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dapieguy posted:
Hi Gals & Guys
My name is Bob, AKA DaPieGuy. It is nice to met all of ya. My job is Assistant To The Pastry Chef, my wife.

Anyways I been have back issues since 2004. Kinda hit the wall this year. 2 ER visits with observation hospitalizations. Long story short. Surgery is not an option, unless I could have a spine transplant. There is a problem on nearly every vertebrae. So treatment is Pain Management & Physical Therapy.
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davedsel responded:
Hello, Bob and welcome.

I understand about the spine transplant. I've been wanting one for years. That procedure has yet to be perfected. LOL.

Please feel free to ask questions or just vent. We understand.
Click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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dapieguy replied to davedsel's response:
Thanks Dave all I know is that is nice to find a place to talk. These past 6 weeks have showed me how what real pain is. I never knew it can cause you to black out. This what scares me the most
 
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trs1960 replied to davedsel's response:
Ditto, right after a spine transplant I'd like a cranium one too

I don't know where to start other than echoing what Dave said and let you know we're here for you and while we can't fix your back we may be able to help you guide the train to prevent a wreck.

You can't let back pain get out of control as it can and will destroy your life, but Dave is a prime example of someone who taught himself and his spouse to make damn good lemonade out of all the lemons thrown at him.

We dream of being able to help someone make an informed decision that can improve their quality of life so as us anything and we'll give honest answers!

Tim
 
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tuloud54 replied to trs1960's response:
Many women have mentioned Spineless while looking in my direction! God would not give you more then you could handle and you did handle it.It did not kill you! Attitude will go along way. Old girlfriend told me to take my attitude a long,long way away from her.Nearly married that girl!!!! I'll stick with original factory equipment God gave me! It is not like I asked for this model with options I did not request.Weekends Rock!
 
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tlh509 responded:
welcome, you have come to the right place for pain. We all speak the same language here. We understand pain very well. Just keep putting one foot in front of the other and keep repeating that, that and take it a day at a time!
 
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bj1208 responded:
Hi DaPieGuy -

welcome to the support group - we all know the pains you are feeling~~Sorry to hear you are hitting a road block or brick wall - think we have all been there at some point or are still there.

One piece of advise I can give you is to not stop searching for the spine specialist (Orthopedic or Neurosurgeon Spine Specialist) and be sure that you have current MRI AND CT Scan (sometimes CT Scans will show more).

Seeing the right kind of pain management specialist is vital too. I see, and some other members do too, a PHYSIATRIST Pain Management Specialist -

http://www.spineuniverse.com/treatments/what-physiatrist

They do go deeper into pain management control based on the patients' needs. I have been seeing mine since 2009 and they are a life saver. I can't tell you how many times since then that they have had me go see my spine surgeon just to get an update on what needs to be done. And they always use the best spine specialists where surgery is always the last resort.

There are other options besides surgery - Spinal Cord Stimulator Implants - where a device is implanted in the mid-upper back that sends a false signal to the brain to say There Is No Pain - there is a sensation that is felt sometimes like bubbles or something running up your spine - but they do let you try it out on a trial basis for 3-7 days. this helps reduce the amount of pain meds taken orally.

Pain Pump Implant - some surgeons will only do this for those that are in dire need - those with chronic pains that will never get better. usually a stay in hospital is needed for 3-7 days to make sure the leads are in the right place and that the mixture of meds is appropriate thereby reducing the intake of pain meds orally is reduced

so research - ask your pain doc - they will help you with this.

Most of us members have completed our profile where you can read our stories by clicking on our name or picture. Hope and pray you can get some relief~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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dapieguy replied to bj1208's response:
Thanks Joy & Everybody!!
I am waiting on the MRI report it was done last Monday morning. I ended up in the ER again, spent 2 1/2 days in the hospital as they tried again to find something that works.

The neurosurgeons that I saw inform me that the spinal cord is irritated due to narrowing, the major nerve roots by bone spurs. I have several protruding disks but those are inoperable. The entire spine is affected by arthritis.

Everything went to ____ 8 weeks ago. Got up one morning and could barely walk or stand. {OPPS!!! I need to tell you that I had been under treatment for the lumbar region for about 5 years. Took my meds & had no issues. There is more to tell about zee ole back though} The week before this happened I saw my PCP because of a white hot burning pain mainly in my left leg & dragging my left foot. She added a nerve pain med & up my other back meds. Few days later in the ER & 1st stay. MRI, and I am now the guinea pig for Neurosurgery & Pain Management.

Where I am at now:
PT & Pain Management apps this week for revaluation
waiting on apps for EMG & Neurology
 
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tuloud54 replied to dapieguy's response:
The worst thing I did was not talk about! Most of my family and friends do not understand all encompassing pain.Pain that grabs you by the core of your soul and does not let go. Heck,I never would have believed it myself. The best thing I did was find this board.Not only did people believe and understand,they had great ideas. Doesn't help with the stress factor to suffer alone.Misery loves company! Try and stay positive and you are definitely at the right corner bar.Cheers. Tom
 
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trs1960 replied to tuloud54's response:
Only people that suffer intractable pain can understand it. It's like a women trying to explain child birthing to a group of guys... We can kind of get the idea, but not truly understand what contractions feel like.

Even people with nearly identical injuries don't feel the same pain. Pain is unique to the individual and very subjective. One of medicines most complex puzzles...

Best of luck

Tim
 
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dapieguy replied to tuloud54's response:
I came to find that out last night talking to my folks. My dad was actually telling me that I did not need pain meds. That he healed his back injury by himself that no doctor helped. How he toughed it out after his cancer surgeries, he did not use any pain meds either time. He is not getting addicted. Tried to explain to him that unless he ever had these types of pain there is no way he could understand. That I actually have passed out and blacked out from pain. He hung up on me!!

My wife is amazing. Even though does not understand what I am going through she stands by me. After all the rages, my lousy behavior towards her, the embarrassment I have caused. When I went to the ER last time the nurse who came in said "oh another junkie" I was having tremors. I flew into a rage walk out the ER & hospital flipping everybody off screaming at the top of my lungs. My wife eventually got me back to the ER where I was sedated.

Now I am terrified of being called a Drug Seeker!! To top everything off my PCP is leaving my healthcare system. Life sure can suck!!!
 
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tuloud54 replied to dapieguy's response:
"Life sure can suck" Totally agree but we do not know that "Death sure can suck" I say everybody needs to wait their turn. You don't need anyone telling you how much you hurt! You,and only you,know.God bless! Tom
 
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trs1960 replied to dapieguy's response:
I've had more good doctors than bad, but the one bad one nearly killed me. I've said many times that it's imperative to have a good trusting relationship with your pain doc. There is so much ignorance out there it's amazing, but I think it's getting better...at least out here in the West.

Keep your chin, tell your wife thank you and keep up the fight!

Your dad will likely never understand as it sounds like he'd rather impress you with how tough he is and expects the same out of you. Seems like you understand your situation so I won't repeat it.

Good luck finding the right help. We're all different and we all fight our own battles, but we do need help. You got your wife and that's huge!! Now you need a good pain doc that you can build a relationship with

You're in my thoughts and prayers.

Tim
 
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dapieguy replied to trs1960's response:
got one of the really bad ones today At the hospital he seemed nice. Today at the office what a a__hole!! I would not go the muscle relaxant he wanted to put me on. For the first time in at least 15 years my BP & pulse are normal! Well back to the tale. He did not like that, On my discharge date he change the dosing of my pain med form every 6 hours to every 4. All while I no longer have a PCP I asked him to renew when it was time and he told me it was not his problem!!! Now I am royally screwed and life bites me again!!
 
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TERRYE replied to dapieguy's response:
MAKE YOU DR. WRITE YOU A LETTER OUTLINING YOUR PAIN & PROBLEMS.
TAKE THE LETTER WITH YOU TO SEE A NEW DR.
IF THE DR. WROTE THE LETTER HONESTLY IT SHOULD ALLOW YOU TO SKIP A LOT OF THE PREVIOUS
WORK.
TELL THIS DR.THE MED YOU CURRENTLY GET IS NOT ENOUGH.

I USED THE ABOVE MYSELF AND ENDED UP WITH THE RIGHT DOSAGE OF PAIN MEDS.


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