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Getting Organized: CANCER101.ORG
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bc090109 posted:
In short, visit CANCER101.ORG which is a nonprofit organization which provides cancer patients with planners (for $10 to cover shipping) to help you keep organized during this whole ordeal. They also have a list of participating hospitals in different states which will actually provide these to you for free so may sure to check this first.

Now why I'm posting this.....

When I was first diagnosed with breast cancer I spent the next two weeks going through what everyone else did - I cried, said "why me?", researched, sat around a lot with a blank look on my face wondering why I should bother doing anything....I needed to talk to just anyone that would have some kind of idea what I was going through and spoke to a Breast Cancer Advocate at the hospital for some guidance. She was heaven sent as she voiced a lot of what I was feeling without me even telling her.

What she also did was provide me with tools to keep myself organized and with some sense of control of what was happening. She gave me a new CANCER101.ORG planner and CANCER101.ORG file portfolio. The planner helps me keep track of doctors phone numbers, upcoming appointments, medical history, medical bills, questions to ask, notes at each appointment, etc., all in one place to take with me to all appointments. The portfolio provides me with a place to put doctor bills, insurance paperwork, test results, etc., to keep things organized and readily accessible when a new doctor wants copies of previous test results. Because I understand I'll have to follow up with doctors for the rest of my life concerning my breast cancer and I can't rely on my memory due to chemo fog, I diligently keep these updated.

This may or may not be something some of you may do. I just wanted to pass along something that has helped me immensely throughout this whole process.
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Kathln responded:
Thanks for the info. I've just had a left mastectomy with 4 sentinal nodes -negative - tg. I will be starting chemo and radiation. The planner sounds perfect- feeling lost currently. Good Luck
 
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rachael67 replied to Kathln's response:
Sending you tons of good wishes. Let us know how you are doing, and what your treatment schedule is.

Blessings.
Rachael
Just when the caterpillar thought her world was over, she became a butterfly! Don't give up five minutes before the miracle!!


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