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New to group and need support
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jean1960 posted:
I'm in such pain that at times I don't think I can take it anymore. I'm at a Spine Center receiving injections to pinpoint my problem. A list of what's wrong so far - Disc degeneration in lumbar & lumbar sacral area, Lumbar Radiculopathy, Sacroilitis (sp?) & Spondylolisthesis of lumbar region. I'm waiting on an appt for another injection in S1-S2 region. The doctor thinks he's found the area of most of my problems. I'm just hoping this helps. I also have a list of exercises to do to strengthen my core. Just need to get the ambition up & not be in pain to do them. UGH


I know you all aren't doctors but just sounding off helps!
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davedsel2 responded:
Hello and welcome.

Are you or have you seen a spinal orthopedic surgeon or spinal neurosurgeon? These are the best doctors to see for back issues. Are you seeing a good pain management specialist, even one that is a physiatrist? These doctors offer a wide variety of treatments.

Keep doing your research. Good websites like spine-health.com or spineuniverse.com can help you understand your conditions and treatment options.

I pray you can get relief soon.
Please click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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bj1208 responded:
Hi and welcome to the support group

Dave has given you great advise, as always.

its best to see a spine doc as he listed just to make sure of diagnosis and to get the best treatment options. They can refer you to a good pain management doc. I have been going to a PHYSIATRIST for 6 yrs now and they have helped me tremendously managing my pains.

Dave gave you 2 great websites to research as these are ones we use to help new members with questions etc. Let us know if you need help with that or gave specific questions. Joy
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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jean1960 replied to davedsel2's response:
I haven't been to either ortho or neuro spine surgeon. I think that's the next step. I've been going to the NY Spine & Wellness Center since January. I've had 5 injections so far, trying to pinpoint the problem area. I've had an EMG study done a few weeks ago and an MRI of the pelvic area a week ago. Went back to see the Doc & NP and they told me it's the S1-S2 nerve root. When the Doc was hitting my knees with the little hammer I had no reflexes. That scared me! This unbelievable pain started when I went back to work after my father's death this past December. I've gone downhill since. At one point, I looked at my husband and started crying telling him how scary this all is. The scary part is how fast I've gone to manageable pain to pain that's a 10 on the pain scale!


I've always had back issues. I do have scoliosis that looks awful to me on an xray but I'm told it's not that bad. At times I'd see a chiropractor for adjustments throughout my life. BUT last June 2013 things changed. I started going for adjustments more regularly and that seemed to help. Stopped going when my Dad died and then started back up in January this year. I'd go for an adjustment and the next day I'd be in agony. I'd call the chiro and go back for another adjustment. This went on for 2 weeks and I asked and he agreed to go see a spine specialist.


It's funny you mention those two websites...been to them and yes they are helpful.


I pray I get relief, too! Thank you....
 
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jean1960 replied to davedsel2's response:
Just read your personal info here on WebMD and found you're allergic to all narcotics. SO AM I!! It's awful to not have at least that to help with the pain. I'm taking Celebrex now with muscle relaxers. I'm also taking Gabapentin 300 mg, 3 x's a day. They added Nortriptyline 25 mg at bedtime. That's helping me sleep...thank goodness.
 
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bj1208 replied to jean1960's response:
Hi again ~

not sure if you read my info. Some good insight of what I've been thru.

just wanted to add couple of thoughts.

I would stop going to the chiropractor until you see a spine specialist and have an MRI if your spine. Most likely the lumbar area. My preference is to see a Neurosurgeon Spine doc. Also finding one you feel comfortable with too. That's very important.

in my dealings with spine issues and the "S" nerve roots there usually is an underlying problem causing the nerve root pains whereas a disc(s) are bulging and pressing on the nerve root.

I have permanent nerve damage in both legs and I take Gabspentin for it. I take 3600mg daily which is a good therapeutic dose. In getting to the therapeutic dose my PHYSIATRIST Pain doc and several spine surgeons have said most times it starts at 2400mg daily and dosing upwards to reach the level to help your situation. Gabapentin, of course needs to be slowly increased until this level is reached. You are taking 900mg daily and this is not even a therapeutic dose but remember it must be slowly increased.

I'm not saying anything bad about pain clinics but I've had problems in the past at certain ones that were advertised on TV as being the best etc and/or being bounced around from one pain clinic to another until I was referred to a PHYSIATRIST Pain Specialist as they go deeper into pain management control treating from the cause of the pain and not the symptoms.

another thing to consider is family history. Are any family members that have spine problems. There are quite a few types of spine problems that could be hereditary. So do check with that.

also I have scoliosis too and just recently my spine doc said that can be painful and maybe part of my pains along with other areas.

please check into seeing a spine doc and a Physiatrist Pain doc. I think you will find a better diagnosis and get a better treatment plan. Keep us posted
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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davedsel2 replied to jean1960's response:
Both my wife and I are patients of the same pain management center here in Western New York. We really aren't supposed to mention doctors or facilities by name, but wanted to comment on what a small world it is.

Dr. S... is treating my wife for back injuries she got from an accident at work, and is starting to try different injections for me. I had ESI in July and it helped, next will be facet block injections soon.
Please click on my username or avatar picture to read my story.

Blessings,

-Dave
 
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jean1960 replied to bj1208's response:
Just read your info and wow! I thought I'd been thru hell!
 
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jean1960 responded:
I think I may have had a reaction to one of the meds today. This has been going on since the doc added it last week. I'm on Nortriptiline (sp?) and have noticed a strange taste in my mouth, dry mouth, confusion like you wouldn't believe, shakiness...just an all around odd feeling of being out of sorts. It has helped with the pain and helping me sleep better because I take it at bedtime. Called the doc's office this morning and they were gonna check with the doc and get back to me. They haven't yet and I don't know if I should take it tonite or not.
 
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bj1208 replied to jean1960's response:
Hi you can always call the pharmacist and let him/her know all the meds you are taking to see if any counter react with another. Describe what you are feeling. Pharmacy 's always know more bout meds than docs do.


keep us posted - Joy
~~ Click on my name or picture and read my story ~~
~~ Joy ~~
 
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jean1960 replied to bj1208's response:
Thanks for the advice Joy. Just hung with the pharmacist and it could be causing my symptoms. I asked if I shouldn't take it tonite and she advised to take it because if I stop it suddenly, I may feel worse tomm. She said a lower dose may be what's needed. Again, thanks for your advice. I'll be calling the doc's office again tomorrow
 
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bj1208 replied to jean1960's response:
Jean I'm glad you called. I always talk to my pharmacist with med questions as they are so much more knowledgeable than prescribing physicians. Keep us posted.
~~ Click on my name or picture and read my story ~~
~~ Joy ~~


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