New Member
dfoxii posted:
Hello.
I am new here and just wanted to say hi, let you know about me, and ask a question.
I am 31 and have Parkinson's disease. Because I wasn't taking my medication I slipped and fell out of the shower four years ago and injured my back. I injured my lower back and have sciatic nerve issues which causes pain all the way down my right leg. I have three bulging disks and other pain they can't diagnose, but think it's Central Pain Syndrome, which is common amongst Parkinson sufferers. For the first 9 months after I injured myself my PCP said I had growing pains and wouldn't do anything for me until I made her cry and order an MRI and that's when they found the issues. For those 9 months I couldn't even get out of bed. I ended up switching PCPs several times for different reasons ranging from not wanting to do anything other than prescribe meds to wanting to take me off meds which are the only things that make life even remotely livable. They put me on percocet 5mg four times a day to start. I have tried everything from physical therapy to various injections and nothing has helped. A few weeks ago I saw a back surgeon but was told there isn't anything they can do. I am now on 10mg percocet 6 times a day along with 5mg percocet three times a day and that is no longer working. It only lasts a short while and hardly does anything for the pain. Even when I take pain meds that work, I can hardly do anything because the pain is just so extreme. I have been out of work for the last four years, and as is so common, have had a long hard fight with disability and still have had no luck yet.
My question is about longer acting pain meds. My doctor has talked about them the last time I had an appointment, but we haven't made any decisions. I was just wondering what experience people have had switching to a longer acting pain med, what kinds they have taken that work for them, and any other information you want to impart. The only one I did try was methadone 5mg three times a day with three 5mg percocet for breakthrough pain and it didn't work well, made me very constipated, sick, and tired.
Thanks for any comments!
-Dfoxii
I am new here and just wanted to say hi, let you know about me, and ask a question.
I am 31 and have Parkinson's disease. Because I wasn't taking my medication I slipped and fell out of the shower four years ago and injured my back. I injured my lower back and have sciatic nerve issues which causes pain all the way down my right leg. I have three bulging disks and other pain they can't diagnose, but think it's Central Pain Syndrome, which is common amongst Parkinson sufferers. For the first 9 months after I injured myself my PCP said I had growing pains and wouldn't do anything for me until I made her cry and order an MRI and that's when they found the issues. For those 9 months I couldn't even get out of bed. I ended up switching PCPs several times for different reasons ranging from not wanting to do anything other than prescribe meds to wanting to take me off meds which are the only things that make life even remotely livable. They put me on percocet 5mg four times a day to start. I have tried everything from physical therapy to various injections and nothing has helped. A few weeks ago I saw a back surgeon but was told there isn't anything they can do. I am now on 10mg percocet 6 times a day along with 5mg percocet three times a day and that is no longer working. It only lasts a short while and hardly does anything for the pain. Even when I take pain meds that work, I can hardly do anything because the pain is just so extreme. I have been out of work for the last four years, and as is so common, have had a long hard fight with disability and still have had no luck yet.
My question is about longer acting pain meds. My doctor has talked about them the last time I had an appointment, but we haven't made any decisions. I was just wondering what experience people have had switching to a longer acting pain med, what kinds they have taken that work for them, and any other information you want to impart. The only one I did try was methadone 5mg three times a day with three 5mg percocet for breakthrough pain and it didn't work well, made me very constipated, sick, and tired.
Thanks for any comments!
-Dfoxii
2 Replies |Watch This Discussion | Report This| Share this:New MemberHello. <br /> I am new here and just wanted to say hi, let you know about me, and ask a question. <br /> I am 31 and have Parkinson's disease. Because I wasn't taking my medication I slipped and fell out of the shower four years ago and injured my back. I injured my lower back and have sciatic nerve issues which causes pain all the way down my right leg. I have three bulging disks and other pain they can't diagnose, but think it's Central Pain Syndrome, which is common amongst Parkinson sufferers. For the first 9 months after I injured myself my PCP said I had growing pains and wouldn't do anything for me until I made her cry and order an MRI and that's when they found the issues. For those 9 months I couldn't even get out of bed. I ended up switching PCPs several times for different reasons ranging from not wanting to do anything other than prescribe meds to wanting to take me off meds which are the only things that make life even remotely livable. They put me on percocet 5mg four times a day to start. I have tried everything from physical therapy to various injections and nothing has helped. A few weeks ago I saw a back surgeon but was told there isn't anything they can do. I am now on 10mg percocet 6 times a day along with 5mg percocet three times a day and that is no longer working. It only lasts a short while and hardly does anything for the pain. Even when I take pain meds that work, I can hardly do anything because the pain is just so extreme. I have been out of work for the last four years, and as is so common, have had a long hard fight with disability and still have had no luck yet.<br /><br />My question is about longer acting pain meds. My doctor has talked about them the last time I had an appointment, but we haven't made any decisions. I was just wondering what experience people have had switching to a longer acting pain med, what kinds they have taken that work for them, and any other information you want to impart. The only one I did try was methadone 5mg three times a day with three 5mg percocet for breakthrough pain and it didn't work well, made me very constipated, sick, and tired.<br /><br />Thanks for any comments!<br /><br />-Dfoxii
lnsmith1084 responded:
hi dfoxii! i dont have any amswers to your problems as i am to a sciatica suffer, but i wish u all the best of luck in your journey to find relief. this has been a miserable 3 months on my part, i couldnt imagine 4 years! my prayers r with u!
-lnsmith1084
-lnsmith1084
Report This| Share this:New Memberhi dfoxii! i dont have any amswers to your problems as i am to a sciatica suffer, but i wish u all the best of luck in your journey to find relief. this has been a miserable 3 months on my part, i couldnt imagine 4 years! my prayers r with u!<br />-lnsmith1084
bj1208 responded:
Hi Dfoxii and welcome to the support group -
sorry you are having so many issues with your back. I have a question - have you seen a spine specialist? either a Orthopedic Spine Specialist or Neurosurgeon Spine Specialist? also, seeing the right kind of pain management clinic is vital - I see a PHYSIATRIST Pain Doc and he is great - they go deeper into pain management control based on patients needs -
http://www.spineuniverse.com/treatments/what-physiatrist
You can click on my name or pic and read my story -
I am concerned about the percocets you are taking - are these with Tylenol in them? if it is you are taking way too much Tylenol - and yes any pain meds taken for long periods of time will cause constipation. Getting stool softeners will help, Mirolax, or a mild laxative will help.
be sure you are seeing a spine specialist regarding the bulging discs as these are pressing on the nerve roots causing the pains. the pain clinic can go over your treatment plans and can discuss alternatives to treatments.
Hope this helps - keep us posted -
sorry you are having so many issues with your back. I have a question - have you seen a spine specialist? either a Orthopedic Spine Specialist or Neurosurgeon Spine Specialist? also, seeing the right kind of pain management clinic is vital - I see a PHYSIATRIST Pain Doc and he is great - they go deeper into pain management control based on patients needs -
http://www.spineuniverse.com/treatments/what-physiatrist
You can click on my name or pic and read my story -
I am concerned about the percocets you are taking - are these with Tylenol in them? if it is you are taking way too much Tylenol - and yes any pain meds taken for long periods of time will cause constipation. Getting stool softeners will help, Mirolax, or a mild laxative will help.
be sure you are seeing a spine specialist regarding the bulging discs as these are pressing on the nerve roots causing the pains. the pain clinic can go over your treatment plans and can discuss alternatives to treatments.
Hope this helps - keep us posted -
Take care~~
~~ Joy ~~
~~ Joy ~~
Report This| Share this:New MemberHi Dfoxii and welcome to the support group -<br /><br />sorry you are having so many issues with your back. I have a question - have you seen a spine specialist? either a Orthopedic Spine Specialist or Neurosurgeon Spine Specialist? also, seeing the right kind of pain management clinic is vital - I see a PHYSIATRIST Pain Doc and he is great - they go deeper into pain management control based on patients needs -<br /><br /><a rel="nofollow" href="http://www.spineuniverse.com/treatments/what-physiatrist">http://www.spineuniverse.com/treatments/what-physiatrist</a> <br /><br />You can click on my name or pic and read my story -<br /><br />I am concerned about the percocets you are taking - are these with Tylenol in them? if it is you are taking way too much Tylenol - and yes any pain meds taken for long periods of time will cause constipation. Getting stool softeners will help, Mirolax, or a mild laxative will help.<br /><br />be sure you are seeing a spine specialist regarding the bulging discs as these are pressing on the nerve roots causing the pains. the pain clinic can go over your treatment plans and can discuss alternatives to treatments.<br /><br />Hope this helps - keep us posted -
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