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legsafire posted:
Hello all, I have burning sensations in both legs primarily the right. It is in the back of the legs from buttox to feet. In Dec. 2013 I had a laminectomy performed at L-3,L-4 and L-5. MRI showed some impingement, the Neuro surgeon found a lttle more than the MRI indicated. After surgery I thought yahoo things are going to get better.
Fifteen months later same burning pain. I am not blaming it on the Doc, it just did'nt work.I do now have new SI pain but sorta beside the point I would like to get to.My work ups are 3 pre surgery MRIs one post surgery. Pre and post EMG showing chronic radiculopathy at L-5 and a discogram with no insightful clues. I am aware that alot of the other patients that read this have had much worse, and I pray and hope for there relief at the same time I ask for my relief.
This burning pain has been going on for 9 years or more, I have pain meds, but they (pain management doctor) have scheduled me to stop those and go on suboxone and then have a nerve stimulator trial and assesment. This burning in my legs is severe 24/7 and as I am sure you all know how debilitating chronic pain is. Same job for 30 yrs. Lovely wife for 33 yrs. adult children and grandchildren. Has anyone had this type of burning? Am I nuts? Could this be from something other than nerve impingement? I have had several blood tests in the past that did not reveal anything and I am sure it is not diabetic. I am going for a second opinion (Neuro) next month. This is the first time I have ever posted anything on a web site, please forgive me if I have'nt followed any protocols.
Thank you, I will appreciate any comments/recommendations
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bj1208 responded:
hi and welcome to the support group -

yes i do have this - every day plus shooting stabbing numbness tingling in both my legs as I do have permanent nerve damage in both.

I would suggest that you see a PHYSIATIRST Pain Specialist and let them know what is going on with your legs.

http://www.spineuniverse.com/treatments/what-physiatrist

I see one and they have a pain specialist doc that does a test each year to check how my damage is doing (worse better etc) - the test is EMG and Nerve Conduction Test -

Nerve damage results usually don't show on MRI's or CT Scans - but this test will show if there is any and also it will tell which disc(s) are the ones causing the pains. Myelograms can tell also but would suggest the EMG & Nerve Conduction Test first.

http://www.mayoclinic.org/tests-procedures/electroconvulsive-therapy/basics/definition/prc-20014183

this should help you get started in the right direction for diagnosis and treatments. I take Gabapentin (generic for Neurontin) and it does help with most of the pains (except numbness) - you can click my name or pic and read my story.

Hope this helps - keep us posted what you find out~~
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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legsafire replied to bj1208's response:
Thank you for the response. They also did the nerve conduction test when they did the EMG showing the chronic radiculopathy. That was in March 2013. I am going to research the physiatrist path. Nerve damage usually not showing on MRI's is something my Neuro did'nt tell me. He just tells me he does'nt see anything that could be causing the nerve pain other than the EMG/nerve conduction test. I am not bitter with him, I just think that there might be more that could be done than send me to pain management and stop pain meds and install a spinal cord stimulator. I have reservations about the SCS, they give you a DVD with people showing great results, I am glad they had good results but I have heard other results that are not so great.
I am required to see a Psych. berfore the SCS can be tried. Hopefully he can help me with the skepticism. I do not want to stay on the pain meds so maybe this will all work out.
All this may sound a bit negative but I will not give up trying to find some answers.


Just talking to someone else helps.Your reply has helped and I hope you too find relief.
 
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bj1208 replied to legsafire's response:
Hi again I went thru same with thinking about the scs
I did the trial which they have u do. I can tell u it.increases my back pain trifold. It helped the keg pains ( not the numbness) but at thst time I was not taking the gabaoentin. So I had it removed.

The psych will not help u with deciding. U must do that on ur own. Keep doing research. Look up Problems with SCS Implants. Read all u can.

This has helped a lot if people but I've also seen a lot of people have problems too.

U do take gabapentin (Neuronton) for the nerve damage (has been diagnoses as Neuropathy nerve damage and.I can tell if I miss taking my dose (usually nite dose). It.dies help a lot (not the numbness ).

So do see a PHYSIATRIST and speak with them on obtions.

Keep us posted~~Joy
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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trs1960 replied to bj1208's response:
Count me in! Painful burning in calves and under feet. Another thing we all have in common is surgical procedures in the lower lumbar. If you find a good chart (I just searched unsuccessfully, there's a great one in my Dr's office that I've taken pictures of, but I can't upload them) The nerves exiting L4/L5 serve your calves and the bottom of your feet. Nerve issues in the lower lumber can cause all kinds of leg and feet problems.

Don't know if an EEMG would show anything or not? I doubt an MRI or CT would.

Gould luck and I wanted to tell you that pain is pain and you do not need a certain threshold to be welcome here. There are so many variables and often it is critical that we tend to what may seem to be minor issues less they turn into chronic and debilitating.

Tim
 
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legsafire replied to bj1208's response:
Actually the Dr. Iam seeing is a PHYSIATRIST. l loooked up PHYSIATRIST's in my area and he is on the list. I thought he was just a PM/Anethesiologist. I see him 4/21 to review the SCS and schedule starting a suboxone treatment. I have read horror stoties and life saving stories about all these treatments. I have to say i am anxious or to be honest scared that I will be going thru another year of, well that did'nt work lets try something else. i am soon to be 56 and have lived an above average active life. I just hope that the next couple months I can start to see improvements.
The suboxone program as explained to me will change my pain tolerance. It is not due to abuse just a long term tolerence issue.
I tried the gabapentin with no relief.
It's a 5 hour round trip and I get the 7.5 minutes of explanation.


Thanks for the help
 
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bj1208 replied to legsafire's response:
Hi again

What dose were u taking of the gabapentin? I've seen and was one in the early yrs . Some of the pain docs I saw had out me in this but only increased it to 900mg daily. It wasn't til a couple yrs later I found out I was never pit on a therapeutic dose. So over a period of couple months I was i was increased to 3600mg daily. So if u were not on a dose of at least 2500mg daily I'd say u may want to rethink this treatment.

Please keep us posted how u r doing. Take care Joy
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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legsafire replied to bj1208's response:
I think it was 800 mg 3xday. No relief really. I tried them for a month. I will bring that up at my appt. They are aware the narcotics work but the reply was: As your tolerance increases we will have to keep upping the dose. I guess he is protecting himself but I hope he is doing for my interest as well. I really don't like the narcotic path and told him so. He is giving me 2 months to complete the SCS evaluation and then its suboxone,then SCS trial and then the SCS implant. Those were my only options. I am seeing another Neuro for a second opinion before zi follow thru with his plan and also will see him 1 more time before I make the decision. But untul then I am limited other than the greatful feedback I get from you.


Thank you and God bless you all, J
 
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bj1208 replied to legsafire's response:
Hi again and again!! LOL

I hate to keep asking questions but when you were put on gabapentin did they gradually start you out?? The proper way to do it is start out at 300mg a day to get used to the med as it does cause some side effects that go away in about a week or two. then start to increase it by 300mg over a few days until you get to your therapeutic dose.

It usually takes a few months to achieve this. It took me a while to get to the 3600mg daily dose which this is the max limit and usually considered the therapeutic dose. I take 1800 mg daily (600mg tabs 3tabs twice daily). It really does help with the leg pains (not 100%) but I can tell if I miss a dose which is usually my nite time dose - I will start to get bad leg pains. It doesn't help with the numbness as with the neuropathy damage nothing can help with that.

Please do ask your doc about it. It may be you were not dosed correctly to get used to the side effects and dosed upward. I had my current pain doc tell me some docs don't realize this about the med (Lyrica is one too that needs dosed upward).

take care - Joy
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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legsafire replied to bj1208's response:
I am glad you asked.
I had to check with the pharmacist and it was 300mg. It has been 7 or 8 months since I tried it. I will bring it up at my appt.in a couple of weeks. I remember starting out with lower amount and increasing over a few days or so. There was a little relief but then it was no help so I stopped them and told the Neuro. about it and he did not recommend going with higher dose.
The physiatrist may be able to help me with this.


Thank you much, j
 
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bj1208 replied to legsafire's response:
I'm glad you did check -

it can take a couple of months to get the therapeutic dose and to feel it helping -

keep us posted~~
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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beauxla responded:
Legsafire,

Leg pain is no fun at all! When you have disc protruding somewhere in the spine the impingement has a direct correlation sometimes withe where you feel the pain in the leg. Spine surgeons and pain management use spinal injections to pinpoint where the pain is coming from. In some cases once the disc or facet causing the pain is identified there are less invasive procedures that can be done to alleviate the pain. Try looking up endosocopic spine surgery. YESS technique described by Anthony Yeung, MD
 
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davedsel2 replied to beauxla's response:
beauxla:

I am in the process of reporting all your posts to WebMD administration. You basically are posting ads/spam and mentioning doctors by name. Both are in violation of the Terms Of Use you agreed to when you registered for the WebMD Communities.

I find your form of free advertising very unethical and inappropriate.
Please click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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beauxla replied to davedsel2's response:
Dave,

Was not aware that drs could not be recommended. However the tone of unethical is not appropriate either. I appreciate your long history of back pain and what your trying dory comforting patients. I have many years of education and experience working with the best of the best spine surgeons in the world and I am merely informing patients on options. I too have suffered from back spasms and herniated disc. Connecting patients with possible solutions is the goal. Talking about your pain is one thing you are suggesting to some patients what type of doctors to see is also suggestive in a way. Bottom line is we all want to help others. I have referred patients successfully by sharing my spinal experience as a professional sales rep and one who has seen over 800 spine procedures.
 
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bj1208 replied to beauxla's response:
His tone was fine but he us correct that under the guidelines if WebMd u cannot list personal information especially physicians names etc. This is in the guidelines when u set up ur account and yes ur posts r being reported by myself too
~~ Click on my name or picture and read my story ~~
~~ Joy ~~


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