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HELP, fusion scheduled dont know what to do. anyone had a Femoral nerve tear?
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billydkid5 posted:
Hi I desperately need some help. I had a l34 radiculopathy 2 years ago. after 6 injections i decided to have microdisc surgery. A week after the first one I bent over to sharp pain, had a second operation a month later. Now both my legs are constantly in excrutiating pain. About a year before this, one of my feet slipped out of my inversion tqable and since then I have had trouble with both groin muscles and outside thigh muscles and they just keep getting wors. I am scheduled for a fusion in 8 days. But my MRI doesnt show that much herniation and they keep suggesting not to do it but I can hardly walk. I was doing some reading and it sounds like I have a problem or tear in my Femoral nerve somewhere before it branches into 2 legs. But my surgeon doesnt know anything about that, he just fuses spines. I really need help.
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bj1208 responded:
Hi and welcome to the support group -

In my honest opinion, I would put your surgery on hold - get more opinions - from both Neurosurgeon Spine Specialist and Orthopedic Spine Specialist.

I would also suggest seeing your primary care physician regarding the groin muscle issue to make sure you do not have a hernia.

You may also benefit from seeing a PHYSIATRIST Pain Specialist as they can order tests to be done on your legs to determine if there are nerve issues and where they are at.

This explains what a PHYSIATRIST Pain Specialist is and what they do:

http://www.spineuniverse.com/treatments/what-physiatrist

This explains what an Electromyography and Nerve Conduction Test (EMG and Nerve Conduction Test) is and how it's done:

http://www.mayoclinic.org/tests-procedures/electroconvulsive-therapy/basics/definition/prc-20014183

I hope this helps - like I said in first paragraph please postpone your surgery and get more opinions, see your primary care doc and also a PHYSIATRIST Pain Specialist.

I think between all these you will get more answers and also get a proper diagnosis of what is wrong.

Please keep us posted~~

Take care~~
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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ukiah replied to bj1208's response:
I have had 3 back surgeries, laminectomies, 2 left shoulder surgeries and still have multiple bulging and herniated discs. I also have fractured vertebrae sitting on nerve roots..
Having been in pain my entire adult life..getting progressively worse i have to say surgery is no guarantee that it will relieve your pain..my first surgeon, who is famous now and takes no insurance, said it best. If you can touch your feet one way or another you don't need surgery...by the time i had third surgery i had woken up with drop foot and after 5 EMG's was told i severed the nerve. Three months later determined in my mind that my foot would start to work...it did..and now works fine..
I am on enormous amts of pain meds but after a while they stop working and have to be changed. Dr.'s don't like giving alot of medication but i have also had breast cancer and a heart attack..
If you are not a drug seeker and really do have pain then you should get treatment.. try a hospital pain clinic. I have all the mri's and ct scans to prove this is not in my head.
I have tried neurostimulator that i couldn't get taken out fast enough..it may work for some.. not me. So i am left taking meds...it is just about numbers which is whst the doc at sloan kettering told me..don't give up..surgery is no guarantee and may not even work for you. Find the right dr. And have the right tests to prove your condition.
Then get copies of reports and mri's....to give doc to review before you see them. I have been in pain for 40 years...acupuncture put off first surgery for 11 years..
Don't give up..there is help out there butbyou need documentation and research..ukiah
 
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billydkid5 replied to bj1208's response:
Thanks, I ve had 4 EMG's and they have only ever showed left L34 radiculopathy. I actually went to my PCP yesterday I have been there 5 times for my groin pain and he doesnt have a clue. Hes not very helpful really. He ordered some tests of my prostate and a sugar test. I am at the end of my rope, I cant take anymore pain. I have been to the ER twice since the 2nd surgery and they inject me with an anti inflammatory and send me home. I was tested for ALS about a year ago and that was negative. I think I tore my femoral nerve somewhere in my groin area before it branches out to seperate legs but they keep telling me that would show up on an EMG. its SO BAD. My back is a mess too but nothing compared to the legs. I just lay in bed and moan about 10 hours a day. Injections at L34 (3) L5 L4 and 2 in my SI joint have done absolutely nothing. as a matter of fact they make it worse every time. I have SI joints that pop in and out of place when I stretch my legs and cause ridiculous pain. I'm so much done with this......
 
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bj1208 replied to billydkid5's response:
hi again -

I think with the groin issue you should see a specialist and what I found is:

doctor specializing in sports medicine or an orthopedic surgeon.

in regards to the leg pain - Radiculopathy - you should see a PHYSIATRIST Pain Specialist - they do go deeper into pain management control and should be able to help you.

http://www.spineuniverse.com/treatments/what-physiatrist

Going to the ER really doesn't do much - most ER's are now labeling us as drug seekers. I have often thought of going for my pains but I know I'm at my limit on the amount of pain meds I can take daily and thus the ER won't do any good.

Please keep us posted what you find out. Take care ~~
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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billydkid5 replied to bj1208's response:
yeah they treat me badly at the ER. Anyway, I had SI joint injections done 2 days ago with only pain killer to see if they changed my leg pain and they did for about 4 hours. SO now they want to fuse my SI joint. He said it looked really wide and could be the cause of my leg and back pain, I had them injected once before and had a little relief for about a week. Plus I think this is an operation they can reverse rather easily.
 
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bj1208 replied to billydkid5's response:
Hi -

I would research the SI joint fusion - and I'm not certain but once this is done I don't believe they can reverse it. so please check into this before you have it done and ask tons of questions.
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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billydkid5 replied to bj1208's response:
I have to do something, I cant live with it anymore.MY surgeon is a neurosurgeon and also performs brain surgery. He did my discectomies. I am seeing another neurologist Monday and if they dont find something I will have to go through with it. I cant walk or sit, its been a terrible 2 years.
 
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davedsel2 replied to billydkid5's response:
I will be praying for you for Monday. Please keep us updated.
Please click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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bj1208 replied to billydkid5's response:
please keep us posted - pray you can get some good results with your appointment~~ Take care~~
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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hurtsobadat47 responded:
would definitely get a nerve test done find the source it does not always show up on mri ,i am trying to recover from my 2nd surgery seven days ago and i was told my nerve root was black not sure if surgery gift or a death sentence yet pain is terrible can not pick up my right leg now good luck prayers with you with your decision but if i would not had second surgery i wander how long my nerve would have stay alive or if it is
 
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An_259207 replied to billydkid5's response:
who is they 50/50 chance- roll the dice ,seek another option
 
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billydkid5 replied to An_259207's response:
Well I had a 6th EMG the other day, no new nerve damage is showing up but all my SI injections have been positive so I'm going to go with the SI fusions. They surgeon says they do not move that much anyway, and usually fuse by themselves by the time you are 50 so I'm just doing it a little early.
 
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jm1960 replied to billydkid5's response:
Hi Billydkid5 - welcome back

I have permanent nerve damage in both legs so I have the EMG and Nerve Conduction Text done yearly to check to see if I have new nerve damage and to check the extent of the damaged nerves as mine point to L5-S1 (Anterior Fusion L5-S1 plate cage 4 screws done 2/25/08). have had one done since 2009, have had 5 thus far (most recent fusion L4-5 done 12/13 plate cage 2 screws and 2 rods)

Ok so now on to you, LOL no pun intended but wanted to let you know why I have these done!!

First - you made a statement that your surgeon said SI Joints usually fuse by themselves by the time you reach age 50.

Boy I was ready to fight this one as I had never, ever heard of such nonsense cause I'm 53 and I am having horrible SI Joint problems (right is worst than left) so before I stuck my foot in my mouth I thought I would research this and see what I could find. I found this article that is a teaching medical college:

http://radiopaedia.org/articles/sacroiliac-joint

Go down to where it has "MOVEMENTS" and you will see the statement of the joints usually fusing by age 50, however it also references about pregnancies and how it's felt then etc.

Very interesting>>>>

As far as you having the fusion done I found this article that I found to be important to discuss with your surgeon:

http://www.spine-health.com/ask-a-doctor/sacroiliac-joint-dysfunction/sacroiliac-joint-fusion-recovery

I also found this to be informative as to the type of approach and how it will affect recovery.

Also I wanted to ask who have you seen for the SI Joint pains?

Reason I am asking is IMHO think you would benefit opinions from seeing a PHYSIATRIST and a NEUROLOGIST before actually having the surgery.

http://www.spineuniverse.com/treatments/what-physiatrist

http://neurology.about.com/od/NeurologyIntro/a/Do-You-Need-A-Neurologist.htm

let me know what you think and what you decide finally - IMHO if this were me I would be getting about 4 opinions.

Take care>>Joy


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