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mona717 posted:
I"HI", I'm new to this site and to posting too. I read your post and hope you are starting to have some relief from your pain. It sounds like you have gone down a long road for awhile now. Hopefully you have some good supports around you to help.

I am blest to say that I have a lot of good support around me. I would be lost without my family and friends. I have had 4 back surgeries and have a Spinal Cord Stimulator implanted in my spine since 2006. It helps some, but definitely not as well as it did at first. The last 3 years have been pretty hard. Besides my normal back/hip/leg/groin pain that is 24/7, I also have other types of pain, some of which can cause me to fall and to pass out from the intensity of it. I have tried all of the injections, and pain management techniques available and have sought help from the Mayo Clinic, Cleveland Clinic, Rothman Institute, Univ. of Penn, Bryn Mawr Rehab. Pain Mgt. program and many more - all which turned me away because they said I was doing everything available. I take a boatload of medications too for pain. My life has changed so much over the last several years because of the pain and how it limits what I can and can't do and when I can do it. I'm sure you have experienced the same limits. Mostly, I keep my spirits up by trying to count the things I can still do, even the small things, rather then to focus on what I can no longer do. But, every once in awhile my spirits take a hit and I get down in the dumps for a few days. I usually have to give myself a kick in the backside and tell myself that I have so many other things and people in my life to be thankful for and that I won't let this "pain thing" get the best of me. It is hard though. I'm going through a rough patch right now and decided to reach out to others like me. Any words of wisdom?
Thank you - Mona
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katellawellnesscenter responded:
Hi Mona,
Consult to same specialists i hope they will treat you better.Apart from this surgery may take some to settle down.Don't do any type of work and relax. I hope you will get relief soon.
 
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davedsel2 responded:
Hello Mona and welcome. I am sorry you are in so much pain and I fully understand.

Looks like you have been seeing the right doctors. Have you seen a pain management specialist that is a physiatrist? These doctors go deeper and offer a wide variety of treatments.

Focus on the blessings in your life to keep a positive attitude. That is so important. Keep moving as much as possible. Keep doing your research. Here are links to some websites that have great information about spinal problems and solutions:

WebMD Back Pain Health Center: http://www.webmd.com/back-pain/default.htm

Spine-Health: http://www.spine-health.com

Spine Universe: http://www.spineuniverse.com

Chiro Geek: http://www.chirogeek.com

I pray you can find answers and relief soon.
Please click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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mona717 replied to katellawellnesscenter's response:
Thank you Katellawellnesscenter. It is good to connect with others in the same boat as I am. Take care and keep looking forward. - Mona
 
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mona717 replied to davedsel2's response:
Hi Dave - thank you for the websites. I'll check them out. Yes, I have seen a pain management specialist (several actually) as well as a physiatrist. All say that I'm taking the right meds. for my situation as well as telling me that I've done everything that is available right now in my situation. Your right about keeping current on what is out there. Each and every week I explore the internet and I of course keep talking with my various drs. Thankfully they keep talking with each other too. That's something that is unusual today. Drs. don't often talk with each other to coordinate care. I am blest to have some very good doctors. Thank you again for your feedback Dave.
Peace - Mona
 
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bj1208 responded:
Hi Mona and welcome to the support group -

I am sorry you are in so much pain - one thing that struck me in your story was the SCS Implant saying it doesn't help like it did when you first had it installed.

Here are some insights to the implant

1) have them check the battery - some batteries are not lasting as long as they initially should

2) when was the last time you had an X-ray and/or CT Scan done? reason I am asking is the implant is initially implanted to help with the pains then. If something new is happening (i.e., new disc(s) problems etc) the implant will not help with those.

I had the trial in 2008 and it helped with the nerve problems in my legs but made the pains in my back worse so I had trial removed.

Please check into those and let us know what you find out~~
~~ Click on my name or picture and read my story ~~

Take care ~~ God Bless ~~

~~ Joy ~~


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