Skip to content

    Announcements

    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!


    Yours in health,
    WebMD Message Boards Management

    New member
    avatar
    mona717 posted:
    I"HI", I'm new to this site and to posting too. I read your post and hope you are starting to have some relief from your pain. It sounds like you have gone down a long road for awhile now. Hopefully you have some good supports around you to help.

    I am blest to say that I have a lot of good support around me. I would be lost without my family and friends. I have had 4 back surgeries and have a Spinal Cord Stimulator implanted in my spine since 2006. It helps some, but definitely not as well as it did at first. The last 3 years have been pretty hard. Besides my normal back/hip/leg/groin pain that is 24/7, I also have other types of pain, some of which can cause me to fall and to pass out from the intensity of it. I have tried all of the injections, and pain management techniques available and have sought help from the Mayo Clinic, Cleveland Clinic, Rothman Institute, Univ. of Penn, Bryn Mawr Rehab. Pain Mgt. program and many more - all which turned me away because they said I was doing everything available. I take a boatload of medications too for pain. My life has changed so much over the last several years because of the pain and how it limits what I can and can't do and when I can do it. I'm sure you have experienced the same limits. Mostly, I keep my spirits up by trying to count the things I can still do, even the small things, rather then to focus on what I can no longer do. But, every once in awhile my spirits take a hit and I get down in the dumps for a few days. I usually have to give myself a kick in the backside and tell myself that I have so many other things and people in my life to be thankful for and that I won't let this "pain thing" get the best of me. It is hard though. I'm going through a rough patch right now and decided to reach out to others like me. Any words of wisdom?
    Thank you - Mona
    Reply
     
    avatar
    katellawellnesscenter responded:
    Hi Mona,
    Consult to same specialists i hope they will treat you better.Apart from this surgery may take some to settle down.Don't do any type of work and relax. I hope you will get relief soon.
     
    avatar
    davedsel2 responded:
    Hello Mona and welcome. I am sorry you are in so much pain and I fully understand.

    Looks like you have been seeing the right doctors. Have you seen a pain management specialist that is a physiatrist? These doctors go deeper and offer a wide variety of treatments.

    Focus on the blessings in your life to keep a positive attitude. That is so important. Keep moving as much as possible. Keep doing your research. Here are links to some websites that have great information about spinal problems and solutions:

    WebMD Back Pain Health Center: http://www.webmd.com/back-pain/default.htm

    Spine-Health: http://www.spine-health.com

    Spine Universe: http://www.spineuniverse.com

    Chiro Geek: http://www.chirogeek.com

    I pray you can find answers and relief soon.
    Please click on my username or avatar picture to read my story.

    Blessings,

    -Dave
     
    avatar
    mona717 replied to katellawellnesscenter's response:
    Thank you Katellawellnesscenter. It is good to connect with others in the same boat as I am. Take care and keep looking forward. - Mona
     
    avatar
    mona717 replied to davedsel2's response:
    Hi Dave - thank you for the websites. I'll check them out. Yes, I have seen a pain management specialist (several actually) as well as a physiatrist. All say that I'm taking the right meds. for my situation as well as telling me that I've done everything that is available right now in my situation. Your right about keeping current on what is out there. Each and every week I explore the internet and I of course keep talking with my various drs. Thankfully they keep talking with each other too. That's something that is unusual today. Drs. don't often talk with each other to coordinate care. I am blest to have some very good doctors. Thank you again for your feedback Dave.
    Peace - Mona
     
    avatar
    bj1208 responded:
    Hi Mona and welcome to the support group -

    I am sorry you are in so much pain - one thing that struck me in your story was the SCS Implant saying it doesn't help like it did when you first had it installed.

    Here are some insights to the implant

    1) have them check the battery - some batteries are not lasting as long as they initially should

    2) when was the last time you had an X-ray and/or CT Scan done? reason I am asking is the implant is initially implanted to help with the pains then. If something new is happening (i.e., new disc(s) problems etc) the implant will not help with those.

    I had the trial in 2008 and it helped with the nerve problems in my legs but made the pains in my back worse so I had trial removed.

    Please check into those and let us know what you find out~~
    ~~ Click on my name or picture and read my story ~~

    Take care ~~ God Bless ~~

    ~~ Joy ~~


    Helpful Tips

    yoga
    try yoga for sure the positions and stretches help alot. u will feel relief but do not stop just continue doing it More
    Was this Helpful?
    1 of 4 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

    For more information, visit the Duke Health Spine Center