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Back Stimulator or Pump-Help
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ihbflmom posted:
I have had several back surgeries that resulted in an implanted cage. No where left to go but either spinal cord stimulator or morphine pump. I would appreciate anyone out there that can give me their experience (pros/cons) as I need some guideance quickly. Thank you.
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bj1208 responded:
Hi IHBFIMOM - welcome to the support group -

I've only had one surgery, thus far, fusion L5-S1 and have worse pains now than before surgery (surgery was 2/08). I am getting ready for another surgery fusion L4-5 after the first of the year.

What I can tell you is that with the level of pain I have and possibly having more pains after this next surgery I will push for the pain pump instead of the stimulator.

I did have a trial stimulator in 11/08 and had so many more pains so it did not work for me.

KATELLAWELLNESSCENTER appears to be promoting chiropractic care.

While chiropractic care can be good once someone has a fusion and/or any type of metal in their back they CANNOT have any adjustments done. I have gone to several since my surgery and the most the latest one will do is light massages and heat/ice massage. I had a physical therapist try the laser treatment and for some reason it would heat up my hardware so had to stop that - even going around the area I could still feel the hardware heat up.

Do research on the internet - just type in Problems with Spinal Cord Stimulators and also Pain Pump Implants. there are always risks involved but this way you can research and gather information to discuss with your pain specialist and/or surgoen.

Hope this helps - keep us posted~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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junkguy responded:
I had a stim put in 9/12 and a couple months later the leads broke and had to have a redo. Redos and battery problems are very common plus unwanted jolts. When everything is working properly it does help on those nights when you don't want to live until morning. It didn't really allow me to be any mor active but it does cause a diversion of the pain. I am always aware of using the battery up so I don't use it as much as I would like. My doc says he has taken out all of the rechargeable batteries because of problems so if I keep my stim I will have to replace the battery approx, every 2 years. There are currently several lawsuits against Medtronix and other makers because of malfunctions you might wnt to read but mine has been trouble free for the last year. Hope this helps some. Rick
 
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bj1208 replied to junkguy's response:
hI rICK - welcome to the support group -

yes there are lots of problems with Medtronics and others - I didn't want to scare our member but this is all part of the research - problems with SCS implants etc. Batteries have been a number one problem along with other problems too.

My surgeon has a completely different SCS Implant - it had one "FLAT PANEL" and a couple of leads. he has had great success with this one and keeps trying to get me to have this done before having my fusion surgery - I had a Medtronics Trial one done after my first fusion and I can honestly say it was a nightmare. it took care of the pains in my legs but increased my back pains tri-fold. Sometimes this is common when you have nerve damage pain in legs and also lower back pains.

So please do research the problems and outweigh what you decide.

Keep us posted~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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ihbflmom replied to katellawellnesscenter's response:
yes I have. physical therapy as well, that kills me
 
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ihbflmom replied to junkguy's response:
thank you. I am at a loss & scared
 
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ihbflmom replied to bj1208's response:
thank you, Joy. I appreciate your words.
 
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bj1208 replied to ihbflmom's response:
Hey IHBFLMOM - don't be scared - lots of here have been there and done that. we let everyone know what our experiences are -

Really the only one that can tell you what you should do is yourself - lots of research and lots of questions asked.

I have been told in the past that I am ATYPICAL - meaning what works for most does not work for me -

so please do your research - and if I may add a personal note, if you have chronic pains (mine are a 10 all time and I take morphine (240mg daily) and oxycodone (120mg daily) and if I am still at this level after my surgery first of the year then I will be asking for the pain pump.

Let us know if you have questions once you have done your research - write down all questions, especially ones to the surgeon.

Hope this helps - keep us posted~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
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trs1960 responded:
I have a pump and have been through 13 years of major back problems. I will go in to more detail later, but in this thread I believe Joy gave you great advice. You can also look for my post "pump saga". It's all about my pump install and so far I've had success.

Good luck and learn all you can to replace fear with knowledge.

Prayers to you,

Tim
 
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ihbflmom replied to bj1208's response:
Joy, Thank you so very much. I asked for references from my doc for the spinal cord stimulator and they only gave me 2 people to speak with and they were older gentlemen. So, to say the least, I am quite nervous as when I spoke with the doc office today, they stated that not everyone wants to speak of their experiences (I totally understand) yet, this doc keeps pushing the stimulator. So....
 
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ihbflmom replied to trs1960's response:
Tim,
Thank you. I am learning alot, getting frustrated and scared. I'm wanting to just throw my hands up and say "FORGET IT". I am still doing alot of research and thank you for lending your support to me. I appreciate it.


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