Skip to content
My Brain Cancer Regime Now
Lizardoli12 posted:
The newest news for me is that an expert nuerooncologist wrote my oncologist a report stating that he might consider doing 36 more chemo treatments of the high dose once a month. That is 3 more years!! I talked to many people about it, mostly my family and they said to do it.

Kind of burst my bubble of seeing the end in site, but I am reminded by many people that I have an incurable cancer so this will buy me those 3 more years at least!! What a bummer, but I guess once a month I can deal with while maybe they do more research for this rare form of brain cancer and wait out a cure!

But that gets me to thinking, will the dollars for research be there since it is rare, does the money get focused on more common cancers?
leahquestions responded:
wow-- I am glad for you! this is laura , I'd love someone else to talk to about brain cancer....they told me a few months if the chemo doesn't work , I won't see my 50th birthday... in May but I have hope adn now I feel sooo much better without the radiation ... write me
jms4800 responded:
My information is ongoing research turns up new stuff every week. I was given on year and now it is possibly 3-5 years. My quality of life must become more important than quantity. I was stressing too much, I let go and let God.
Praying for you,
jms4800 replied to leahquestions's response:
I am 62 and have had a great full life, Now I was old one year, I live in Joplin Mo, and have many friends and family. I still have 27 days of radiation. My feet are swollen and I hve problems sleeping. Chemo is not as bad as I thought if I take the nausea pills. I have Glioblastoma, multi form, stage 4. Survived surgery , still able to read use a computer, lost sense of taste. I am focusing on quality of life, not quantity.
Keep in touch.
jms4800 responded:
LIzardoli, Yeah I was placed in the phych ward for going into a steroid induced rage against my wife, who I love dearly. Put me on Haldol, I was like being on a drunk, dropping acid and having a bad case of the flu all at the same time.(I am and old Hippie) did lost of self destructive behavior in the old days. I get bits and pieces of information. Finally I have my primary care Doctor handle all my Meds. 19 pills a day. Radiation for 42 days. I don't like the fatigue but I will endure it to get rid of the S.O.B.
Tumor. I am now on pristique for the depression and anxiety. Prozac was not working. I research everything on line and tell my Dr. what I think I need and he does not argue
Keep fighting, Keep in touch.
ArikoSan responded:
I have two relatives who survived cancer and one of my daughters best friends recently diagnosed with Glioblastoma, mi best advice is to try a vegetarian diet or at least do without hormone loaded commercial meats, specially poultry, eat more cruciferous vegetables like broccoli, more kale, red peppers and fruit, use quality vitamins, take a supplement containing curcumin and Silymarin, this will ease the chemo induced damage and slowdown the cancer growth, take care.
medfaxx replied to ArikoSan's response:
This is a "TED" video on using electrical tumor treating fields you may find helpful and encouraging. Good luck.

Spotlight: Member Stories

headache for few seconds as a spoted area , double sighted for a while some times in one eye, headache strongly sometimes for few seconds and sometime...More

Helpful Tips

Chemo side effects
The standard treatment for my brain tumor was sugery, radiation, and chemo, The chemo med is in pill form called Temador, I am now on the ... More
Was this Helpful?
13 of 39 found this helpful