Skip to content
What to do
avatar
An_255176 posted:
What do you do when you are told that surgery is to dangerous?? The 3 neurosurgeons have told me exactly the same thing. Brought them a disc with the MRI & EMG. These were at 3 different hospitals. they would only do surgery if I ended up in a wheelchair and/or start having trouble breathing. I just do not get it I thought they were supposed help. Just do not know how much longer I can live with this pain.
Reply
FirstPrevious12NextLast
 
avatar
davedsel2 responded:
Hello.

Spinal surgery is extremely difficult and risky. Success rates are only up to 60% effective for pain relief and 80% effective for functionality. It is MAJOR surgery with recovery times as long as 18 months to 2 years. These good neurosurgeons did the right thing and I wish more would be like that.

There are other treatments that are minimally or non-invasive with far less of a risk. Seek out a pain management specialist that is a physiatrist for a deep approach to your pain and a variety of treatment options.

I pray you can find relief soon.
Please click on my username or avatar picture to read my story.

Blessings,

-Dave
 
avatar
katellawellnesscenter responded:
You need not to worry, As far as my opinion is concern You should go for surgery and i hope you might get relief, Apart from this you should consult pain management specialist. Hope you will get well soon.
 
avatar
bj1208 responded:
Hi and welcome to the support group -

First - can you list down what the written report states on the MRI?? It would help us to know exactly what you are up against.

I do agree with Dave, as always has great info, as there are other treatment options available. Your best bet would be to seek a PHYSIATRIST (as Dave said). I have been seeing a Physiatrist Pain Specialist since 2009 and they have really helped me with my pain issues. They also refer me to see spine specialist (Orthopedic or Neurosurgeon Spine Specialist) when I have MRI, X-rays or CT Scans done. They usually have a couple of ones that they work very closely with.

http://www.spineuniverse.com/treatments/what-physiatrist

this site will help explain what a PHYSIATRIST is and how they treat patients based on their needs. They are a large step above regular pain clinics.

Surgery should always be your last resort once you have been thru all treatments.

You can click on my name or pic and read my story. I don't have it updated but on 12/4/13 I just went thru my 2nd Fusion. I can only advise that research is the best way to learn about all the treatments etc that may be suggested.

Hope this helps - please let us know what the written report states~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
avatar
An_255176 replied to bj1208's response:
Thanks Guys!! I am in pain management. I am currently taking 30mg MSCotin 3X daily with Oxycodone 10mg 4x daily as need and Soma as the muscle relaxant. There is narrowing of the spinal canal. Impinged nerve roots for both legs and the thorax
I am also getting injections. The heaviness that effects my arms & legs are the worst. Most days I can hardly walk.
 
avatar
terrye replied to An_255176's response:
SOME TIMES DRUGS FOR PAIN MANAGEMENT IS THE ONLY RESONABLE ANSWER.
MY SITUATION IS "THINGS ARE SO BAD ",THAT
IF I WERE TO HAVE SURGERY,WHERE WOULD THEY START.
SO I RESIGNED MYSELF TO LIVE A FAIRLY DECENT LIFE
BY TAKING MEDICINE.
I GO TO THE GYM EVERY MORNING AND KEEP BUSY
AND WON'T ALLOW MYSELF TO SINK INTO DEPRESSION.
 
avatar
bj1208 replied to An_255176's response:
Do you know what kind of pain management you are in?

We. most of us on support group, would say a PHYSIATRIST Pain Specialist is best to see.

Most of the regular pain clinics start you out on injections then get to a point where they cannot help with your pains and usually tell you to live with it. I know I had been to probably about 7 before I was referred to the PHYSIATRIST Pain Specialist - they are the only ones that were able to help with my pain management in the best way for me.

Hope this helps - let us know how you are doing and remember surgery is always the last resort.
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~
 
avatar
An_255176 replied to bj1208's response:
my PM is not like that. they were involved form the time I was in the hospital. I am seeing the same PM doc that saw me in the ER. I receive, injections, PT, narcotic therapy, & psychotherapy at a leading research hospital. I also use a TENS. The whole problem is very little relief. The pain is so bad at times that I pass out, black out. Even with all of the above I rarely get down below a 7
 
avatar
fibrofran17 replied to An_255176's response:
An255, If 3 different "surgeons" at 3 different hospitals said it was TOO DANGEROUS then ITS TOO DANGEROUS!! Surgeons do surgery, make money doing surgery and seldom turn down an opportunity to do what they do. Surgery has it's own drawbacks, big ones that last and last......Give it up for your own sake.
I am in constant pain too but the few surgeries I've had I wish I didn't...You've had not only a second opinion but a third, listen to their advice. Good luck
 
avatar
An_255176 replied to fibrofran17's response:
Thanks. It is what I thought. Told my shrink I do not know how much longer I can deal with this. Since I lost my job because of this which means my insurance will gone next month. No job no money no nothing....................................
 
avatar
fibrofran17 replied to An_255176's response:
An255, I really know the bad situation you're in, the pain, the helplessness, no job, no money, life can really suck BUT maybe it's time to start planning a new life given your state. It's hard to let go of a career, a home, etc. yet you can recover from all if you take it one day at a time and stay focused. It's time to apply for disability, all the financial aid you can get, even if it means doing things, like governmental assistance, which we all dread. YOU EARNED the disability insurance, it's yours and now is the time you need it. I just came out of a long dark tunnel of 3 years and it was hard, and depressing but life goes on...there are alot of pluses to simplifying your life, and get rid of all the stress of trying to hold on to what was. Less stress equals less pain. I wish you the best, hang in there, don't be timid about asking for help. Blessings to you, fibrofran
 
avatar
An_255176 replied to fibrofran17's response:
why bother the wife kicked me out today nothing left nothing left at all
 
avatar
livingwithhope replied to An_255176's response:
There is always something left! We might not see it because we can't see around that bend in the road, but it's there. I pray that you know God, and that you can turn to him for comfort. I am praying for you! There's always hope when you have faith. Don't give up! And please go talk to someone!!!! I know pain and I know depression caused by pain. It's hard, but there are people who care. I pray that tomorrow is a brighter da for you!
 
avatar
bj1208 replied to An_255176's response:
An_255176 - I am sorry to hear this -

what I can suggest is that you get in touch with an attorney that handles Disability Claims ONLY - they can obtain the information from day one to present and submit your paper work for processing.

There are support groups around to help with your spousal situation so please look into that. I do hope and pray everything works out.

Keep us posted~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~


Helpful Tips

MRI Results of Back Help
Just received my MRI and need to wait 2 weeks for my follow up appointment. Can anyone help me read the results and let me know how serious ... More
Was this Helpful?
1 of 2 found this helpful

Helpful Resources

Be the first to post a Resource!

Related News

There was an error with this newsfeed

Related Drug Reviews

  • Drug Name User Reviews

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

For more information, visit the Duke Health Spine Center