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When nobody can figure why your in pain
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An_189461 posted:
My pain started at the age of 19 I'm 45 now.I did alot of self medicating when I was younger till it got to the point that if I didn't see my Dr. my wife was walking. I went to my primary care doc who reffered me to a orthopedic doc who took a x-ray and all he could see was that I had scoliosis he prescribed darvacet and physical therapy which I did .It had no effect except making my pain increase in my lower back.He then sent me for a MRI which showed nothing except mild degeneration of my disk ,my pain was getting to the point that just going to the grocery store was killing me worst if I had to wait in check out.After complaining enough the doc reffered me to a pain Dr. got another MRI still nobody could find anything but bone spurs digenerative disks and 3 slightly herniated disk ,still nothing that would be causing the a 8 to 10 24/7 yet he kept me out of pain he saw it in my face I guess .I saw him once a month and still do 10 yrs. now finally my 3rd MRI they found the extra disk a birth defect in my back. My point is if your in pain something is wrong and you do what you have to cuz I lost a lot of yrs.the love of my life and almost lost my noodle pain will rob you just like addiction .YOU take what the Dr. prescribes if you need more your Dr. should help you. When your in pain the last thing you want is to run out of your meds, get close with your Dr.we are great friends don't let pain rob you of your life ,self medicating does not work. It took 3 yrs. before they found were my pain was coming from. go though the right channels get to a pain Dr. that will not hesitate to give you what it takes to live again.There is a light at the end of the tunnel,no matter how bad it hurts you have to believe you don't have to live in pain forever!!
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bj1208 responded:
HI and welcome to the support group -

I find it very irritating that some doctors, even spine specialist, will look at MRI's and/or CT Scans and say there is nothing here that would cause your pains - all the while that you have degenerative disc disease along with 3 bulging discs.

There are many people walking around with bulging discs while having no pains whatsoever - then one person could have a bulging disc and be curled up in fetal position crying from the pains. Pain is pain, no matter how you look at it. We are all different and pain affects all differently.

Primary Care Physicians should order an x-ray to see if anything shows up - then an MRI and/or CT Scan should be requested. Being referred to either an Orthopedic Spine Specialist and/or Neurosurgeon Spine Specialist would be the next step as they are the best at reading the results. Once they review those they can direct you in the right direction of treatment plans - those may include pain management (PHYSIATRIST pain management is the best), physical therapy, chiropractic care, etc., This is the normal regimen that should be taken once a PCP has ordered an x-ray and not seeing what maybe causing the pains or seeing something that could be causing the pains.

However, in your instance, having an extra disc (L6) is fairly common - we have seen quite a few people posting that they recently found out they have an extra disc. And those that have posted often have the L6 disc as the main source of pain.

I am sorry that your doctor took such a long time to get you into the right path for treatments and am sorry that you did lose quite a lot. It's unfortunate you had to endure this and sad that these types of programs (internet, support groups, etc) were not around when you we were younger.

I am glad that you have found the right treatments that are working for you.

We do let a lot of people know that if a particular physician is not listening then it's time to move on and find a new one - and keep moving on til you do find the one that will.

Please let us know how you are doing - take care - Joy~~
 
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gidgetsurfs replied to bj1208's response:
joy, you r so right...w/your first two paragraphs. although, w/ me they can't find anything 2 fix. they see the pain. i had tears streaming down my face yesterday morning from nerve pain brought on by some nasty compression. that makes it extremely frustrating they don't get in there and fix it.

i want to believe there is light at the end of the tunnel, but each dr. i have seen keeps turning out the lights.

i don't think very much of them. gotta find the right dr. who can help me, whether it's in my hometown or not.

not giving up hope,
gidget
 
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bj1208 replied to gidgetsurfs's response:
hi gidget - you say your primary care doc sent you to an orthopedic doc -

Well, is the orthopedic doc a spine specialist??? There is a BIG difference.

I think I would gather all the reports/printouts and go see either an Orthopedic Spine Specialist or Neurosurgeon Spine Specialist - this does not mean you need surgery - but they are the BEST at reading the MRI/CT Scan results.

SOMETIMES MRI's and CT Scans may not pick up any nerve issues - when that occurs the doc's may order a Myelogram test to be done - they inject the dye directly into the spinal cord then they move the table into different positions so that they can get all angles to get a better picture - once this is done they take you in to have a CT Scan done -

Please be sure you are seeing the right spine specialist - as stated before there is a BIG difference between an Orthopedic Doctor and an Orthopedic SPINE SPECIALIST -

Take care and keep us posted! *HUGS* Joy


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