Skip to content
My WebMD Sign In, Sign Up

Announcements

Visit our Crisis Assistance Link for resources. For immediate help, get to the ER.

*No Dr Outside Contact Please*
Same Woman Problems. I Need Some Support. PLEASE.
avatar
bpcookie posted:
Possible trigger (shrug) and this post is only for the women, please. xxxxxxxxxxxxxxxxxxxxxxxxxx

This Lichen Simplex Vulva is just taking its toll on me. Today it has really gotten to me emotionally. Im so depressed because of it and Ive been crying off and on.

Its running my life. Constant pain and burning. I cant live this way. All hope is starting to fade. I fear that this will be a life long thing. The Gyno has been treating me with all kinds of different scripts, but nothing is working. Im not having any relief at all. NONE. Is there even a friggin cure??? I really doubt it.

I just cant stand this anymore.

I was talking to my husband on instant messenger, explaining that I was very depressed about it, but all he wanted to friggin talk about was the damn bath tub leaking. SCREW THE BATH TUB!!!! I dont give a crap about the damn bath tub. Im hurting here and I want some help.
If people think Bipolars are crazy, then show them we really are. Just go up to somebody on the street and say “You’re it!” and just run away!!
Reply
FirstPrevious12NextLast
 
avatar
HeidiSue3 responded:
I have no idea what do to, but I send you hugs and lots of sympathy.

Darn husbands they seem to go off on their own tangent and not understand when we need help or even just a sympathetic ear.

Heidi
 
avatar
bpcookie replied to HeidiSue3's response:
Thank you so very much for replying hun. You have no idea how much it means to me.

I finally got my husband to understand how depressed I am and now he is talking to me about it.

I was going to have pelvic floor therapy done, which is supposed to help with the pain that Im having, but my health ins. wont pay for it. They said they would only pay for it if it was *acute* and what I have is *chronic*. Its the ins. companies way of getting out of paying for something.
If people think Bipolars are crazy, then show them we really are. Just go up to somebody on the street and say "You're it!" and just run away!!
 
avatar
slik_kitty responded:
hugs hun. have you looked online about it to see if you can find something to try that you haven't tried yet? glad your hubby turned around and offered you the comfort you needed. hugs again. lots more where that came from.
 
avatar
bpcookie replied to slik_kitty's response:
Hey Honey, yea, I have googled the hell out of it and all I find is the same ole thing. I keep trying to find a cure but according to the info I have read, there is no cure. The only thing that can be done is to treat the symptoms and what my Gyno is giving me just isnt working.

I did find a google site that said Gold Bond powder will keep it dry. Lichen Simplex can cause over wetness and that also adds to the pain. So I bought some of the powder and when I used it, omg, it made it so much worse. I immediately had to wash it off.

I have found a few things while searching on google about urine with too many crystals in it. It can cause burning and a darker color and a strong smell, which is what I have. So Im going to make an apt. with my Dr. to have her check my urine. If it is my urine causing the problem, then fixing THAT may help stop the Lichen Simplex pain.

Thank you so much for the hugs, I will take as many as you can give. With friends like you, I dont have to face this thing all alone. hugs
If people think Bipolars are crazy, then show them we really are. Just go up to somebody on the street and say "You're it!" and just run away!!
 
avatar
melly2210 replied to bpcookie's response:
It sounds like you've covered most CONVENTIONAL medical treatments for this. Have you thought about a more holistic approach? I found all kinds of alternative topical treatments like apple cider vinegar and water to less common possibilities.

And I did notice while I was reading up on it that it can be linked to Serotonin levels. Grrrr.....go figure. Some lady somewhere is taking Elavil to cure hers.

If you've explored the organic and alternative medical therapies, I'm sorry they're not working either. If not, let me know and I'll get my friend who is a guru at this kind of stuff to point me to some very reputable sites for you.
Hope is that thing with feathers that perches in the soul and sings the tune without the words and never stops... at all. ~Emily Dickinson
 
avatar
bpcookie replied to melly2210's response:
Yes, def. talk to your friend and see what she can come up with. I really appreciate it. Thank you.
If people think Bipolars are crazy, then show them we really are. Just go up to somebody on the street and say "You're it!" and just run away!!
 
avatar
WolfFaerie responded:
Aww MamaC! I'm so sorry that you're in so much from your woman problem. Just wanted to offer my own hugs for you and sending good thoughts/prayers for you as well.

Wolf
 
avatar
bpcookie replied to WolfFaerie's response:
Thank you wolf, your a real peach. Thank you for the hugs, thoughts and prayers as well.
If people think Bipolars are crazy, then show them we really are. Just go up to somebody on the street and say "You're it!" and just run away!!
 
avatar
Dyanne48jj replied to bpcookie's response:
i se e where you said you used that golden stuff. as i mentioned in the other post, what about baking soda. remember that is of a more 'natural substance, for lack of a better word. heck, we can use it in our mouths so that makes it more trustworthy to me for down there ya know.
I KNOW I am crazy....THAT is what keeps me from going INSANE!!! Oceans and Stars- Dyanne
 
avatar
bpcookie replied to Dyanne48jj's response:
I will ask my Gyno about it. Right now she is having me use A and D ointment, but its an oily ointment which is supposed to protect the skin, but it is also wet and causes me to sweat. So I dont know if I am better off not using it or better off using it. I just dont have a clue.

But using baking soda to keep the area dry seems like a good idea. I mean, it make total sense. Thanks sweet heart.
If people think Bipolars are crazy, then show them we really are. Just go up to somebody on the street and say "You're it!" and just run away!!
 
avatar
melly2210 replied to bpcookie's response:
Ok....I had the whole discussion with her. You are not going to like what she had to say, but I'm gonna share it anyways.

Gold Bond. Just enough to coat. She says it's going to burn like heck but stick it out. She's had this problem and the Gold Bond cleared it up within 24-48 hours. She said you have to grin and bare it through the initial burning when it's applied and that only lasts maybe an hour.

The other important thing is that you have to keep the area as dry as possible. And the second you see it returning, reapply right away.

((((cookie))))
Hope is that thing with feathers that perches in the soul and sings the tune without the words and never stops... at all. ~Emily Dickinson
 
avatar
bpcookie replied to melly2210's response:
She had Lichen Simplex?? It was cured with in 24-48 hours? Ive never heard of that happening so fast before. Even when I google it, everything I have read says it lasts for months and months and for some women, years. Did she do anything else for this? Other then the gold bond powder?

I have been trying to keep it dry but the Gyno wanted me to use A and D ointment, which of course isnt dry, its an ointment. I understand her reasoning behind the A and D ointment because its supposed to protect the skin but as you know, its not a dry med.so it can also be one of the things causing the pain. If you get what Im saying. So I think Im going to stop using that A and D ointment and concentrate on keeping the area dry. Then I need to find a specialist who knows how to treat this sort of thing.

Thanks hun
If people think Bipolars are crazy, then show them we really are. Just go up to somebody on the street and say "You're it!" and just run away!!
 
avatar
minkysmom1 replied to bpcookie's response:
Hey Cookie,

I'm with Melly on this one. That Gold Bond powder is amazing. What have you got to lose? I use the Gold Bond for various ailments,and because of the medicating properties in it, it clears it right up.

Hang in there Sweet Pea,it's going to get better.

Oh and the baking soda is a good one too!

Loves,

Minky
 
avatar
Supa_Kay replied to minkysmom1's response:
I know you have done your own research on it too, but yeah everything I've read on it says the prescription topical steroid, Baking soda baths 10-15 minutes, and the Gold Bond. It doesn't sound to me like the A&D would help much aside from keeping you from itching but that is what the steroid cream should do anyway.

<3 hun, try to take the time to just relax as much as you can and I'll be praying for a speedy recovery for you ~ Tessa
To the power higher above... Please keep your arm around my shoulder, and your hand around my mouth, Amen!


Featuring Experts

Joseph F. Goldberg, MD, is a Clinical Professor of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY. He also maintains a private prac...More

Helpful Tips

NSAIDS and lithiumExpert
Nonsteroidal anti-inflammatory drugs (eg, Motrin/ibuprofen, Advil, Naprosyn) raise lithium levels by about 20%. We often therefore say ... More
Was this Helpful?
68 of 91 found this helpful

Related News

There was an error with this newsfeed

Related Drug Reviews

  • Drug Name User Reviews

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.