Skip to content


    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!

    Yours in health,
    WebMD Message Boards Management

    Why so much pain?
    mjgonecrazy posted:
    I have finished chemo and radiation, it's been 4 months now since radiation,
    and it seems I have a new pain everyday. I had lymphnode removal, and a frozen shoulder in that arm and it is better now, but now the other arm is hurting, in the shoulder and now I am hurting in my neck down my sides,
    under my arms and my peck muscles, any ideas on why this is happening?
    I thought maybe justallergies, but getting tired of hurting, does anyone know
    the amount of time your body hurts after chemo? Please some advice!
    rachael67 responded:
    I am sorry to hear how much discomfort you are having. I don't have an answer regarding what you might expect connected with chemo as I didn't have that, but surgery alone takes quite some time to heal. (As my DH kept reminding me, "You've been stabbed!")

    Radiation usually has more discomfort connected with it than we are given to expect. I am seven years out and my rib cage still hurts!

    The removal of the nodes and the frozen shoulder certainly didn't make things easier. And following on that, I know often when one portion of our body is uncomfortable we often tend ot misalign the rest of the body from a normal position in order to compensate. Perhaps you have gotten into some sort of rut, each trying to correct for another?

    I do know if you haven't discussed all of this thoroughly with your doctor, you certainly should. Know we will be sending healing thoughts, and do keep us posted on how you are doing.

    Just when the caterpillar thought her world was over, she became a butterfly! Don't give up five minutes before the miracle!!
    1fernehall responded:
    Hey crazy: Sounds like you're going through more discomfort and pain than you were expecting. Did you have frozen shoulder AFTER the surgery? No matter when it was, you really should get an appointment and have it checked out. With lymph-nodes missing, you need to watch out for lympyhedema. That's why I suggest a Dr. check.

    Please know that we're hoping for your best. Let us know how you're doing. Fern
    mjgonecrazy replied to 1fernehall's response:
    yES THE FROZEN SHOULDER WAS AFTER EVERYTHING, IT HURT WORST AFTER RADIATION, AND SO I had a MRI and it showed a tear and a frozen shoulder went thru 2months PT and it is better, but my other arm is hurting now. and nothing has been done to it. so I can't explain it other than I have hurt it somehow.
    but it seems like things just start acheing, for no reason.
    I just don't know how to get started back again???
    sada09 replied to mjgonecrazy's response:
    Mj, So sorry to her you are hurting, I don't know how you feel about seeing a chiropractor, but I can report it helped me tremendously after radiation. For some reason I was petrified for all 33 rad treatments, my body never seemed relaxed, and I ended up with my whole body out of whack, pain everywhere. I always had considered chiros to be... well not doctors and some kind of quacks, however my daughter convinced me to give it a try after all conventional medicine didn't help me, and after a couple of weeks I was feeling so much better, I continued for several months to go at least weekly, and now usually go once a month just to make sure everyhting is ok , what a difference. The first thing I will do if I ever face breast cancer treatment again, is ask for Ativan or some other relaxation medication, I obviously could not handle the cancer treatment mentally.
    mjgonecrazy replied to sada09's response:
    Thanks so much I ay discus this opton with my dr.
    but I am afraid I will have pain, no activity I guess might be causeing my pain, but when I try to get started again everything hurts, and I don't know what it is, I get so sad, deppressed, and emotional. cause I am so tired of it all, and want to feel normal again. Thanks so much for replying..
    mbgOK replied to mjgonecrazy's response:
    When I finished treatment, I had a lot of pain as well. I remember my hips just aching all of the time. It has been 6 years since I completed chemo and radiation and I still remember it like it was yesterday! I did talk to my doctor and he sent me to a pain management physician at the cancer center. It took many meds and a lot of communication back and forth but I was able to get close to pain free but not quite which was fine. I was able to function again, take care of my family, work, etc. Just be open and receptive to their recommendations and do exactly what you are instructed to do. When I first started I was taking 10-12 different meds, including anti-depressants, narcotics, anti-inflammatory, muscle relaxants, ant-anxieties, but every med was started at a low dose and increased depending on what symptoms I was experiencing. Today, I take only 2 meds which keeps things under control for the most part. Hang in there, it takes time but there is help for you. Please don't think your life is going to continue this way because it doesn't have to. Call your doctor right away for that referral.
    mjgonecrazy replied to mbgOK's response:
    Thanks so much for your advice, I do take meds for anxiety, not much on takeing pain medicine, have not taken any through this whole thing. I have a cat scan scheduled mon. for my shoulder
    and I guess I will go from there, But It's like something new everyday, the numbness in my feet is back again, and my legs ache. and my anxiety is thru the roof. I just want to feel normal again, but I here it will be awhile before that happens.
    any ideas on excercise, to help with things.I know it can't be anything big, but I need to move around everyday whether I want to or not, and this being tired all the time is driveing me crazy. The more info on life after treatment you can give I will love.
    Thanks so much MJ
    judyfams replied to mjgonecrazy's response:
    You might want to ask the place where you are getting the CAT scan done at the time you check in to send the results of the scan to your family doctor, and/or an orthopedic doctor if you have one.

    There is an outside chance that this may be related to your problems with breast cancer, but maybe it could be best treated by another MD specialist other than an oncologist or breast surgeon. Your family doctor or orthopedic specialist might want you to have some kind of physical therapy to help you with your shoulder, rather than you finding exercises to do on your own. Another specialist may see things in the scan that the cancer specialists might miss, since their areas of specialization are different from one another.

    The scan facility will send the results of your scan to doctors other than the one who specifically ordered it, so at least do that so you can have another doctor interpret the scan.

    Lots of good luck to you and we all will be praying for you and please keep us informed of how you are doing.

    mjgonecrazy replied to judyfams's response:
    Thanks so much for the info, I had a frozen shoulder in the left arm
    the arm that I had the lymphnode removal, did see a orthopedic Dr.
    had PT for 2 months and it is better, but now my other shoulder is hurting, haven't done anything to it and was working it to.
    seems my joints are starting to hurt. I finished chemo in jan,2010
    and radiation march 2010, I am just finding it hard to get going again, seems like something else happens to slow me down.
    Not like I'm moving very fast right now.and after finishing the awful treatment, now all this, hopefully it will all work out and soon.
    Thanks again
    shelala51 responded:
    Hello. Just one thought for you ...... are you on any aromatase inhibitors (like Arimidex or Aromasin)? I've just started on them and feel OK so far, but I am told they can cause muscle, bone and joint aches. If that is what is causing your pain, they can try changing you to a different one that might not have the same side effect.

    Best of luck to you

    PS - I posted a question about my Oncotype score of 20 a long time ago and someone was nice enough to respond to me. At the time, I was just too stressed to answer and thank her. If she is still on this discussion, I'd like to thank her now.
    mjgonecrazy replied to shelala51's response:
    No I do not take those meds.
    I think my problem is just not enough movement during chemo, and trying to get back into it is making me sore,
    don't know why its in my arms? In the left arm that I had lymphnode sugery I did have a frozen shoulder but also a tear,
    but after PT it is better, and I think I just hurt the other somehow, Maybe just some PT will help it to, cause it was fine before. I will find out mon. Thanks everyone, you are all awesome. Hugs and all be well. MJ
    kiwiallright responded:

    It sounds like you have been through the ringer - does the pain get any better - YES it does but it takes a lot of work on your part. Apart from the frozen shoulder I am experiencing all of the same pain. Like you I went to PT and that I felt did not help as much because they are stretching your muscles not lengthening them. During chemo my left arm starting throbbing between my shoulder and albow - that muscle that is in your arm is connected to the muscles that run along the back of your neck. I do not know all of the names so we worked at lengthening all of the muscles that were connected and also rubbed them in a technique known as cross fiber.

    If you were to lay on your bed and put your arm back and if you feel it pull, keep stretching it, then take your other hand using your kunckles and slowly and with pressure rub across that muscle - it will slowly release, remember across.

    You did not say if you had a masctecomy or not, well if you did, you need to also take our hand and move all the muscles arcoss your chest, start in the center and go to the left then the right, when in the shower get a sponge, soap it up and rub and long and as hard as you can stand it. Don't worry those muscles in there will pay you back, but if you keep doing it, they will pay you back with less pain over time.

    I have visited the swimming pool and get I do a lot of rotating (rolling) of my shoulder back, backstroke and anything that I am moving those muscles backwards - I do some freestyle swimming but that bothers my left arm, but the more I do it the more movement I get . I am in the pool for about 30 minutes averaging two to three times a week. The resistance of the water is very low impact
    What I have come to understand is the more you use the muscles in doing things like gardening or everything forward - it causes your chest muscle to contract and your shoulders roll forward
    After all of the work, my left arm has quit throbbing, it still bothers me and so do all the radiated muscles in my chest, I am not pain free, but I am getting there. Pain pills do help, but with all the other med's I am on, I am trying to use them only if I cannot stand it any more. Like tonight, rode 22 miles today on my bike, did yard work and I can hardly move. But as they say it take time.... Good Luck

    Helpful Tips

    What Is The Pink Bus???
    One of our great resources is our famous PINK BUS! Some of you are familiar with her. Others may need a little introduction so I went back ... More
    Was this Helpful?
    60 of 76 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

    For more information, visit the Duke Health Breast Cancer Center