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what has this world come to:
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An_246696 posted:
[TRIGGER] I am a 59 year women suffering from back pain from the neck down to my lower spine. I had 3 disc fused in 2008 and tools removed in 2009, life has been so unbearable since. I went through a pain clinic for about 8 months with injection from my neck down they would help for about 3 two 4 weeks and i felt great. I never did take medication like prescribed i took them as needed. I would only take them if i was in really bad pain, usually just so i could walk somewhere or when i would go somewhere without pain. I got in a argument with my pain clinic and told them to shove there pain meds i just wanted something else done well now they refused to see me or I can't get in anywhere else for my pain. I'm crying all the time because i'm in such severe pain, made a appt. with a different doctor he order test in April and said he would get back to me with his recommendations well its now almost the end of July and I still haven't heard anything I call the office they never call me back and I just can't take it anymore. Now I can't hardly walk my legs get so weak and it hurts so bad. I just don't know what to do anymore. Suicide seems to be my only option right now. I can't get theses Doctor's to realize what pain i'm in. This is just killing me. Why would they think anyone would lie about pain like this? Medications personally make me sick to my stomach. I really think this world is so mean to the elderly patients they don't care if we live or die. Please help me!! I just can't take much more.
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bj1208 responded:
hi and welcome to the support group -

I'm sorry you are having so many problems - from pains to doctors - no one should have to go thru that. we all know pain here so we understand what you are going thru.

what I would suggest is that you see if there is a PHYSIATRIST Pain Clinic in your area (see link).

http://www.spineuniverse.com/treatments/what-physiatrist

they go deeper into pain management utilizing numerous types of treatments. Be sure to get all your records and tests (MRI, CT Scans etc) and take them with you also include records from before, during and after your surgery from both the surgeon and the hospital.

They also have a good set of spine specialists and if needed they can refer you to one

Dont give up - there is help and hope - believe me as I have had my share of spine specialists and pain clinics telling me to go off pain meds and learn to live with the pain. it's unfortunate that we have to endure this type of treatment. you can click on my name or picture and read my story. I was referred to a PHYSIATRIST Pain Clinic in in 2008 and they have been really great. they have reviewed all treatments I've had in the past and will not perform any that don't help.

Remember we employ doctors and we have the choice to go to any doctor we want.

Another item to realize and understand - Fusion surgeries are done to stabilize the spine - period. there are usually a cople of factors involved in fusions - #1 is the disc problem, #2 is if there are any damaged discs pressing on nerve roots and #3 is the pain.

here's another link on Failed Back Surgery Syndrome -

http://www.spine-health.com/treatment/back-surgery/failed-back-surgery-syndrome-fbss-what-it-and-how-avoid-pain-after-surgery

this basically describes some areas of spine surgery where it relates to still having pains after surgery. the term is used loosely especially for those that have had a fusion surgery and still have pains (or other spine surgeries). this may help you understand what you are going thru.

I had my fusion in 2/08 and my pains are worse now than before plus I have nerve damage in both legs. I've had several doctors (spine specialist and pain specialists) state I have this as the surgery did not take care of all parts of my problems.

I hope and pray you can find the right doctor to help you. please keep us posted what you find out. take care - Joy
 
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Chris_WebMD_Staff responded:
Hi, I'm glad you found us. I hope you find some support here. Please know that hurting yourself or suicide is never the answer. (((hugs))))
Please keep these Crisis Center Links near you should you feel the need to reach out for assistance.
Please keep reaching out for doctors until you get the help you so much deserve. I know others will support you here as well, and I wanted to welcome you and remind you that you need to work this through.
Chrissy~ WebMD Staff

Confucius Say;
Our greatest glory is not in never falling, but in rising every time we fall.

 
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trs1960 responded:
Taking pain meds until your pain is to severe for the meds to work is like slowing down as you aapproach a steep hill with a heavy trailer going very slowly and then complaining your truck is under powered. Your opening statement has you telling the doctor you will not take the meds as prescrebed, yet then you complain they refuse to see you. If I told my doctor I will not take this medication as precribed, I have a better Idea. He whoulld refuse to see me also. It is critical that pain meds are taking as prescribed around the clock. If you're unwilling to follow the doctors orders they will unlikely work with you.

Taking opiad pain meds as needed instead of by the clock dimminishes their ability to work and drastically increases your chance of addiction.

A pain managment Dr is a doctor of almost any background (commony anelesthesiologists) but can come from almost any licemsed MD such as a psychiatrists: http://en.wikipedia.org/wiki/Physiatry

Here's WebD's definition of pain managment: http://www.webmd.com/pain-management/default.htm

Heres a good write up in Wikipedia:
http://en.wikipedia.org/wiki/Pain_management
As you work your way down it describes the medical specialists that become Pain Managment doctors, the fellowships and other paths to become a good pain managment doctor. It discusses medications and also physiatrists (Doctors of physical medicine).

You need to keep whichever doctor you chose in your trust otherwise they will never work with you as you become a huge liability to them. Beleive it or not they risk their license when they write you scripts for long term use if drugs that most doctors wouldn't touch with a ten foot pole.

Lear how to help yourself first. I found reading helped me to relax and to understand more about pain.

Good luck


Tim
 
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babes55557 replied to trs1960's response:
Hello, I appreciate what your trying to tell me about medications if i would take them around the clock as you said I would run into other problems my stomach has been swollen from taking to many medications now. I'm on at least 20 meds for heart reason and I know the bloating i'm getting is from the meds. I'm not a doctor but to me taking 20 med a day is ridiculous. I have been really depressed because when I try to walk anywhere usually the only place I can even walk to is the gas station across the street I'm crying walking home because I hurt so bad thats when I tell myself this is it i'm not living like this. My doctor orderd me a scooter but that it self is taking 3 months to get that chair could give me some life back I want to go to the YMCA about a mile from my house. They have a swimming class for senior and I've been there and it really helps but to get there is hard. I really need a PCA because I don't think I take my meds right I think because there so many and they keep changing the brand name I get confused. Well anyway taking meds wrong in it self can be dangerous so a PCA is needed or a Social worker to help me. Put I can't get anyone, at least i don't know how to go about it. Well anyway believe me taking meds around the clock isn't the problem i'm concerned about its trying to get off most of my med and getting my body back to size I can't stand the weight I've gained its putting pressure on my back and its ugly to me. I have all kinds of reasons right now not to live. Thank you for caring to write me and really meant allot to me your responds. Dianna
 
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bj1208 replied to babes55557's response:
hi Dianna -

I thought I would give you some websites that can help you with some of your problems with taking medications correctly etc.

there are a lot of resources out there - here are some:

http://www.usa.gov/Topics/Seniors.shtml

http://www.eldercare.gov/Eldercare.NET/Public/Index.aspx

http://www.benefits.gov/

this is just a start - all I did was go to: GOOGLE.COM
and put in: assistance for seniors or whatever you are looking for -

hope this helps - please keep us posted - God Bless - Joy
 
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babes55557 replied to bj1208's response:
Hello bj1208, Thank you for everything!! I spent the morning calling the Mayo and Another Clinic that I set a appt. with but couldn't get in until Aug. 15 which seems like an eternity when your in pain. And then I also received a call from a doctor I went to for help about a month ago he ordered test on my legs and found out I had blockages well his office wanted to set up a appt. to come in so the doctor could discuss the test with me. I started crying of course and told the nurse I was so depressed and that i didn't think anything would work beside its my back causing me all the problems well she called a ambulance and they came and took me to the ER they where so nice they gave me something for pain and the Lady doctor said she believes that I hadn't been treated or taken care of and she believes when people need the medication they should get it. Of course the Male doctor didn't believe in medications and I told him that i was sick of hearing that because why would a person come in there crying when there in so much pain and lie about it. Beside i'm 59 who cares at this point if I would die from medications and least I wouldn't die suffering like I am now. I'm on so much meds for other reasons they have know problem mixing all of those meds to me i'm surprised i haven't overdosed on them. Well they released me and I just cried I wanted to stay to make sure I could get the right help but yet I was scared they might throw me on some psy Unit and they would absolutely be terrible I have had some bad experiences with the psy unit 9 years ago I tried killing myself and the hospital tried to commit me because I tried too many time before when I was younger. I guess thats why i'm writing is i'm real compulsive and when something is in my head I follow Thur at times., I've gotten allot better at controlling that because of my 2 beautiful grandchildren that love me very much. Please don't think i'm a nut because i'm not I've suffered from depression all my life due a eating disorder and at 59 I still worry about all the weight i'm gaining i'm bloating up like crazy and to think that i'm still depressed because of weight kills even me. Well because of my back i can't walk and exercise and i know thats why i'm gaining. I just don't know myself what i want. Do I or do I not want to live I don't know anymore. I won't live with this pain and I won't live if I get any fatter. And I know one could never prevent me its my choice. Beside no one does anything for the elderly but throw them in a home and drug them up what a life is that can anyone answer that one for me. I always said if i had the money I would open a 100 bed home only have the best people working there, there would be know medications to put these sweet innocent people in a zombie state. They would have activities all the time. Well I think you got the general idea. I'm sorry if i drifted away from my back pain but until I see the specialist next month and he has any answers my hope is weigh down below still. But you are all lovely people on here and Thank you again for helping me making it thru another day.
 
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bj1208 replied to babes55557's response:
hi Dianna - don't worry about drifting from your back pain - a lot of us go thru depression because of our back pains - our lives have changed, drastically!

I used to be a manager of accounting - having anywhere from 10-20 employees under me and I used to work 60 hours a week. My husband and I meet in Martial Arts about 17 yrs ago so we were both very active. then I had my back surgery in 2/08 and everything changed - at first i had applied for partial disability to help me during my recovery time as it would take about 6 mts to a year to recover from a fusion surgery. after my 3rd mth post op my pains came back worse than before the surgery and they kept getting worse. but my surgery was a success a far as removing the disc and putting hardware in - I fused and bone was growing back. but they couldn't do anything for the back pains or the nerve damage in both legs and so I became permanently disabled - and that was a shock for me!! LOL

anyway, I have a wonderful husband and between the 2 of us (2nd marriages for both) we have 6 grandkids - so having all this is what helps me get up each day and face it with a smile. my oldest daughter has 2 boys and they are both Autistic and she just found out about a 2 yrs ago she has MS and epileptic seizures. I also found out that back problems run on my mom's side as all her brothers and sister have bad backs.

you have 2 beautiful grandkids that area already your support and happiness - keep that thought and that will help you get thru the hardest times and I'm sure you have family support too. we are a support group and sometimes we need to vent -
keep us posted how ur doing - take care - Joy


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