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Need advice on whether to switch meds!
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ldoyle0402 posted:
I have been disabled since 2001 after my 1st neck surgery failed (was for herniated disc at C5-6:) Since then, I have been in chronic pain and have been diagnosed with many other issues, from fibromyalgia, herniated/bulging discs in LB, spinal fusion at C5-C6, DDD, the list goes on and on.

I have been seeing a pain specialist since my first surgery, who put me on opiates, muscle relaxers, and many other meds. I have been on some type of opiate since 2001, so as you can imagine, my tolerance to these meds is very high.

My current Pain Dr.has me on Oxycontin 40 mg, 2x/day. Baclofen 10mg, 4x/day, Hydromorphone (Dilaudid) 8mg, 3x/day, as needed for breakthru pain. Here is my dilemma, she switches the breakthru meds every few
months because my body is so used to these meds that they become ineffective and seem to not stay in my system as long. I have been on the Oxycontin for about 10 months and have noticed that it is not helping as much either. Prior to the oxy, I was on morphine, but again, it seems to work well in the beginning but then it is just not as effective. She once told me that my body metabolizes these medications quickly.

I have an appointment with her today and want to discuss changing the Oxycontin. I have been on Opana, Fentyl Patch and Morphine for the extended release medications. A friend of mine was on AVinza and it helped her immensely. When I researched it, I saw that it was Morphine. Does anyone know if this is a different formula of morphine and I;; know we can not give suggestions for medications, but if anyone has dealt with this type of issue or had something similar like this happen to them, I would love to hear your story.I hate that iI even have to be on this type of medication, especially for how long I have been on them. Any feedback would be greatly appreciated. Thank you, Lisa
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davedsel responded:
Hello.

The best advice I can give is to call your pharmacist and ask that question about Avinza. I have no personal experience as I can not take any narcotic because I am allergic to them all.

I hope this helps and pray you can get the answers and relief you need soon.
Click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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trs1960 responded:
I've been thru this a few times and you're spot on. My best results if I could get down to zero or nearly zero meds for as long as I could and then start a new med on a reasonable dose I would get great relief for months or more.

Sorry for the late response. My life has been a pain in the butt lately. The pump is helping, but having marital problems
 
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tuloud54 replied to trs1960's response:
So sorry about your the marital challenges.I am glad the pump is helping.I am still getting adjustments, after almost a year. Have not taken anything else and my body knows it. Your life has been a pain in the butt,you say.Thank God you are still here to fight for your life. God knows I wanted to die then endure another minute of pain. Hard for me to realize just how low pain can bring us. Take care of you and yours. Tom
 
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aprilrose9 responded:
Dear Idoyle0402,

I was curious about something you mentioned. The PM specialist changes your break-thru pain med every few months? Maybe, others can weigh in on this, but it is my understanding the main pain medication is the one which should be put in narcotic rotation.
 
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ldoyle0402 replied to aprilrose9's response:
Thank you for your reply aprilrose. My PM Dr. changes my break through every few months, I was under the impression that the long lasting narcotic should be put in rotation as well. I feel that she doesnt want to switch the oxycontin because she feels it is helping, I try to tell her differntly, but she will just change the break thru med. She is going to have to switch the oxy this month, because i have a 5,000, yes thats right, no typos. prescriptions are part of that and I cant afford to pay cash for it. so now my dilemma is what to switch too??I was thinking morphine but I dont know how much is equilviant to the oxy im on. .F01I live in Florida, the "pill mill.F01" state. although a lot of those places got shut down, she tells me the DEA is always watching them.I know we cant give advice here, but if anyone has an opinion on what would be a drug to switch too, please let me know. thank you
 
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ldoyle0402 replied to trs1960's response:
trs1960, thank you for your reply. I am glad to know other people go through this as well. Were you talking your breakthru meds that you get down to zero and then switch or your extended release meds?
I am glad the pump is helping you. I too am having marital problems, my husband and I recently separated after being together over 20 years. I know I changed drastically after becoming totally disabled after my 1st failed surgery in 2001. I became so depressed and was in pain all the time.
I am not saying that is why we separated, but it sure didnt help. I hope you can work out your problems, the stress of separating surely has not helped my pain level. Hang in there.


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