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Radiation Burns
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bjstrio posted:
I had terrible burns over 2/3rds of my breast after 7 weeks of radiation & I was miserable. Here is what I did. The doctor told me to get Domboro powder packets(Walgreens has otc). I mixed a packet with cool water as directed. Then I cut up an old very soft cotton shirt into strips. I would soak a strip or two in the solution then wrapped it around my breast and clipped it with a potato chip clip and reclined back on the couch. I would do that 3 times a day. I would then use silver sulfadiazine cream(perscription) over the entire burnt area and had several T-shirts I would use and change often as the wounds would seep on the shirts (did a LOT of laundry went thru a TON of stain remover). There is also Regenecare Wound Gel (perscription) has lidocaine in it. I would use that sometimes too but when I would first put it on is very painful and I would cry until the lidocaine started working.I had one area that wouldn't heal. My surgeon came up with the solution on that one. She told me to go to Walgreens and get Walgreens Advanced Healing Hydrocolloid Adhesive Bandages.(these are made for blisters) I was afraid to put it on the wound but she said it would be ok and she put the first one one. It WORKED GREAT. even though it was touching the wound it didn't hurt and it kept it clean and dry so the wound could heal & I could wear a bra again. I know how tough this part is and just a few of us have burns that bad. I also should tell you that if the nipple is burned too like mine was ... I did lose most of the pigment in the nipple and it doesn't come back. Looks a little different but is ok. I hope this helps anyone that is having this situation. It seems like it takes forever but it does get better.
Barbara
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ricobe responded:
Thanks for sharing. I'm just recovering from double lumpectomy surgery with sentinal node removal last week. I'm scheduled to start radiation in 2 weeks and hope to have suggestions such as yours to refer to before I start.
 
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sherry619 responded:
Barbara, thanks for sharing the info I too lost pigmentation in my areola and nipple area. That area got very raw on me during radiation
 
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judyfams replied to ricobe's response:
Please see if you are a candidate to have your radiation in the prone position (face down) - even if you hav already had your simulation in the supine(face up) position.

In the face down position, the breast hangs down and onlt the breast is irradiated from both sides not from the top down, thereby protecting the chest, ribs, heart and lungs. Most places do not want to do this as the table set up is different than the supine (face up) position - but it does better protect the chest area.

As far as radiation burns to the breast, the prone position cannot avoid that as the breast is still being irrafdiated.

I had my radiation in the prone position and found that position comfortable - the position was not a problem for me. Not everyone is a candidate for the prone position - but make sure to ask -it is better for protecting your chest and underarm.

Judy
 
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judyleann responded:
Thank you for this posting. I will start my rads soon, I have 33 of them, and I want to be prepared, so this post is very helpful to me. I finished my chemo and the last nuelasta shot last week, and I am so glad that part is over. Now I want to get the rads over with. God Bless you. Judy
 
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kiwiallright replied to judyleann's response:
Judy,

Not sure when you start you rad's as I have gone through radiaiton twice in the last ten years, the first time, my skin burnt quite easily - was told to use Aloe Clear gel lotion - has no perfume etc in it. Second time I began plastering it on my skin everyday and the Dr said I could put in on up to four hours before treatment and had the bottle with me when done and slapped more on. I did not burn, the skin is very tight. You could try it - I have not had any experience with the Prone position - Good Luck.
 
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judyleann replied to kiwiallright's response:
thank you, I am going to get a bottle of aloe clear gel, several people have said the same thing. I start my rads next week. God bless you. Judy


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