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Ketamine Infusion
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bishytheo posted:
Was diagnosed with Fibromalgia about 6 years ago then I had L4/L5 fused 2 years ago, since then my pain has continued and to me has gotten worse. I am presently on Oxycontin 30mg x 2 daily, Lyrica 150mg x 2 daily and Cymbalta 60mg daily. Am enduring a lot of side effects from these tablets, the worse being suicide thoughts.

My Pain Management Specialist has said that most of the side effects are coming from the Oxycontin and that I do need to get off it. He has suggested that I have "Ketamine Infusion" with added help with withdrawals from Oxycontin. He said I would be in hospital for 10+ days.

Has anyone heard or have had this treatment?
If nothing else, coming off the Oxycontin would be good "BUT" what about the extra pain that Oxycontin is controlling. Yes, I am extremely scared.

Hope that someone can give me some advise please.
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bj1208 responded:
hi and welcome to the support group -

yes I have heard of this procedure - though we have not heard from anyone after they'v had this done especially if they did not have any complications as they pretty much return to their 'normal lifestyles'! LOL

I have found a couple of articles on the treatment and thought it may help you to understand it fully. As for coming off Oxycontin u really need to speak to your doctors - pain doc etc who is treating you for the Fibro and see what they say.

http://www.rsds.org/3/treatment/ketamine.html

and

http://www.ketaminetherapy.com/

all I did was used google.com and entered the treatment and reviewed the sites given - there are more so you can do some research on that -

please let us know what you decide and how the procedure went. take care - Joy
 
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trs1960 responded:
They use a lot of Ketamine in Germany for chronic pain treatment. hey're way ahead of us and they actually use Ketamine to induce a coma. They bring you out and often times the pain centers will reset while in the coma.
Lots to study on this.
 
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bishytheo replied to bj1208's response:
Thank you Joy, for your welcome and your information. I have searched with Google and saved a few to read and read again.
To be honest my chiropractor told me not to have the fusion, but as the surgeon said, one more fall and L4 could slide right off L5 and then I would be in big trouble. Didn't put a lot of thought into it and had the fusion, now I am regreting it.

So, this is going to get a lot of thought. I know it isn't as big a thing as the fusion. I have to wait for at least another 6 weeks, until my grandson's other Nan comes back from holidays.

And, yes I will definiately let everyone know whether I do or don't it and how I go with it.

Jan
 
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bishytheo replied to trs1960's response:
Thank you TRS1960. I did read about Ketamine and a coma, in one of my search results.

But, didn't find anything about the success rate of it.


Jan
 
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bj1208 responded:
Hi again, Jan!!

I got to thinking bout the success rate of Ketamine treatments and realized the sites i gave you were more from Doctors, etc.,

I did do a search for success and here's a site where people have asked and responses etc.,

http://www.mdjunction.com/forums/reflex-sympathetic-dystrophy-discussions/medicine-treatments/80804-ketamine-therapy

and

http://www.rsdhope.org/ketamine-articles.html

http://neurotalk.psychcentral.com/archive/index.php/t-113402.html

and I found one on rehab for ketamine - guess with any other meds addiction may happen.

hope these help!! take care - Joy
 
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bishytheo replied to bj1208's response:
Thanks again Joy, all sites seem to have a little bit more info. to write down.

Thanks for these new ones.

Take care and stay safe
Jan
 
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bishytheo responded:
9 months later and I still have not had the Ketamine Infusion BUT a lot has changed in the last 6 weeks.
My GP actually listened to me saying for the second time that I had cold feet. Not a great pulse in my left foot and he couldn't find one at all in my right foot.
To cut it all short, Tuesday last week I had Angioplasty to both my legs. Findings = 50% blockage in my right Iliac artery and 2 blockages 50% and 70% in my left Iliac artery. Iliac arteries are the top of the arteries to the legs just after the Aorta divides.
Amazing results in a 1/2 operation (which I was awake and watched the whole thing) went from 9/10 level of pain and very cold feet to 1/10 level of pain and lovely warm feet. Am I happy?????
Nearly 2 weeks later, the horrible leg pain and cramps have become a thing of the past. Unfortunately, I still get days where my feet are cold, but I can live with that.
Now, GP is talking about me coming off Oxycontin. I have opted to start by coming off the Lyrica first then the Oxycontin.
Can't wait to be off both these nasty medications but greatful for the help the Oxycontin has given through all this.

Advise: Be aware of the little changes to your body and make sure that your doctors have their "listening" ears turned on.
3 years of Oxycontin for back/leg pain which was not there grrrr.
 
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trs1960 replied to bishytheo's response:
As far as I know the ketamine induced choma is only being done in Germany. It is not FDA approved here in the states. There may be a ketamine procedure I do not know about though that is performed here in the states?
 
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bishytheo replied to trs1960's response:
Thanks TRS1960 I live in Australia. Only a few specialized hospitals here do a type of "induced coma". You go in for 7 to 10 days, in their Intensive Care Unit and they give you the Ketamine Infusion.


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