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Implants and ALCL
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An_188749 posted:
Hello all. I haven't written in much, but I have been following the discussions since I was diagnosed with breast cancer 1 year ago and have received a lot of help from everybody's comments since then. I have a "gummy bear" implant and just received a letter today that the FDA has issued a statement about a possible association between breast implants and anaplastic large cell lymphoma (ALCL). Sounds rare but like there may be an increased risk with breast implants. Makes me kind of crazy since I've been doing EVERYTHING possible to decrease any further cancer and this announcement has thrown me for a loop. Anybody else want to chime in about this?

Shelala
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bcdevil responded:
Is this for all types of implants or a certain kind?
Sandy
 
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judyfams replied to bcdevil's response:
Sandy,
Gummy bear implants are fairly new and known as "cohesive silicone gel implants" and are different than the usual saline and silicone implants.
The gummy bear implants have particles dispersed in the silicone which gives them the consistency of the gummy bear candies.
From the original post it seems that this warning is just for those who have the gummy bear implants, and notthe regular silicone or saline.
If you are still anxious - call your ps on Monday and check it out with him.
Judy
 
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rachael67 responded:
Shelala, I am sorry that you are facing this stressful situation. I put ALCL in the main WebMD search engine and found the attached reference from January which speaks of this possibility withall implants.

Breast Implants Linked to Rare Cancer FDA Links Both Saline and Silicone Breast Implants to Lymphoma, but Risk "Very Low" By Daniel J. DeNoon
WebMD Health News Reviewed by Laura J. Martin, MD Jan. 26, 2011 -- Women with breast implants "may have a very small but increased risk" of a rare form of cancer , the FDA today warned.
The FDA is aware of some 60 reports -- 34 in the medical literature and others from doctors, regulators, and implant makers -- of anaplastic large cell lymphoma (ALCL) in women with breast implants.
ALCL is a very rare disease that almost never starts in the breast. Yet an accumulating number of case reports suggest that ALCL in the breast may be a rare side effect of breast implants. ALCL is not breast cancer. It is a form of lymphoma that affects white blood cells called T cells.
The ALCL tumors linked to breast implants appear in the scar tissue that surrounds the implant, not in the breast itself. Although ALCL can be a deadly disease, case reports suggest that ALCL linked to breast implants is less aggressive -- and more easily treated -- usual ALCL.
Some 5 to 10 million women worldwide have received breast implants, yet only a very few have ALCL. It's not yet clear whether the implants actually cause ALCL. Women without ALCL symptoms do not need to have their breast implants removed.
"Women not showing symptoms or problems do not need to change their health-care routine. ALCL has occurred in a very small number of women compared to the millions who have had breast implants," William Maisel, MD, MPH, chief scientist at the FDA's device center, said at a news teleconference.
Most of the ALCL cases linked to breast implants have been in women who underwent implant revision operations due to a collection of fluid around the implant that would not go away. In the cases described in the medical literature, ALCL developed one to 23 years after implant -- on average, eight years after the initial implant.
It's not at all clear why implants might cause ALCL. One hypothesis is that silicone from the shell of the implant (saline implants also have silicone shells) might cause cancerous changes in T cells. But there is far too little evidence to know whether this is the case, Maisel said.

I hope this is some help, and am sending good wishes that it proves to not be a major concern for you. Please let us know what you learn and how you are doing. We care!

Blessings.
Rachael
Just when the caterpillar thought her world was over, she became a butterfly! Don't give up five minutes before the miracle!!
 
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bcdevil replied to rachael67's response:
Thank you Rachael!
I guess it's just another thing to worry about, but at this point we all have so much stress and i don't think we have alot of control over this one. It is great though to be aware of all the possibilities so we can really LISTEN to our bodies and address our concerns with our specialists. I will just chalk this up as a small concern, compared to what we have all been thru and are going thru. Thanks for the info sweetie!! Im doing another karaoke fundraiser for NBCF tonite. If i knew about my surgery sooner, i would have cancelled, but the show must go on!! This $ raised could be the cure!!
Hugs and lucky shamrocks
Sandy
 
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rachael67 replied to bcdevil's response:
Good luck with the karaoke...You never know just which dollar will be the needed one!

Blessings.
Rachael

PS...If I were at the benefit I could raise a ton of money...They would pay me big bucks NOT TO SING!!!
Just when the caterpillar thought her world was over, she became a butterfly! Don't give up five minutes before the miracle!!
 
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bcdevil replied to rachael67's response:
Rachael,
No we would both raise big bucks together!! It wasn't a big turn out because you know in Mich, that summertime brings weddings, grad parties, and bbq's. People were stuck in their homes for 10 months so they really don't want to sit in a bar. But, one guy wrote a check for 500$ and his ex-wife was just diagnosed. We raised like 1200$ for the cure, so hopefully this was the lucky charm! Will keep on fighting for a cure. Winners never quit, and quitters never win!
Hugs and lucky shamrocks
Sandy
 
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brcansur replied to rachael67's response:
Rachael
Thank you for the information. but it just scared the crap out of me and I don't scare easly. I got almost to the end and seen the part about fluid buildup around the implant that would not go away and can develope one to 23 years after implant put in. This is what happened to me and they thought the implant ruptured but in surgery found it had not, but that my breast was full of fluid all around implant. I am going to ask doctor about this on mon when I go in for follow up. I am even going to look at the write up and print it to show him and ask if he tested for this when he did my surgery and took skin and fluid samples. This is a big red flag for me after what my breast looked like and knowing it was full of fluid and they have no idea why. Thank you so much I am going to check into it for sure. Not going to worry just make a plan to get it checked and move on but it makes you think for sure is anything really safe out there. I hope you are having a good weekend angel hugs Roberta
Roberta
 
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brcansur replied to bcdevil's response:
Sandy
That is great every penny counts and that is a lot of pennies. You should wait now and have another after summer and school starts like sept or oct have a costume party karaoke That would be so much fun and I bet you would get a lot of people and money. That was so nice of the gentalman to give $500 for the cure and because of his ex wife that is so cool and sweet see some people still care after all. I am proud of you no matter what you went and did this and still made money for the cure. Make sure to get some rest before fri don't over do it. Get some books and other things you can do sitting or laying down ready now so you wont have to find them after surgery. Get stocked up on your drinks to stay hydrated, and snacks friuts and all so you make sure to eat enough but not to much lol.. Love my choc and cheese and whole wheat crackers. I found these mint choc covered almonds oh my god if I start eating them I don't want to put them down. So I have to take a handful and put the bag back in the freezer lol.. Or I will eat the whole bag. They are so good I found them at wal mart love them. So make sure to have everything ready for you so you just have to grab when you get up to go to the ladiesroom and you are set. Rest a lot relax and enjoy getting taken care of for awhile after surgery. I will send more angels your way and angel hugs as always Roberta
Roberta
 
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shelala51 replied to bcdevil's response:
Thanks everyone for responding and sorry to scare all of you that have implants. Yes, the warning is for all kinds of implants (although it seemed to be more prevalent with silicone implants). I am really pondering what to do.......I'll see what the p.s. says next week.... but I'm thinking he'll just reassure me that the ALCL finding is very rare. However, I don't want any increased risk of any kinds of cancer and, don't know if I'm over-reacting, but am even considering having the implant removed.

Shelala
 
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0910faith replied to bcdevil's response:
Sandy,
That is wonderful. I am so proud of you for raising
so much money.
I am sorry to hear the guy's wife was just diagnosed.
He will be very supportive of her for sure.
Good job - you go girl!
hugs
faith
Finally got a new computer.
 
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0910faith replied to brcansur's response:
Roberta,
After you question your ps please let us know.
I am so sorry you are at the front of this firing line.
I am thinking about you.
I am also going to talk to my ps cause I have so many
problems with excess fluid building up. He doesn't seem
concerned but I am. I am still getting 50-60 cc's out of
each drain. I can't believe it. I don't know where it is
all coming from. DRIP AND DROP ARE WORKING
HARD!!!!!!!!!!!!! Thanks for the names Sandy
Roberta, I know you are going to be fine
love you
many angel hugs
faith
 
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0910faith replied to shelala51's response:
Shela,
Thanks for the info. I am going to ask my ps
about this also.
I can't believe this has come up. We have all been thru so
much already.
hugs
faith
 
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0910faith replied to brcansur's response:
Roberta,
Chocolate covered almonds - My favorite.
Won't hurt to gain some weight back.
Sandy, this lady knows what she's talking
about. Good snacks.
Sandy, I'm on countdown with you my friend.
hugs to all of you
faith
 
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bcdevil replied to 0910faith's response:
Faith,
Glad you got a new computer!! I think i've gained about 5 lbs but will prob lose it after next surgery. This is my 3rd surgery in 3 months! hope all this anesthsia doesn't make me loopy!!! only 4 days and this expander is outta here. Concerned about this implant thing, but i guess it's kinda late to be worrying bout that. Will just make extra sure we all get checked thoroughly for this!! Hope Drip and Drop do their job this time and you can start to move forward. Sent you advice i read about natural grape seed extract being an anti-estrogen with no side effects. Don't know how legit it is so check it out. The other dr at my primary care office is a homeopathic dr, he had told me to take something before i was diagnosed with bc, don't remember what it was cuz i got cancer a month later and never started taking it. I will ask after my surgery for sure. Been trying to find some answers for you my sweet girl! Hang in there and keep fighting hard! You will get there! Wish Roberta, you and I were all going together Friday. I will take you with me in my thoughts and prayers. Just going to feel surrounded by all those special angel hugs!!
Love, hugs and lucky shamrocks
Sandy


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