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InFUSE cervical
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dadsparkin posted:
Five years ago I agreed to a "Case Study" for a new procedure for a fusion in my neck. I was in extreme pain and could barely walk. I had good insurance, and on the cover of the booklet that the doctor gave me was a picture of a spacer that was able to swivel, but they said my insurance would not cover that one yet it would cover this "new" procedure nust made available to be placed in the neck. Of course, being in so much pain and being assured this would alleviate that pain, I agreed to go through the case study and do whatever it would take to do something about the "insane" amount of pain I was going through.

After the surgery, yes some of the pain subsided, but never once since did the pain go away. I have lived for the last five years in nonstop pain and misery. During the entire phase of the case study I LOUDLY complained of massive pain, swelling, stiffness, numbness, problems swallowing, etc. Every single visit they just smiled and said "everything looks fine". I even took my wife, we both cried, sobbed, and pleaded that someone please help.

Over the last few years it has become worse. I have lost a lot of my dexterity, I now have new sharp stabbing pains in different parts of my neck, It cracks, grinds, and pops when I move my neck. At times my neck swells, I get choked up sometimes when swallowing, and the pain has spread into my upper back.

The next fall after the surgery I signed up to go back to college to get a degree in engineering, as I was an electrician and contractor. Seeing as how I was told that continuing to work in that trade would lead to further fusions, I knew I had to re-train to be able to make a living. Even sitting at a desk working on a computer drives my neck and upper back into extreme pain. Actually, standing, walking, driving, laying in bed, sitting in a recliner, basically anything I do now causes pain. The only thing I have ever been able to get out of the doctors are more pain meds. I can't medicate too much because I can't afford to let my grades fall and lose scholarships.

My conclusion....for God's sake don't let anyone put that darn thing in your neck, because nobody seems to want to hear anything but success stories, and if yours is not you are just plain ignored.
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bj1208 responded:
Hi Dadsparkin and welcome to the support group -

Thanks for sharing your story with us. I am so sorry that you are in such pain.

I, too, had a fusion - Anterior Lumbar Fusion L5-S1 - my surgery, as far as the fusion went, was a success as all the hardware (plate, 4 screws and cage) were in place and I fused 100%. The surgeon stated he would fix my disc problem by this fusion - and that is true. The first couple of months I was doing really well - healed and my pains were going way down. Then after my 3rd month post op my pains came back worse than before the surgery.

I have been informed by numerous spine specialists and most recently my chiropractor, stated the reason for my pains are soft tissue and scar tissue. there isn't much that can be done - oh yes they can do surgery to remove the scar tissue but then it will come back so it's a viscous cycle to have this done. Thus I am 100% disabled because of my chronic pains, unable to walk/stand/sit etc for very long. and plus the types of pain meds I am on. (click on my name or picture and read my story)

I would suggest that you see a good PHYSIATRIST Pain Management Specialist where they can review, monitory and help with treatments.

http://www.spineuniverse.com/treatments/what-physiatrist

They go deeper into pain management based on patients' needs. They also have a set of great spine specialists that can examine and offer treatment advise.

I hope this helps - please keep us posted how u are doing and what you find out~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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Debsbears responded:
I read this and I am feeling bad for you. I had cervical fusion done at the front part of my neck I didn't have any discs at the 5-6 and 6-7 levels, but they used cadaver bones, attached with a metal plate and 6 screws, I healed fine.

I also had a 7 vertebrae cervical fusion done from C3-T1via the back of my neck, they used my own removed bones to aide in the bone growth. I wore a bone growth stimulator 4 hrs a day for 6 months to fuse everything together. I had to have all 10 screws and 2 rods removed just this past Sept. so my healing is still taking place. No InFUSE was used at all. I truly feel for you, I can't even imagine what you are going through.

On the TV lately InFUSE has been mentioned time and time again - there is a numbers of lawyers taking on cases such as yours because the InFUSE was not intended for use in the neck - and over time it causes the reactions that you are describing. There is a Nationwide lawsuit going on right now.

Google InFUSE lawsuit now, I will be praying for you no one should be in the kind of pain you are in caused by someone else's negligence.
 
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trs1960 responded:
Dadsparkin. I was going for my EE when I got hurt. I settled for my contracting license and just being a project manager. I had enough schooling in and I'm good (was)so good at my job my bosses always claimed me to be their EE, but that always bothered me as I didn't finish my degree.

I just want to say I'm very empathetic to your story. It's to the point that even sitting at a keyboard is impossible for any duration of time.

I didn't do the case study, my injury was too large of an area and too traumatic. I know what you mean about only wanting to hear good stories. I did call one of the centers and they laughed at me. They flat told me they wanted patients with a single disc so they had a good chance of fixing it with a fairy tail ending.

Best of luck,

Tim


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