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Trying to stay positive but need guidance
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jbeavers36 posted:
I really could use some help right now. I've had a cervical fusion and microdiscectomy in the lumbar spine. The disc unfortunately is herniated again but is manageable. I've had multiple radio frequency ablations, steroid injections, and I cannot remember what the name is, something with facet. Anyway, over time anything that we have tried has been an epic fail. My pain is becoming out of control and I just need some guidance on what we should do next. Getting another cat scan and MRI but they already know about the degenerative disc disease and others. I just need someone that understands to hear me and give me some form of idea. I stay active, get massages, get on the exercise bike everyday. I'm trying to do everything they tell me to do and then some and I'm not getting better. Thank you, God bless y'all and pray all is well. Thank you Jennifer
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davedsel2 responded:
Hello, Jennifer and welcome. I am sorry you are going through this and fully understand.

While I have never had surgery, I has very serious spinal problems which causes moderate to severe chronic pain. I started having symptoms in my late teens which was over 35 years ago. There is not much that can be done for me, though I have found a new pain management doctor who is planning to try steroid injections and a possible rhizotomy.

Chronic pain affects every part of our being. While it is difficult, it is important to focus on the blessings in your life and keep a positive attitude. Keeping moving is also very important.

Make sure you have seen a spinal orthopedic surgeon and/or spinal neurosurgeon, which you probably have. A new breed of pain management specialist is called a "physiatrist" and they good deeper and offer a wide variety of treatments.

Keep doing your research. There are several websites with good information about spinal problems and solutions like spineuniverse.com and spine-health.com.

I pray you can get some relief soon.
Please click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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trs1960 replied to davedsel2's response:
First, it's good to hear from you Dave. I hope all is well

Jbeavers36,

I just copied this from my other post and will paste it here:



"01CThe problem is that your pain experience is as unique and as personal as your fingerprints. No two people have the same. Your pain is truly yours, and no one but you is as capable of understanding its patterns and nuances. The ebb and flow of your pain and the rhythms of your life must be taken into consideration. A doctor can help, a psychologist can help, nurses and family and friends can all do a world of good, but first you must accept responsibility for the management of your pain. You may always be dancing with the same partner, but at least you can keep from stomping on each other's toes."01D - Michael Lewandoski PHD.

I didn't begin to regain control of my life until I spent time with pain psychologists. Understanding anatomy is important to get the best medical remedy possible, but chronic pain by definition is a psychology problem. I'm not saying you're nuts, for if you are, I am surely insane! But neither of us have such maladies. Chronic pain may be rooted in somatic ilk, but it's now manifested as signals the brain will not, can not. Turn off.

Your last line of defense is your brain. In fact, statistically those of us that fail to recognize this and continue to place the responsibility of "fixing us" on our doctor or a new treatment, have a far lessor chance at success.

There many books on the subject and many psychologists that now specialize in pain.

Chronic pain is a life partner that is like an evil mistress. She'll leave you sleepless and broken if you can't control her.

With all sincerity,

Tim
 
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dannymaui replied to trs1960's response:
I will just add that maybe you should really rest for a bit. Maybe be a bit less active. I'm dealing with my own disc issues so I feel your pain. good luck...
 
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trs1960 replied to dannymaui's response:
Yes, youre healing, that's acute. Your body needs rest!

Chronic sufferers sometimes rest too much. We have to keep moving or we will lay down and not get up.

Always a balancing act. So much to think about, but thinking about it is maladaptive behavior...it's Zen, not Kung Fu.

I would have never learned so much had I not been hurt. That's a positive. There's always a positive if we look hard enough.

I never fought in war, I think my battle has been tough enough and it's made me a better, more compassionate person...another positive.

Watch some movies or my favorite read some books. Don't dwell on your pain. If you search for your pain you will surely find it, or worse, it may find you when you're not prepared.



Tim
 
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bj1208 responded:
Hi Jennifer -

When was your surgery?

I would say lay low on exercising etc as you already know the disc has herniated again. It could be that it's more damaged than what they think or you could be at risk of damaging disc above/below the area. DDD is just a culprit for those of us with spine problems - any work being done on one disc usually will cause stress to the others and the domino effect happens, at least that's what I'm experiencing.

Please wait til after you have the CT/MRI done to see what all is going on. As the say rest is the best policy.

Please keep us posted what you find out~~
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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jbeavers36 replied to davedsel2's response:
You are so right. Staying positive is key. I am an extraordinary positive person and try to help others with other or same issues. I have 3 beautiful children and an amazing husband that is my hero. He found a doc in Texas that does prp therapy with your own stem cells and injects them into the affected disc. I had a stat MRI done 2 days ago cause they thought I had some cause equana or something like that. Found out praise The Lord that I didn't but my L4-L5 and L3 are herniated and the L3 is worse than it was last year. My degenerative disc disease is killing all of my discs. I have only 1 disc throughout my spine that isn't either bulging or herniated. I lost all sensation in my left leg and my muscles have weakened due to the pressure. It's even affected my bowels. I didn't even know that was possible until I did the research. But I do realize this too shall pass and I will be healed. I truly believe the stem cell prp treatment will help. I had the prp treatment on my neck and it has made a huge difference. Thank you so very much for all of your comforting words and uplifting attitude. God bless and I pray you as well find comfort. I would really look into the prp treatment. It's your own platelets and cells mending the injuries. Thank you again
 
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jbeavers36 replied to dannymaui's response:
Thank you for responding. And I have actually rested, for a change. Lol. Found out my L4-5 and L3 are herniated and the L3 in quite worse than last year. My discs are either herniated or bulging besides one in my whole spine due to degenerative disc disease but I suffered trauma for 8 years that brought most of it on. I'm staying positive and staying down for a few days has helped more than anything. My leg is weakened and numb from the herniation and pressure on the nerves. But my husband found a doc in Texas that does a groovy procedure that he injects your own stem cells with the prp treatment on the injured areas. It's worth looking into. I pray you are well and thank you for responding. God bless
 
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jbeavers36 replied to bj1208's response:
You are exactly right. I had a stat MRI 2 days ago and showed herniation on L4-5 and L3. L3 is worse than last year and has caused my muscles in my left leg to weaken where I can't move it easily and my doc has ordered a cane. Jeez, I'm only 37 but I should feel blessed that it's not worse. I may be having a trip to Texas for a doc that will use my own stem cells and prp treatment on the injured areas which are many. It should help. I have faith. Oh, and I had a cervical fusion in a disc in the neck, I can't remember which one in 2012 and 2 months later had a microdiscectomy on L4-l5. Which is one of the ones that are herniated again. I have to see my surgeon but I will not allow them to cut on my again. It has taken 2 years for my neck to finally recover. I've had steriod injections in the nerves, discs, facet joints, medial branch blocks, something like burning something on the facet joints, and so many more that I honestly cannot remember. I once allowed pain to control my life but I'm a fighter. I will overcome. I will not allow this to beat me again. Thank you for your response. I pray you are well and God bless
 
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jbeavers36 replied to trs1960's response:
Thank you for responding. Yes, you are completely correct. If you dwell on the pain it will find you. I will admit I did that for a year after my back surgeries and nearly died. I had two miny strokes but The Lord showed the way to heal, to keep fighting and I have. I meditate and that has helped more than anything. I stay positive even though I found out there are more than one herniated discs. My leg is weak but I'm still moving I pray you are well and God bless
 
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bj1208 replied to jbeavers36's response:
Hey jbeavers36

you are correct in that we have to be fighters and not dwell on our pains. I did that too much after my last fusion (Dec 2013) and finally had it when my surgeon said there wasn't anything more he could do. I had been in tears and did nothing but cry every day for several months. So I did the one thing most of us have done I got really pissed off. All surgeon did was try to push the SCS implant and I said no. Went home and put my back brace on (he does not approve back braces) and had already set up a 2nd opinion with a doc at the university hospital and will see her next Wednesday. I am sure she will agree there is more going on with my back than what my surgeon said which was nothing showed up and have copy and it shows a lot.

we do have to take the upper hand and take control or else pain will take over and ruin us.

keep us posted how ur doing
~~ Click on my name or picture and read my story ~~
~~ Joy ~~


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