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need to make an informed decision about SCS surrgery
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jcruz42682 posted:
I most admit after reading peoples discussion about the scs, I am truly afraid. I am 30 years old and have gone through multiple back surgeries. The last one was a fusion done at the L5-S1 level. I felt immediate relief after the surgery, that was back in Oct 09. My pain has come back and has forced me to leave work again. My doctor said that I was an ideal candidate for the SCS trial. I did it and saw much improvement at the end of the week. I am scheduled for the permanent SCS next Tuesday.
So far, all I have read are horror stories. Can someone post anything positive? Looking for honest stories.
Up to date I have tried everything go get my life "back to normal", before my injury. Have tried accupuncture, physical therapy, water therapy and have had little to no relief from that.
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bj1208 responded:
Hi Jcruz42682 -

I have a friend (actually used to be an avid member here) that has, I believe, both the SCS implant and the pain pump implant -

I will see if I can get a message to him to post here - I can tell you that for as long as I have been a member here (2006) I have
seen quite a few new members post what a difference the SCS has made for them - one girl wrote that it actually reduced her pains by 40% and that's a big difference where others were more close to 25%.

Have you tried to ask your surgeon if you could speak to those that he has done this to where they had good results? most surgeons would be happy to do so so don't be afraid to ask.

Best of luck~~Keep us posted~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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trs1960 responded:
I've read horror stories and I've read proes regarding the treatment. It sounds like you are an ideal candidate.

As for being afrains, you should be, it's natural. That being swid it's crucial that you have faith and a good relationship with your doctor. It sounds' like he's benefit with his previous work. That about the best reference you can get.

Best of luck. God (and Pope Francisco) bless you.

Tim
 
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kenny63 responded:
Hi jcruz42682, I have a Boston Scientific SCS implant. I have had it for over a year. Initially I got 85 % pain relief. Because I was feeling such relief I went back to work full time. My work requires that I walk ALOT all day. Well, about a month ago, I have begun to experience more pain. I went to my pain doc and the representative from Boston Scientific and they increased the programs and levels of intensity. It has helped, but as I was told, stenosis and degenerative disc disease don't improve with age, so I would say I get about 75 % pain relief along with now having to take 5 mg. of Norco two to three times a day--some times I don't have to take any. I highly recommend the scs based on my experience. I wish you could have your life back to normal but sadly back pain has become a part of our lives. I am sorry you are in pain and I wish I had the ability to make it go away, but please know I will be thinking about you and wish you good luck!
 
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pooh5724 replied to kenny63's response:
Hi kenny63....could you explain to me please, what this SCS implant actually is, involves what, and any other info on it? As I am currently waiting on disability to be more financially secure, as my surgeon wishes, before I have a very major back surgery. It will involve fusions and a lot due to my severe disc degenerative disease, resulting in severe scoliosis and my bottom 5 discs are basically gone as he showed me in my ex-rays and mri's. Is this something can or is, done to help ones after a back surgery, as I know one lady that has some sort of an implant, for releasing pain meds to her spine, but was told it was an implant folks only get after back surgery. Any info you have would be quite helpful. I am new here, and just posted also, a long post in questions of info on inversion tables too. Thanks so much Kenny!!!
 
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bj1208 replied to pooh5724's response:
Hi Pooh5724 -

I saw your post and thought I would give you some sites to view so you know what the SCS (Spinal Cord Stimulator Implant) is and what it does.

Some surgeons may try this either before or after surgery to see if it does benefit the patient. Hope this helps~~

http://www.spineuniverse.com/treatments/spinal-cord-stimulation-risks-benefits

http://www.spine-health.com/video/spinal-cord-stimulator-implant-video

these are just a few of the sites available for research - let us know if you have other questions.

Also before having any surgery it's best to get a couple of opinions from both Orthopedic Spine Specialist and Neurosurgeon Spine Specialist. They are the best at diagnosing and offering the best treatment options and a must for spine surgery.

Keep us posted~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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illinoismedcannmike responded:
Good Mornin fellow backie, long time no chat. most has been well on this end, just working on getting a Medicinal Cannabis bill passed here in Illinois and let me tell you, dealing with legislators compares to what we deal with regularly, they have no clue about medicinal cannabis until it effects someone in their family,
TO THE SCS~~it is a "tool" in pain management for back pain. NOTHING works 100%, but, with the SCS, a morphine pump installed inside me, and using cannabis medicinal has improved my quality of life 300% from the three years spent on OXYCONTIN in a hospital bed. i have attempted each therapy alone, and FOR ME, this is what i found works best, i don't get "high" but this palliative care allows me to function with no nearly the diminished capacity as the OXY's. do yourself a favor, and i understand how tough it is, get off the oral opiates (or limit as much as possible) if i can answer any questions please don't hesitate~~rwa420@yahoo.com
 
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kenny63 replied to pooh5724's response:
Hi Pooh5724, So sorry not to have gotten back to you before this. I see you got some great answers tho. My experience with the implant was the trial implant and then to the surgeon implanting two leads up along my spine to an area above the damage. I have a battery implanted in my left hip area with a remote control. This control allows me to turn the stimulation on and off and control the intensity as I wish. When the battery in my hip gets low, as indicated by a scale on the remote, I re-charge the battery by attaching an externally charged charger. I have just begun to experience a continuous amount of pain since I last wrote, which is due to a further degeneration of discs and stenosis. I am to see my pain doc this next week, but I have found pain is decreased by my increasing the intensity of the SCS and taking more pain medication. If you go on the Boston Scientic site or look on any site that talks about spinal cord stimulators you can read and see about them. I don't know if your condition can be helped with a SCS but I would really ask your doctor about it in light of your state. I think the person who responded ( rwa420@yahoo.com ) really has the best response. I am so sorry I didn't get back to you sooner. Please keep in touch.


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