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for hisdestiny63
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hope7951 posted:
Mayo Clinic lupus symptoms that were erased
You become what you think about...
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hisdestiny63 responded:
Hi Joye:
HAPPY BIRTHDAY!!!! Thank you for the Mayo Clinic link. I went to see a friend of mine today, she is a nurse in a Dr's office and she has had Lupus. She took one look at my rash and said, "There is no way in Heck you don't have Lupus!" I told her the lab ran an ANA and it came out negative. I told her which lab did the test and guess what she told me. She said the ANA must be done in a Dr's office and placed on a microscope to be looked at, not spun down in a centerfuge and sent to the lab. She said if they spin it down you will always get a negative result. Well she told me to get into a Rheumatologist ASAP. I called one office and the earliest appt is Wed. She also took pictures of the rash in case it dissapears by then. So that is where I stand. Thank you again for the info and Happy Birthday!
Sheri
 
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hope7951 replied to hisdestiny63's response:
From what you've said, I would really worry about lupus. I'm the opposite and have tested positive on ANA 4 times yet have symptoms of vitamin D deffiecenincy and fibro which my rheumy is trying to clear up to see what the lupus has done. She has me swimming 30 minutes every day in the outdoors. I go back Aug. 4th. Lupus is an odd illness but can be very dangerous. Please pursue all testing and find out for sure. The rash is a big time sign as well as sun sensitive, ANAs are not always definitive but you have so many symptoms that I'd push for a clear answer and treatment.
You become what you think about...
 
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hisdestiny63 replied to hope7951's response:
Thanks again Joye, I am going to pursue it. I hate to say it, but, I'm kind of hoping for a definitive diagnoses because then at least it would explain sooo much! It still baffles me as to why no other Dr even blinked twice about the rash (which I have had before when going to see the Dr). I will keep you updated!
Sheri
 
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hope7951 replied to hisdestiny63's response:
Lupus like bipolar is a nasty diagnosis and getting 4 out of 11 could be right unless you have other factors. As, like bipolar, there is no cure, rheumies go through a lot to diagnosis - I'm on my 2nd year. I'm hoping they can move it along for you. With your (sp) hirshosomotos's) you should have a posivite ANA in your records somewhere.
You become what you think about...
 
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snowyowl33 replied to hisdestiny63's response:
Hey hon,

If your doc is not worried re the rash, then maybe get a second opinion from another doc. Only they can tell you what's going on with you as you may have other factors that they will need to include in a dx. ..Get a second opinion, and keep us updated...

Hugs Snowy
Why are you trying so hard to fit in when you were born to stand out (only author I know was the one who wrote it on the bathroom stall....Anon)
 
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hope7951 replied to hisdestiny63's response:
I was just reading at the Lupus Foundation site the they say 90% of people with the butterfly rash have lupus.
You become what you think about...
 
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hisdestiny63 replied to hope7951's response:
So then I'm not crazy? Everyone I mention this to thinks I am being a Hypochonriac (sp). Why do doctors ignore this in the past? It really makes me wonder why? Unless they don't think I have Lupus. My previous pcp never even mentioned ANY CONCERN about the rash, and I have gotten it before and showed it to him while I was there. Joye, another question for you if you don't mind.....If I don't get a dx and the rash clears up and then comes back, will it keep on flaring until a dx is made? I wish I could post the pictures my friend took so you could see what the rash looks like.
Sheri


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