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Myelogram/blood patch
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Yayyea posted:
Hey all first post sorta worried. Hopefully unnecessarily. I had a ct myelogram done last Thursday the 11th and all seemed fine.on Friday I started to notice a dizzy like feeling and when I sat up it got worse and felt like a squeezing/throbbing type pain. Stayed like this over the weekend and had a blood patch done on monday. the severe squeezing type sensation is mostly gone I feel like its still there a little bit and definitely still dizzy. I get shots of pain when I lie down it hurts in my ears and forehead and when I stand up it hurts around my head.

I also still have low back pain. I have a bulging disk pinching on a nerve and the MRI did nothing so the doc ordered myelogram which I didn't want to do but he convinced me. Showed nothing but lower back has hurt a lot.

My question is I keep reading about blood patch working instantaneously and while mine did I think to a certain extent I still can't sit up or walk around for any length of time. When doc did blood patch I asked him if he was putting in the exact spot but he said there was enough blood to where he didn't have to inject in the exact spot myelogram was done. He did it up higher.is that right? I assume he knows what he's doing but seems odd. I'm guessing the blood spreads out and clogs up each hole?

Also any experience like this for blood patch? Is this just waiting for csf fluid to get back to normal or something more serious?

Thank you for any help
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Debsbears responded:
Hi and welcome yes I had a lumbar puncture or should I say 3 punctures at one time because he kept hitting the bone. They told me to go home a lay flat for 4 hrs and that was it.

The next day I had an Drs. appt. but I ended up getting a headache that wouldn't quit unless I layed down went away almost immediately came back as soon as I sat up. Was told it was a spinal headache from the lumbar puncture and I needed to go in for a blood patch.

I went in and was told that sometimes it can take 2 patches to work, fortunately for me it only took one but my doctor had to put the blood patch in all 3 punctures because I was leaking spinal fluid.

You might want to ask if you can get another blood patch if the first one didn't work.
 
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Yayyea replied to Debsbears's response:
Thanks for replying. I feel like I need to mention that started an antibiotic last Friday for sinus so I'm aware it can complicate things further.but this is not a sinus headache. I have drainage down my throat but nowhere else so don't think it's csf fluid leak up there. I think it's mucus but not entirely sure but my sinuses do hurt

I talked to my orthopedist today and he suggested maybe another blood patch or to wait.he seemed to think first blood patch didn't work as well as it should or I just have to wait for the fluid to regulate again. Seems odd in this day and age we have just have to wait awhile to see what's wrong and for it to fix.
 
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Yayyea replied to Yayyea's response:
It seems to drain more when I lay down btw
 
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An_250887 replied to Yayyea's response:
Hello,

Unfortunately, you may have run into the dreaded "patient at home over the weekend" thing. Perhaps, a hospital in your area where your physician has privileges, may have a RN help line. Getting further information about palliative care and further instructions concerning signs and symptoms which need to be relayed to your attending physician would be helpful at this point.
Was any info thrown your way? Extra oral fluid or something?
If your symptoms worsen, do not hesitate to seek immediate medical help through the emergencey unit of your local hospital. Anesthesiology residents and the staff CRNA team, do far more blood patches than an attending physician, and you may have better luck with the second attempt at fixing your problem. Hope it doesn't come to this point, merely do not want you to go the entire weekend with any increasing symptoms and the "I'll tough it out" desire if you are getting worse. You know your body and are in the best position to know whether your symptoms are the same or increasing over time.
Hope things get better. Best of luck.
 
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Yayyea replied to An_250887's response:
Update: everything is still the same and my legs and arms are getting weak it seems.i first went to a doctor due to the. Disc pinching in my sciatic nerves and annoying my left leg. Now it's extremely weak.nt sure if its aggravating that or I just haven't walked in a week and a half really.

Lightheadedness and foggy feeling especially is still there. Arms are weak. Hurts to lay down as week cause I feel pressure in my face and forehead also ears and all around top of head. So frustrating especially since I didn't want the myelogram in the first place.guess I should've never shown up that's on me but didn't know this could happen for this long.

Have an appointment on Monday. No death grip headache but some shots of pain in different areas.what if its not a spinal leak but just things trying to get back to normal?also I get really hot sometimes.just brief periods of getting really warm. Is a blood patch dangerous if no leak?
 
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bj1208 replied to Yayyea's response:
Hi Yayyea -

I have read your story and the responses.

I think with your Monday appt I would ask to have either a CT Scan or MRI done to check and see what's going on.

Also, I have had several CT Myelograms - and it seems when they inject the dye into your spinal cord and move the table around to take the pictures it always seemed this irritated my back and legs where it would take a while to get this under control.

whatever tests and/or treatments they do it may be beneficial for you to obtain copies and seek another opinion from either a Orthopedic Spine Specialist or Neurosurgeon Spine Specialist.

Please let us know what happens ~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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Yayyea replied to bj1208's response:
Just got back and the doc who did the blood patch said he really thinks this will resolve itself so wait a few more days and if not then another blood patch. He also said not necessary for me to lay flat which I found weird. He admitted might be small week but he said moving around wouldn't make it worse. Any thoughts? Seemed odd to me
 
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debs_bears replied to Yayyea's response:
Yayyea, try laying down flat as soon as the headache comes, if it goes away fast that will give you the answer.

That is what I did and knew what the problem was. How long ago did you get the lumbar puncture?
 
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Yayyea replied to debs_bears's response:
I got the myelogram last Thursday had a blood patch this Monday. The intense squeezing headaches are gone I get the occasion headache I one spot on my head.main thing right now is vertigo/dizziness type stuff and foggy feeling, I think its honestly better but things are still moving and if I move my head quickly side to side back of my head is heavy.

I told the doctor who did the blood patch that all but the heaviness in the back of my head and he told me to wait a couple days. He said with no intense headaches he doesn't want to do a blood patch.
 
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Yayyea replied to Yayyea's response:
Hey all update I guess. I had a second blood patch done today and really no noticeable differences.sometimes I feel better but I still get some pains in top and near front of head. Doc said he never had to do more than two blood patches so hopefully it fixes itself quickly cause this fogginess pe feeling is ridiculous. Haven't been able to do anything in 2 weeks.
 
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Yayyea replied to Yayyea's response:
It's still going lol. Got pains in forehead and ears when I lie down mostly and today was terrible fogginess.cot cat scanned sinuses to make sure nothing was going on.doc doesn't think meningitis he had me tilt my chin towards my chest said that would hurt if I had meningitis. So I guess back to square one. Don't think I'm leaking anymore but I guess I could be. Hoping its nothing serious but trying to get MRI just in case


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