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The elevated tumor markers were not lying...
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mhall6252 posted:
Yesterday I got the results of Friday's PET scan...devastating news, really. I have mets in both lungs and several nodes, including some that were zapped in December/January. I've got extremely aggressive breast cancer.

I have an appointment on Friday afternoon with my original Dana Farber oncologist (in Boston). My local oncologist told me I'll probably be put on a platinum chemo, and I will have a biopsy to recheck the hormone status. I've heard of the hormone status changing from ER+ to ER- or the HER status changing, but I've not seen where triple negative switches to a positive anything. I also sent my PET report to my Radiation Oncologist, hoping he might have some creative ideas.

Soooo.... looks like my summer will be yucky again, my reconstruction surgery is off the table, and the "race for the cure" has new urgency for me.
Michelle
Read my blog at www.mch-breastcancer.blogspot.com
Smile and the world smiles with you!
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jenna291 responded:
Oh Michelle, I am so sorry for this sucky news. You know you are in the best of hands at Dana Farber and prayerfully they will come up with a good treatment plan that won't make you sick and turn things around.

I will be on Pinkie with everyone for your trip to Boston to see your doc on Friday.

In the meantime, you are in my prayers.

Go Red Sox ~
Jenna
 
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rachael67 responded:
That's the closest emoticon that I can find to try and describe the very much not allowed word that goes soooo much further than CRAP!!!!!!!

Michelle, I am so very sorry to hear your news. We will all be pulling for creative and successful treatment plans! Seems you've quite a team already in place ...folks whom you know, trust and who are more than competent! YES!!!

Pinkie will be filled with members who will escort you to your Friday appointment, and who will support, listen, care, and hold you in their hearts! Please feel us beside you!!

Need an emoticon for "Hugs"!!!!!!!!

Blessings.
Rachael
A bird doesn't sing because it has an answer; it sings because it has a song.
Maya Angelou
 
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GGrandmaJan replied to jenna291's response:
Arrrhhhh. This is really sucky--crappy news, Michelle. Words can not begin to let you know how we feel on this damn news. I wish I lived closer so I could give you a super gentle hug.

But----You do know that you are in the right location for the best Doctors. Dana Faber is top-notch as you well know. I pray your Onc and all your other Dr's will come up for a plan for you.

Yes, I have heard that the ER and PR status can change.

I am sending you whatever I can---prayers, good thoughts, many bouquets of flowers and a pillow. The pillow to pound the stuffing out of it.

Well, Geez.

Love you,
Jan
 
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judyfams replied to GGrandmaJan's response:
Oh Michelle,
I can't tell you how upset for you I feel at this moment. I have followed your blog and feel as if I know you as a close friend. We have celebrated good news together and now I am sorry to hear such awful news.
You are in an excellent place for treatment.
Good idea to check with your RO as they are doing a lot with radiation to zap those metastases.
I will pray for you and keep sending you positive vibes and good thoughts along with cyber hugs.
Much love to you,
Judy
 
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Haylen_WebMD_Staff responded:
Michelle,

I am so sorry to hear this - sending you (((hugs))) and hope.

There is no emoticon to show how I am feeling right now.....

Haylen
 
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supergrangran responded:
I am new to this site and am so sorry to hear your news stay strong and keep fighting, I am sending you all the love and support of our support group here in Scotland.

Remember St Perigrine the patron St of cancer sufferers.

Love and hugs from Scotland

Christine xxx
 
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mhall6252 responded:
Thanks to all you wonderful ladies for your love and support. We had our family pity party after we heard the news, then we had a living life party. That's how our family rolls...lol.

We leave for Paris on 5/25, nothing is changng that plan. Treatment will begin after we return on 6/5. And Paris will be a "no cancer zone" so we will have a fabulous time.

And welcome to the site, Christine. My DH would love to go to Scotland, he is an avid golfer and St. Andrews is the holy grail of golf. We need to get to that sooner, rather than later!

Jan - love the idea of the pounding pillow! You might want to think about marketing that idea!

Judy - thanks for reading my blog. It's certainly become quite the tome, much more than I ever would have expected when I started it!

I'm taking this one day at a time and forever grateful that I have access to the best medical care and the most beautiful family and friends. I'll be OK.
Michelle
Read my blog at www.mch-breastcancer.blogspot.com
Smile and the world smiles with you!
 
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rachael67 replied to mhall6252's response:
What an attitude! What a Warrior!! (Gosh, how I wish there was an emoticon for showing great pride in a fellow member...!!)

I can't begin to imagine a better approach than a party to life followed by a trip to Paris!!! And a cancer-free zone? You bet!!! (Incidentally, should you notice a large Pink Bus alongside your tour bus, it'll only be us tagging along! )

You are very special! And in all our hearts!!

Many blessings.
Rachael
A bird doesn't sing because it has an answer; it sings because it has a song.
Maya Angelou
 
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bcdevil replied to rachael67's response:
Michelle,
My heart is just breaking for you . I'm so sorry you are going thru all this. Your attitude is such an inspiration to me and I'm so proud to call you my friend. I will keep you close in my thoughts and prayers! You have a fabulous time in Paris and glad you are doing your best to leave your troubles behind. You are such an amazing person and you WILL beat this! You will always be a person who has changed me for the better! I'm so happy you are able to get away and enjoy yourself before your new battle begins. We are all here for you girl! Every step of the way......together we will always fight!

Love, hugs, and the luckiest of shamrocks,
Sandy
 
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mhall6252 replied to rachael67's response:
Rachael - you always find the best words to lift a person's spirits!

I'll be on the lookout for Pinkie right next to our tour buses, taxis, and oh, better get ready to rev the engine if you're going to keep up with Eurostar the day we go to London. That baby goes about 180 mph!!! So make sure everyone is strapped in and ready to roll!
Michelle
Read my blog at www.mch-breastcancer.blogspot.com
Smile and the world smiles with you!
 
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mhall6252 replied to bcdevil's response:
Sandy - thank you, your words are very kind. And I could sure use a few lucky shamrocks!!!

You are all such wonderful, caring individuals and I am uplifted by your caring.

Michelle
Michelle
Read my blog at www.mch-breastcancer.blogspot.com
Smile and the world smiles with you!
 
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brcansur replied to mhall6252's response:
Michelle,
I am so sorry to hear the crappy news it sucks big time after all you have been through darn it all !! But I am so happy to know that you are in very good hands with great Doctors and your family is the best in supporting you. Then going to Paris that is great not letting this stop you and your plans is a great thing. Being a cancer free zone even better go and have a great time but remember we are all going to be there on Pinkie tagging along like we always do lol.lol. Oh please take lots of pics and share with us all I tried one of those faces hope it worked. Hope you have a great and safe trip will keep you in my heart, thoughts and prayers as always and sending lots of angel hugs Roberta,
Roberta
 
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jenna291 replied to brcansur's response:
Hi Michelle,
How did your appt go at DF today?

I am so happy that you have this fabulous trip coming up for Paris. That is totally awesome! I love that it is a cancer-free zone. That is as it should be!!!! Do you speak French at all? I am drooling think about the yummy breads and foods you will be having. How wonderful for you and your family, and the timing is a super escape. I think we all want to come with you!

Many hugs and blessings,
Jenna
 
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mhall6252 replied to jenna291's response:
So, the cancer stuff first...relatively good news. My tumor load is very small - my mets are still tiny. Dr. Chen tried to feel for them and couldn't locate them. We talked about clinical trials (but there are no good ones at the moment), Carboplatin and Xeloda. Because we caught this early, she thinks Xeloda might work, and it's a very gentle oral chemo. So I will get started when we get back from Paris. I will also have a biopsy on one of the nodes to check the hormone status. Sometimes it changes, although it's usually more from positive to negative.

Now for Paris...I took French in high school and my mom's side of the family speaks fluent Canadian French. That said, I can understand a bit more than I can speak...it's been 45 years since I sat through a French conversation...lol! But we are all downloading French translators onto our smartphones so we'll manage pretty well.

As for the food, some of you know that I am diabetic. But this vacation will also be a "diabetic-free" zone, if you know what I mean. Oh yes, crepes, macarons, pain au chocolat, apple and pear tarts, and yummy dishes with exquisite sauces. Nothing will be off limits on this trip! And oh, let's not forget the red wine!

I'm even doing something I haven't done in ten years - getting both knees shot up with steroids so I can walk, pain-free. That's happening on Monday.

This time next Saturday, we'll be there!
Michelle
Read my blog at www.mch-breastcancer.blogspot.com
Smile and the world smiles with you!


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