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Lymphodema Help
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rachael67 posted:
Good morning, Folks!

Yesterday I had my annual exam and mammogram. (All seems to have gone well, but I await the mammo results to actually relax! We all know how that is!)

Anyway, while being examined I noted that my doctor who is also a breast cancer survivor was wearing a new type sleeve. Apparently she deals with lymphodema and instead of the normal beige sleeve, she sported this really neat designed item. When I asked her about it she told me of the site lymphediva.com There they have all sorts of uniquely designed sleeves. She particularly liked the one she was wearing as folks often thought she had become Abby on NCIS and was all tatooed!!

We also discussed exercise for lymphodema and airline flights. She felt that the sleeve offered her more help than did the massage. But when on a plane, she wrapped rather than merely wore the sleeve as that also proved more beneficial for her.

Wanted to pass along the ideas for you to consider and evaluate for your particular condition. And to offer a bit of "lymphe-fashion" ideas.

Blessings.
Rachael
A bird doesn't sing because it has an answer; it sings because it has a song.
Maya Angelou
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mark918 responded:
Thanks for the info, I will pass it on to my wife.
 
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GGrandmaJan responded:
Congrats Rachael, on getting your physicals out of the way. Sending prayers for ALL good reports. Take a deep breath and do try to relax until you get all your results back.

Don't you hate to be "lady in waiting"? Really sucks big time.

Now about those lymphedema sleeves. Which one did your Dr have on that people thought she had tattoos? I thought that was so cute people thought she was Abby from NICS. I looked at the website and BOY---were they ever different than the old brown ones. I am just curious as to which one the Dr was wearing.

They are definitely expensive but the insurance companies do pay for these if your Dr writes a script. Even Medicare paid for one of mine. Just wanted you ladies to know that. Sometimes they are needed as you don't want the lymphedema to get a head start on your arms. It is better to "nip this one in the bud".

Thanks Rachael, for the web-site and info.

Fondly
Jan
 
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mhall6252 responded:
I have two of the boring beige sleeves and wear them when I fly. I don't have lymphedema, which is a miracle with everything I've had done to my left side! A fashionable one would be fun! I'll have to take a look at that for the next time I buy them. My insurance covered the cost of 2 sleeves and two gauntlets.
Michelle
Read my blog at www.mch-breastcancer.blogspot.com
Smile and the world smiles with you!
 
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rachael67 replied to GGrandmaJan's response:
Thanks for the good wishes, Jan.

I didn't honestly pay too close attention to the design by as I recall it was close to the Bali and the Shadow.

Hope that insurance covers most or all. That's whole other issue. But I do know that anything that helps our members look and feel better is a definite plus!

Blessings.
Rachael
A bird doesn't sing because it has an answer; it sings because it has a song.
Maya Angelou
 
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GGrandmaJan replied to mhall6252's response:
Hi Michelle,

I hate to be so stupid but what is the purpose of the gauntlets? I thought the sleeve would be enough. My hands don't swell---unless I punch the wall out!! LOL.

Boy, this week I have felt like punching someone or some-thing out. I can't believe but I have been on this dang phone since 9 AM. and it is now 1:30 Pacific time. The minute I hang up from one call the thing rings again. Not telemarketers either but Doctor's offices'. Everyone ganged up on me today.

So now I am going out to my garden. They can all just leave messages.

Happy Gardening, anyone.

Jan
 
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jenna291 replied to GGrandmaJan's response:
Rachael,
Just chiming in with my well wishes.

Enjoy your day ladies!

Jan, I hope the phones quiet down. Nothing like being out in the yard with the flowers to calm one down!!!

hugs,
Jenna
 
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mhall6252 replied to GGrandmaJan's response:
Jan - I think there is some thought that you should compress the hand along with the sleeve when flying. I have two gauntlets and after wearing them for about 30 minutes, I notice my fingers getting cold, almost numb. So I haven't been using them. I tried again on my trip to Paris because it was a long flight and I just couldn't put up with it. It's probably a bigger issue if you actually have lymphedema. Some people have to wrap their trunk to manage swelling. Everyone's situation is unique, of course.

I hear you about doctors calls. I've had a few days like that, too.

Hugs,
Michelle
Michelle
Read my blog at www.mch-breastcancer.blogspot.com
Smile and the world smiles with you!
 
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GGrandmaJan replied to mhall6252's response:
Thanks Michelle,

After my lumpectomy I did have some lymphedema. I got a pink one as that wouldn't show under my clothes as much. Since the Mast the swelling is too far up now and more on my chest area. Dr's don't seem to be concerned. As I do not fly I am not too worried.

Right now I have more serious things to deal with. LOL. Thanks for clearing that up.

Pray things are going all right with you. Have you got more pics on your blog. I can't wait to see them.
Prayers
Jan


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