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back injury
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shellie_54 posted:
My injury has changed my life completely. Any pointers on how to start with changing my life after 58 years? Having a problem with that and want to hear from real people who have been through this. Not just doctors or people who don't understand.
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justjohntoo responded:
I'm 50 Shellie, I was 43 when my life changed for the final time from an injury. If you've worked in or out of the home your whole life and your injury is bad enough to have you to the point of almost being couch/bed ridden, then go seek a professional counciler if you can, it is REAL HARD and there is no quick fix. Your gonna get lots of advice from people who are not in your boat, graciously thank them and ignore it, they have no clue and may make you feel worse with their silly platitudes. I don't have a clean cut anwser except to say you will HAVE to reach ACCEPTENCE of your condition. I pray you don't deal with great pain on a daily basis as well because that will complecate everything. Truley, my best hopes for you. Don't let people tell you how you SHOULD feel. Listen to those who will accept how you DO feel.
Hang on,
John
 
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shellie_54 replied to justjohntoo's response:
I hear you. Yes, I am in pain 24/7. I had such an active life before, (get this) I went to get up out of a chair. It's all over now. I crunched a nerve and now have constant muscle spasms. But I am getting my second epidural in a couple of weeks. The first one after 2 years of having that burning pain took it away and gave me 3 months of no burning. I am trying to be positive now. Sometimes it works sometimes it does not. But I have to accept the fact that this is not going to get better. So, I just have to live the best life I can. This is a good day so far. Tomarrow may be horrible. And no, I have not accepted this all the way.
What makes me feel better is talking to people that know where I am coming from. My husband complains about working. Right now I would gladly change places with him. Of course I am having a problem with SSI, but I will keep trying. Your post has made me feel better this morning.
How are you doing?
Shellie
 
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bj1208 replied to shellie_54's response:
Hi Shellie and JustJohn - welcome to the support group -

I just wanted to ask you both what happened - was this do to an accident?

Have either of you seen a spine specialist either Orthopedic Spine Specialist or Neurosurgeon Spine Specialist? what tests have been done and what treatment options have you had.

I'm an oldie here on WEBMD along with a couple of others that try to help new members. You can click on my name or pic and read my story.

Sometimes with SI joint problems there could be an underlying problem coming from the spine whereas a disc may be bulging and pressing on the nerve root. I went thru 2 years of treatments and a couple of pain clinics and also spine specialist were trying to say I had this when in fact my disc blew and splintered pressing on both the right and left SI nerve root.

X-rays where they do Flex and Extensions are good to have done as these can show some things that MRI's or CT Scans can't.

Please let us know a little more about what's happened etc. Oh since my back surgery I am still in pain - worse than before surgery. I am presently looking at another fusion at L4-5 as this disc is moving and crunching over my previous fusion and it's out of alignment from other discs -

take care and welcome to support group!
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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shellie_54 replied to bj1208's response:
I watered skied and snow skied and dirt bike riding and could run circles around my other friends and grandkids. I got up out of a chair 2 years ago and blinding pain. I crunched a nerve between a disk and the rest is history. I have the burning pain which has responded to epidual for 3 months. I am getting another one but nothing takes the 24/7 muscle spasms away. I have tried every medication and the one that actually works the best is Valium. So instead of something exciting taking me down it was a chair. LOL
I know this will never go away and I have a good doctor now at my Pain management place but I am having a problem with changing my life. I try to think positive but sometimes it does not work and sometimes the meds don't either.
Thanks for listening!
 
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bbtalk responded:
Dear shellie_54,
Back pain is frustrating and restrictive. I too have been suffering from back pain for many years because of a job injury, but I was able to improve my quality of life without the use of pain killers. I have been using a back stretching device called the Back Bubble for 30 years and because of it, I'm able to continue to do the things I love... like surfing! Maybe it will work for you too. There are videos about it on YouTube if you're curious.

All the best to you.
 
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shellie_54 replied to bbtalk's response:
what is a back bubble?
 
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aprilrose9 replied to shellie_54's response:
Dear Shellie,

I was curious right along with you. This was something I had not heard or seen anywhere, so did a quick search. Looks kind of like a softened hammock, where you lay across the middle section (vertically, not horizontally as with sleeping). Lay prone (stomach) and take pressure off your spine by kind of leaning forward. At least this is what it looked like to me. This probably would have helped me pre-op, but probably can't do anything to help my nerve damage, arthritis, scar tissue or SI joint problem.

I get excited when I hear of something "new" to me. Hoping there is something, anything which might help. This seems to be a good place to hear about new approaches and treatment, since sometimes people disclose the area of the country where they reside and you don't hear about this in your state.
 
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bj1208 replied to aprilrose9's response:
Hey Everyone - I was curious too and I googled the item - there is a website www.backbubble.net.

I chuckled a little when I saw the item as it looked like a harness that an animal would hang by i.e. broken leg etc.

When I get in my pool I hang over a raft and let my back hang down in the water just like picture on the site. it sure feels good taking the stress off my back but once I get out the pains come back.

Since I have hardware in my back I would not be able to hang in this contraption as I cannot stretch or be pulled as it could damage my plate.

I think with anything that is sold to reduce or eliminate back pains needs to have this warning: BUYER BE WARE!!!

Joy
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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shellie_54 replied to aprilrose9's response:
how do you make it through a day with out crying?
 
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shellie_54 replied to bj1208's response:
how do you make it through a day without crying?
 
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bj1208 replied to shellie_54's response:
Hi Shellie -

it's very hard~~very, very hard - I do cry each day cause the pains are so great - since my operation they have been at a 10 24/7.

My heating pad is my best friend at night and sometimes during the day I will lay down and rest for a while. During the winter months my hot tub is another best friend and then during the summer it's my swimming pool - in my swimming pool I will lay across a raft and let my back hang in the water - this takes pressure off my back and makes it feel so good I have to be careful as I have fallen asleep and my back will be very dark brown! LOL

I cannot do physical therapy as I am in tears if anyone touches my back - even a slight move of the hand over the area will send me screaming in pain. I sleep on my left side with pillows between my legs. I cannot sleep on my back or right side - if I do then I wake up screaming in pain and crying as my back locks up and I cannot move cause of the pains etc.

it's best to try and see what does make ur back feel better at times and try to stick with that - and of course staying away from things that makes it hurt worse -

well hope this helps - let us know how u are doing~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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davedsel replied to shellie_54's response:
Shellie,

I also must agree with Joy. I cry almost every day due to pain and frustration. I have found effective methods for helping manage my pain, but nothing will every make it go away. My functionality is also diminishing with age and the conditions progressing.

My faith, family, friends, positive attitude and support groups like this one help tremendously.
Click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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shellie_54 replied to davedsel's response:
you were the first one that talked to me when I started on this and you made me feel so much better. I think I really am depressed. It seems like I can't handle the pain and what I am going through plus handle the crap life sends me. I just broke down last night. My husband tried to help me but does not know how. I am so out of control I don't know what to do.
Any suggestions?
 
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shellie_54 replied to bj1208's response:
I don't know what to do anymore.


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