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Scared in pain and have no clue what have of the med terms mean, please help!
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my86442 posted:
I was in a car accident in 2011, which led to compression burst fractures of T-4 and T-5. I had surgery a year later they put in rods, screws, a cage, and done a spinal fusion from T-2 through T-8. While testing before the surgery they found I also have osteoporosis of the spine, stenosis at multiple levels, degenerative disk disease and kyphosis. Anyway during surgery they found the spine wasn't straight and that it was worse then the MRI and X-rays showed. The Surgeon told my husband and family that he couldn't get the spine completely straight and the hardware could never be removed. I have been having lots of pain in the shoulders, chest, back, neck, hands and arms. At times my hands and arms feel like they are asleep and or I could be holding something in my hand and just drop it like my hand isn't even there. I can get cut doing dishes from a knife or burn my hands and not even feel it! When lifting my arms up or reaching something in my back, well the best way I can put it is, it feels as if something is pulling, snapping, and popping. I have been on Norco 7.5mg for 2 years now at first they were helpful but now they don't help at all. As of three weeks ago the doc decided to take the pain meds and told me to take Ibuprofen and over the counter Tylenol. Which I am having to take 1600mg of ibuprofen every 6 hours and 1500mg of Tylenol every 4 hours and that just puts me to sleep it does nothing for the pain. I think the surgeon believes it should all be better and refuses to listen. My back burns,pulls, feels like I am being stabbed from the inside out, and just plain hurts all the time, so I went back to my surgeon whom without any new x-rays or anything, in fact the last tests he done was 3 months after my surgery and they havent even tried sending me to physical Therapy. This same doctor now tells me they need to go in and take the hardware out. I reminded him of his previous statement about the hardware havin to stay in and he replays it will be fine. My questions are is this anywhere normal, what could happen if they remove the hardware? Will i be in worse shape then I already am? Should I even consider doing the surgery to have it removed? I am very confused and in so much pain that it effects everything in my life. Anyone with any Ideas? Anything Please!

My doc decided that I no longer need pain meds. So I havent taken Taken Norco for about 3 weeks now. I was told to take tylenol and ibuprofen. But as I am sure many know It doesnt even touch the pain it puts me to sleep but only for a few hours. After a few hours I twist an turn over in my sleep and the pain wakes me! I pulled the last Test results I had done,They state compression burst fractures at T-5 and T-4 with a 50 to 60 percent decrease in height at the mid to anterior aspect. Moderate anterior and posterior retropulsion. Retropulsion is noted to push back against the anterior aspect of the thecal sac. Causing stenosis of the thecal sac. There also is bone marrow edema of the mid substance of T-6 but no decrease in height There is moderate scoliosis in the mid and upper thoracic spine.Cervical spine and thoracic spine showed degenerative disc disease and disk desiccation at all levels. posterior disk buldging at multiple levels of the cervical spine and posterior osteophyte formation present with spinal stenosis! It drives me crazy and god forbid they have to try and help in someway. To be honest I just dont know what all this medical stuff means and no one wants to expain it. Is there anyone who can explain these results to me, what it means, what other problems can occur, and how it might be treated. My surgery on the thorasic spine has made it worse.
The surgery consisted of hardware fixation from T-2 through T-8. Titanium rods and screws, and some kind of cement stuff to give the burst fractures back its height! O and fusion at the same area.
As I said before I dont understand can anyone help!
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davedsel responded:
Hello and welcome.

I am very sorry to read about your accident and resulting surgery and pain.

Unfortunately, no doctor replies to these posts anymore. We are a support group comprised of lay-people who have more experience with back pain than we would like.

I think your best course of action would be to see several other spinal orthopedic surgeons and/or spinal neurosurgeons and get their opinion. Also, keep doing your research to understand your options as best as possible. Below are some links to websites with good information about spinal problems:

WebMD Back Pain Center: http://www.webmd.com/back-pain/default.htm

Spine Universe: http://www.spineuniverse.com/

Spine-Health: http://www.spine-health.com/

I pray you can get answers and relief soon.
Click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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my86442 replied to davedsel's response:
THANK YOU VERY MUCH!!! I appreciate the advice, I will do just that get all info I can find and look for more then one docs opinion!

MARY!
 
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musclepain3 replied to my86442's response:
I am very sorry as you met with an accident and suffred from lot of pain during surgery. Depending on the diagnosis, surgery may either be the first treatment of choice - although this is rare - or it is reserved for chronic back pain for which other treatments have failed. If you are in constant pain or if pain reoccurs frequently and interferes with your ability to sleep, to function at your job, or to perform daily activities, you may be a candidate for surgery.
 
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trs1960 responded:
Two things I would recommend that are not medical advice;)

1. If you can see a pain managment psychologist They can teach you to separate the somatic from psychosomatic pain and keep the anxiety from killing you!

2. There's a great book on Amazon called Pain, the science of suffering by Patrick Wall MD. It's a great read and should be mandatory reading for chronic pain patients. It gave me great insight into what pain itself was and why my brain makes it the no. #1 priority.



T
 
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my86442 replied to trs1960's response:
THANK YOU! I will have to pick up that book. I seen the pain management group on Thursday, so maybe they can help me deal with it!!
Thanks again, Your advice is such a big help. Honestly I am just at that point where I had no idea what to do or even what to think!


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