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New and Need HELP
Msipgirl posted:
I had some sort of injury in May that caused sciatica in my right hip & leg. Drs thought it was a herniated disc but could never get the pain to centralize. After ct, MRI, myelegram I had a second opinion. I was beginning to loose function and feeling in my right foot. Dr recommended surgery and I was ready. He knew there was an impingement on the right side at L5-S1 but was not positive what was causing it. Surgery on October 17. I had ruptured the tendon that runs right next o spine and was strangling my S1 nerve. I felt great after surgery. Most all of the feeling in my leg returned except or some numbness in my foot. Around the 6 week mark I began having sciatica symptoms on both sides along with lower back pain. Had another MRI that showed my S1 nerve had moved right up against my L5 vertebra on the outer edge of the white protective exit sheeth?? Appears that once I would sit or stand the S1 nerve would immediately be pinched.

I am now having bladder symptoms that are similar to bladder infection but not one. Uro-Gyn says its nerve related pain and been doing installations to numb the pain and stp the spasms. She has scheduled me with a Gyn that specializes in nerve entrapment issues. Meanwhile I contact my neurosurgeon and he seems very unconcerned about bladder symptoms and recommends nerve conduction study and EMG.

I am currently taking neurontin 3x's daily that s just taking the edge off pain. Spending most of my time in bed.

My question is 1- has anyone ever heard of nerve root moving to edge? I do have picture to prove it. 2- I have yet to see anyone say that nerve conduction study and EMG ever helped anyone.

Please let me know if anyone has heard or experienced anything like this and any suggestions or resources would be appreciated.
jselleck responded:
That's new to me, but wish you luck in getting a proper diagnosis and treatment. Staying in bed plus being in pain is never fun. Dave might know something. He's kinda the expert around here. Hopefully he'll see your post soon. Oh, and don't be afraid to get a second opinion if necessary. Sometimes that's the best thing you can do.

bj1208 responded:
Hi Msipgirl - welcome to the support group

Hopefully this will help -

yes nerve roots can move - sometimes they will move outside of the areas around the hips etc., I had this in both my hips from my blown disc.

EMG and Nerve Conduction Test - this is not a treatment but rather a two part test to check to see if there is any nerve damage in arms/legs. I'm a pro at this as I have it done every year to check the severity of nerve damage in both my legs (click on my name or picture and read my story).

I would suggest that you get a couple of opinions from both Orthopedic Spine Specialist and Neurosurgeon Spine Specialist. You may need to have current MRI/CT Scans done just to see if there is anything new going on with your spine as there could be changes since your surgery.

I would also discuss the issue of the bladder problem with your primary doctor. you should be tested for Cauda Equina Syndrome (see link)

it's very important that you discuss this with your primary care doctor and be tested. If you do have this then your doctor will determine the right kind of specialist for you to see.

Hope this helps - keep us posted - let us know if you have other questions~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
Msipgirl replied to jselleck's response:
Thanks for the reply! I am definitely not opposed to getting a second opinion. I just spent so much time with my back last year I am exhausted. Between pt, cortisone injections and surgery I was sure hoping for a better year.
Msipgirl replied to bj1208's response:
Thanks for the info! I see that you are dealing with your entire spine in pain. I am so sorry. I too can remember several incidents younger in life that could have contributed to the instability of my lower back. I was bucked off a horse and hit my lower back and also slipped and landed right on my tail bone. I am a group fitness instructor and this has brought my teaching to a halt and I am very disappointed.

I haven't seen an orthopedic dr regarding all of this. Had not even thought of it. I will also bring this up with my primary.

With you having the EMG and nerve conduction study done each year, does it provide enough information to go through the test? That is my concern. I have read where so many people say they have gotten inconclusive results and its not worth the agony of the test.

I start with a new pt on Monday. He seemed very interested in looking at my recent MRI.

Thanks again!
bj1208 replied to Msipgirl's response:

i have to have it done as i have permanent nerve damage in both legs. the test can show which discs are causing problems by where the pains etc show up on the legs i.e., if on the outside of the leg, inside of the leg, top or bottom of foot. a printout can determine this and also the sounds that are made when the electroid needle is inserted (mild discomfort).

there are times where some test results do not show any nerve damage but symptoms do show. there is another test, Myelogram which may show nerve impingement (not necessarily nerve damage) but rather where the nerve could be pinched. Now if you ask me I would rather have the EMG and Nerve Conduction Test done!! LOL the Myelogram test is done where they inject dye into your spine and rotate you on a table and take pictures. then when that is done they send you right over for CT Scan. When the dye is injected and it does into the legs boy does it hurt - I cried each time I had one of these done.

I hope this helps - let me know if u have other questions~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~

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