved for disability or being considered for it CPS. may get involved because Its me and my son alone most of the time my husband is a traveling superintendent. I have family that can help here sometimes but as a mother you do what you have to for your children. I help with homework just sometimes we have to do it in my bed. I dont need to explain your a mom you get it. It just I fear the unknown and this has all been worse that I could of imagined. Thank you for building the lives and minds of little people and still having more left to give to help people like me!!! please feel better soon- your name suits you
 
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bj1208 replied to nvrending's response:
hi nvrendng -

just remember - we are here to help - you can click my name or pic and read my story.

keep ur chin up and remember there are programs/attorney's etc that will help - sometimes it just takes time to find the right ones.

keep us posted how ur doing - take care - Joy
 
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jangirl24 responded:
read this and it makes me cry, how old are u that u cant get disability? can u try to get SSDI? is there any shelters where u live? i know its hard to be in a shelter with a child , i was there once but at that time i wasnt having the pain problems im having now. i was beat for 11 years by my high school sweetheart, all the beatings have caught up with me now i have total body pain costantlly i have had 2 injurys at work that has resulted in 2 neck surgerys the last one my work waited 6 years before they did it and now im a mess, i also have other medical problems to. i am depressed everyday but im glad im alive because if i would have stayed in that bad relationship i would be dead by now. thats been 20 years ago and all the pain in my body from being beat up has caught up with me, i dont know what im going to do but i try to keep going for my youngest whose still home she understands that i have pain everywhere she trys to help out some, but her dad is good to her and me, hes not perfect and we have our problems to but no beatings or abuse of any kind i would never put up with that again, i am going to pray for you and your son, i hope you can find help where u live in your community, i would like to talk to you again if its ok with you, keep in touch i care!


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