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Tension or spinal?
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Yayyea posted:
Try not to make a really long post cause I have another topic just below this. After over a month I'm still lightheaded with a squeezing feeling towards the front of my head and when I lye down I think it's a little better but still pressure and squeezing type feeling in my face. Also I was able to sit up for over 3+ hours yesterday without any severe squeezing which leads me to believe its now tension headaches? I have the dizzy/vertigo feeling still but it seems when I'm doing something it's not as bad I really don't know.

Sorry for the multiple threads just frustrating after two mri's and an EEG and no doctor knows what's going on. I really don't want another myelogram to see if there's a leak but I might have to for peace of mind

Definitely still better lying down but I think that's true for a lot of headaches

Also I was able to golf.it was a little hard but still is this possibly a really slow leak still? Seems like if it was I wouldn't be able to do these things,frustrating
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bj1208 responded:
hi and welcome to the support group -

first - did you have a procedure done that may have caused a leak? is this why the myelogram was done?

second - do you have spine problems? if so where? Cervical (upper back/neck), Thoracic (mid back) or Lumbar (lower back)?

third - did you have any type of accident? work related and/or possibly an injury from childhood that may have surfaced recently?

The more we know about what has happened to you to more we can help you. please let us know~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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Yayyea replied to bj1208's response:
No I've been having l5 disc herniation causing pressure on my sciatic nerve. I had two steroid injections one on each side.those accomplished nothing and provided no help so he ordered the myelogram and I stupidly agreed without doing any reading on it. The myelogram caused a leak 2 months or so ago. I had two blood patches and first one erase the major squeezing typ thing but after the second one it was minor improvement maybe and no I am here.

There are no injuries or accidents that could have caused this.thanks again
 
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Yayyea replied to Yayyea's response:
Also he did a brain MRI and an EEG he did the MRI for any irritation of the meninges so meningitis he said he saw nothing. I thought I had to do a spinal tap for that myself but this has been going on for 2 months so I'm assuming it would be worse if it was meningitis
 
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bj1208 replied to Yayyea's response:
Hi Yayyea - it may be beneficial that you see another specialist to get another opinion - this way you will know what you are up against.

I have seen where some people have had problems such as yours go on for several months.

try doing some research on the internet and see what comes up.

let us know what you find out - hope and pray it gets better~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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Yayyea replied to bj1208's response:
I've seen a neurologist,pain doc who used to be anesthesiologist,spine guy, orthopedist and a chiro. All of them don't know as all mri's have come back negative. I looked around on Internet and haven't found anything on on comparison between slow leak head problems or tension headache.
 
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bj1208 replied to Yayyea's response:
Hi Yayyea - that is tough when you have gone thru so much and haven't found out anything.


The only thing I can suggest is maybe go to a big University Hospital, in your area, as they do a lot of extensive treating and teaching. they may be able to help you.


Good luck in your research etc.
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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rremedios replied to Yayyea's response:
Hi Yayyea,

I can definitely relate to what you're going through. It's been many years now, but the pain was so severe that I remember it like it just happened. I also have problems with L4/L5 & L5/S1 and had many different procedures done before finally having surgery. But amont the many procedures, I also received steroid injections (which never helped me) and a myelogram.

I had severe headaches and even after the blood patch. Unfortunately, in my case, it just took a bit longer than I expected for the symptoms to subside. I had to stop EVERYTHING all together for about a week or so and really give myself some R&R and finally the headaches subsided. However, I still got a lot of headaches after. If your chief complaint is the "squeezing" I definitely agree with bj1208 that you could see another specialist for a 2nd opinion. But, I also recommend a good massage therapist.

The only way I've ever been able to relieve my tension headaches (which I get a lot) is through massage therapy - find someone who specializes in pain management or sports therapy etc. (definitely avoid the InSpa type masseuse)

I hope that you are able to find some relief soon!


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