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Can't believe with all the technology, I have to live with the pain of scar tissue on the nerve stem!
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ReneeInTexas posted:
Hi, I'm new to this site and have been thru hell and back since B4 2010. L5 S1 disc was bulging 3/8 on my sciatic nerve. I had surgery in Dec 2010 and 3 months later I sneezed and my disc ruptured. I couldn't stand on my right leg. I crawled around my house until I had my second surgery. Now I'm suffering with scar tissue on my nerve stem. I had a stimulator implanted last Oct. Was doing great with it until 2 months ago. I'm having break thru pain. I have seen several neurosurgeons and the last one I saw by referral from my sons girlfriend, her mom works with one. Its sad when you learn that the surgeon who did your surgery couldn't pass his board cert. 3 times and was kicked out of several hospitals due to not passing. My days are spent in pain. No one told me that this was a risk. Everything has been a whirl wind of trying to make my life better and all its done is make my life worse! Is there anyone out there whom is going thru the same problems? Also, I would recommend research the risk and your Doc's. Mine was all for the money. Even the last 5 bucks insurance didn't pay!
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davedsel responded:
Hello and welcome.

I am sorry you are going through this. While I have never had spinal surgery, I have been managing moderate to severe chronic pain due to multiple spine problems for over 35 years. Also, I've done a great deal of research into spinal conditions and been a member of WebMD for over 10 years.

You have found out the hard way about the need to research your condition(s), possible treatments and getting multiple opinions before having surgery. Read through the Tip at the top of this WebMD Back Pain Community that lists the recommended steps for getting back pain diagnosed and treated. Within that thread are links to websites that have good information about back problems.

Are you on or have tried gabapentin (neurontin) or lyrica for the nerve pain? That is a common prescription drug for helping symptoms such as you describe. Have you seen a pain management specialist? The best are physiatrists, as they go deeper and offer many types of treatments.

I pray you can find answers and relief soon.
Click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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mogo51 responded:
Hi Reneeln
I am in Astralia and have a similar story to tell. My surgeon is highly regarded Orthopeadic surgeon, studied many years in US and is very good. Unfortunately they all have giant egos and do not give enough consideration to options or advising patients of the need to live cuatiously.
I had the same surgery, after 8 months told I could go back and play golf, bang out went the disc above. Vertebra collapsed, disc popped out and pushed on various nerves same as you - how unlucky were you that you just sneezed, but I have heard of that also.

I had another operation where they leveled it and pushed the disc back into place in a small 'cage', all secured by screws etc. Some early improvement but after a few months it stalled and I am going nowhere. Lots of sciatic and constant pain.
I wish I could give you some advice and hope, but I have 20 years of back pain, 4 operations in all. If you are being treated by Neurosurgeons as I was at first, not sure you are on the right track, better with Orthos, but in the end as you say it is all about the almighty dollar and nothing else matters.
 
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An_250887 responded:
Hello, I have a similar story and am sorry to hear you are going through post-op complications. I was told my surgeon was world renown, but found out later his reputation was suffering due to "his surgical approach does not work" and surgical intervention choices being made for patients based on "financial considerations" which led to being asked to leave the practice.
My suggestion would be to try a pain control clinic in your area. You will find some take the approach of doing nerve blocks ect. and some which offer monthly medication. You could try both types of pain clinics and see what works best for you. Many of these clinics have either physiatrists, neurologists or anesthesiologists. Since I had a very bad experience with a physiatrist, and they are one of the easiest residency programs to get in to (and they have low board scores), I PERSONALLY have a negative bias and go to someone in another area of practice. I have heard of others on this site who are extremely happy with the physiatry practice where they are a patient.
Best of luck to you.
 
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ReneeInTexas replied to davedsel's response:
Thank you. Yes I've been on gabapentin 800mg, Nucynta, and a med for muscle spasms due to waking 2-6 times a night with spasms and I do have a good PM Doc, My first one was a quack (which was a referral my surgeon) and hit a nerve during my second injection and really messed me up for months.
I was researching laser surgery for Failed Back Surgery Syndrome, and have found that is not a risk I'm willing to take. Acceptance is hard pill to swallow.
 
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trs1960 responded:
I think we all crawl from day to day. Nobody around me understands what it's like to have so much pain you get physically ill.

My last hope is a pain pump. I hope it will allow me to enjoy a few more years with my kids After that I don't know if there is anything important enough to fight this kind of fight.

Aristotle said that pains destroys those who suffer it. Not much has changed in 2300 years. I don't expect any miracles before i leave earth.

T
 
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ReneeInTexas responded:
Thanks to everyone for your stories and wisdom. Oh my, to hear your stories and the years y'all have suffered. Failed Back Surgery Syndrome is what they are calling my condition. Wow! It was 9 months before I learned this. I have also called the spine lazar institute to get information about the lazar surgery to get rid of the scar tissue. But the new surgeon suggested that was not the safest procedure to have done and some ppl are coming out in worse condition or paralyzed. Just trying to find a way to get off the meds and try to live a pain free life. Yeah right, With the nerve damage at the bottom of my right foot, as well as my leg (which makes driving and walking painful). Hope went flying out the window. My home fills like my prison. It's nice to find this community and ppl whom understand and can share there wisdom.
Thank you,
Renee
 
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An_250887 replied to ReneeInTexas's response:
Dear Reneeln,

I also fall under the generalized category of "Failed Back Syndrome". The feeling of my home is my prison is not easy to deal with and it is pretty standard to mourn the loss of many things from your former heathy life.
You did not ask for advice, so I hope this is o.k., but this is what has helped me cope through the difficult periods when I am stuck in my home. I assembled things I could do when I was homebound, but would still give me a sense of accomplishment. Getting things set up on days when you feel a bit better will make things easier when your pain level increases and you are couch-bound or bed-bound.
You will find many kind people on this site who will offer encouragement when the pain increases and it is hard to hang on to hope. It is simplistic, but I remind myself through every bad pain cycle, the pain will ease up and I just have to get through this rough spot. It may take weeks, months or longer, but after 25 years of chronic pain...this has always been true for me.
Take care.


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