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Mystery back pain
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Lizv4 posted:
If anyone can help me!!! I'm a 33 year old woman That has no idea what is happening to her body. I was told by my parents I was born paralyzed from the waist down. I remember some things about me growing up going back and remembering that I used to drag myself to get around. Elementary school came around and I remember possibly in the second grade I was already walking and I would get sent home with braces on my legs. Time went on and my legs got better. In my teenager years I remember having a lot of trouble with my niece popping out. At 15 I got pregnant have my daughter at 16. I had so much trouble with pregnancy. I continue to get better. After I have my second child I noticed that every time I got pregnant had severe pain and I started having surgeries on my abdomen. I had for my appendix removed, gallbladder, cyst removals. At my 3rd Pregnancy I lost the Baby. I had a tubal pregnancy. 4th Pregnancy trouble with pregnancy 5th child trouble with pregnancy I was told at that time my Uterus was weak and that I had Endometriosis. I was 15 with my first pregnancy and also had trouble of anemia. After years of pain I decided to have a hysterectomy. The doctor said it would fix my pain problem. After surgery I ended up getting a blood clot on my leg traveled up. Had to get 2 filters put in an blood thinners a lot of things happened after that with nurse care and landed me in the hospital for over a month. It's has been two years now and I noticed that there has been so much other pain and I'm not sure this is related to the surgery or with my past. Doctors have diagnosed me with lupus and arthritis. They did damage my nerves because Bags had to be put into my kidneys. I do understand that some of the back pain comes from that but approximate 3 months ago I started feeling severe pain on my lower back into my tailbone and down my legs. I'm constantly in pain it's a throbbing sharp pain and numbness and I am an little scared that it does have to do with my birth paralyzation. I am tired of taking so much medications. I'm going to so much pain and it seems like nothing that I'm taking is helping so I'm not sure of is a wrong diagnosed. If anyone out there knows what is happening to me or has experiences please respo.
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bj1208 responded:
Hi Lizv4 - welcome to the support group -

first - just want to say I'm so sorry you've had to endure all that you did - and starting at a very young age.

second - I'm not sure what type of doc's you've seen lately but it may be a good idea for you to see a good spine specialist - either Orthopedic Spine Specialist or Neurosurgeon Spine Specialist. Be sure to take all your medical history. During their examination they will determine what types of tests needed to find out what is going on - those may include X-ray's, MRI's, CT Sans. Spine Specialists are the only ones that can read spine film reports accurately. Once that is done they can let you now what the best treatment plan is for you.
This does not necessarily mean surgery (always the last resort) but could entail pain management, physical therapy and/or chiropractic care.

Since you've had a lot of medical issues it may be a good idea if you were to go to a university hospital as they are a teaching hospital and would have the most up to date diagnostic equipment and treatment options.

There could be numerous reasons you are having these pains and the only way to get a proper diagnosis is to see a spine specialist.

please keep us posted what you find out~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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Lizv4 replied to bj1208's response:
I am already seen a urologist, orthopedic, general doctor, Pain specialist, Oncologist, And a OPY. Everyone keeps thinking they know what the problem is and they diagnosed me with something but is not making anything better for me. That's why I don't know what to do and it scarce me to take all this medicines and is not the correct diagnose.I'm afraid that the medication is going to hurt me instead of helping. But then again if I stop taking it and it is what it is. All that I can say is that I am afraid because being in the hospital and the nurse care not taking responsibilities for the extra things that I went through without having to Them not paying for it was very bad for me emotionally because now I am the one that is Stuck with all the bills and I don't want to have to go through that anymore. If the doctors hurt me worse, that is what I'm afraid of:(
 
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bj1208 replied to Lizv4's response:
HI Lizv4 -

what tests have been done? do you have any of the written reports? it may help us to know what some of those are -

thanks~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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Lizv4 replied to bj1208's response:
I don't have any but I can ask the doctors for them.
 
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bj1208 replied to Lizv4's response:
Yes please see if you can get these as they are your records - you should always get copies of all MRI/CT Scans etc both the film and written reports - keep everything - LOL my folder is over 6 inches thick and I also have a separate folder with all my film reports!!
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~


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